Birmingham City Council, Access to Education, Communication and Autism Team would like to hear from parents of children and young people aged 9-16 years old with Tourettes Syndrome from across the UK about their experiences of support in school and what type of support they feel would be useful.
Researchers based at the School of Psychology at the University of Birmingham and the University of Essex found beneficial effects in reading when children with Tourettes Syndrome used coloured overlays (sheets of coloured plastic designed to be placed over text when reading). Placing a coloured overlay on top of a page whilst reading has proven beneficial in reducing the symptoms of ‘visual stress’ (such as distortions in text and eye strain) and increased reading speed.
‘Everybody just thinks I'm weird’: a qualitative exploration of the psychosocial experiences of adolescents with Tourette syndrome
A grant awarded to Tourettes Action from the BIG Lottery Fund has allowed researchers at the University of Nottingham to carry out research looking at how young people with Tourettes Syndrome feel about living with this condition. Six young people with Tourettes Syndrome were interviewed (14- to 16-year-olds) to look at the impact of having Tourettes and how it affected them and their relationships with others. The researchers used interpretative phenomenological analysis (IPA) which looks into how a given person, in a certain context, makes sense of a given phenomenon (in this case having Tourettes Syndrome) this allows researchers to ‘hear’ someone’s experiences.
Tourettes Action runs support groups around the country and is currently looking to expand services in the south west of England. We are looking for feedback from people living with TS in the area to help us provide the most appropriate services.
Tourettes Action offers services online and through our Helpline with telephone and email support. We are currently looking into how best to expand these services and would appreciate your feedback about them.