Two opportunities to have your say:

Carers Survey

Kings College London has been commissioned by the Department of Health to carry out a study amongst people who care for adults aged 18-65 years old with a long term neurological condition.  Do these carers get the replacement care / respite care they need to have freedom beyond their caring role?

If you are such a carer, take part in the nationwide survey. The survey questionnaire is available by post or online on the Kings College London website.

NHS review wants to hear from children, parents and carers

In October 2009, the Chief Executive of the NHS, David Nicholson, asked Sir Ian Kennedy to look at NHS services for children. Sir Ian is looking at recent initiatives to improve children’s health services, and, what needs be done for lasting improvements. 

Sir Ian wants to hear from children, young people and their parents or carers about their experiences of the NHS. He wants to find out about what is working well and where improvements need to be made.

Visit the Every Disabled Child Matters website to read the questions and find out how to submit your responses.