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Leaflets
A Guide to Personal Independence Payment
A guide from TA to Personal Independence Payments.
About ADHD - A guide for children
This booklet is designed for children with ADHD and will help them understand what ADHD is, how it may affect them, what help they may need and how they can help themselves.
Education
About Me Leaflet
This document is shown in our Tics and Transition video - a resource providing strategies and advice for children, parents and teachers; presented by specialist teacher, Katie Skinner.
You can watch the video on our You Tube channel
About TS
ACAMH: The Bridge, Tourette Syndrome edition
ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health. Their online publication - The Bridge - brings together research digests, and Tourette Syndrome is the focus of their February 2019 edition.
Adverse behaviour
A factsheet looking at behaviour issues in people with TS, including a section for parents on disciplining children and young people for parents.
Behavioural Therapist List
This is a list of psychological therapists in the UK who offer Behavioural Therapy & Cognitive Behavioural Therapy for the treatment of tics & Tourette Syndrome. Some of these practitioners work independently and others practice within a multidisciplinary service.
Consultant List
This is a list of consultants who have indicated they have specialist experience in diagnosing and treating Tourette Syndrome.
Tourettes Action information
Data Protection Policy
Download 1704813691_Data-Protection-Policy-version-2.2026.pdf
Education - advice for parents
Tourette Syndrome is not a learning disability but some of the symptoms and co-morbidities can have a substantial impact on a child’s ability to learn.
Education - guidance for people with TS going to university
TA has put together information that might be useful if you are going to university and have Tourette Syndrome.
Education - post-16 education options for people with TS
There are plenty of options available to you after you leave school at 16 or 18. You don’t have to go into work straight away, and you don’t have to do something academic to continue studying if you don’t want to.
Education EHC - COP guide for parents
This guide is for parents and carers of children and young people aged 0-25 years who have special educational needs (SEN) or a disability.
About TS
Factsheet - A guide to the Genetics of Tourette Syndrome
Since the 1980s it has been known that Tourette Syndrome can run in families. Probably most people with TS (but not all) do have other family members with some signs of the condition, including very mild tics or other features such as ADHD or OCD rather than tics.
Download 1482150066_TA-Guide-to-the-Genetics-of-Tourette-Syndrome.pdf
Factsheet - Accessing Services
This factsheet outlines what Equality law requires of service providers to make sure that disabled people are not put at a dis-advantage to non-disabled people; and also explains what action to take if you do experience barriers to accessing a service.
Factsheet - anger and TS
A factsheet looking at anger issues in people with Tourette Syndrome, including ways to manage anger attacks.
Factsheet - behavioural therapies
A factsheet looking at behavioural therapies, including Habit Reversal Therapy and Comprehensive Behavioural Intervention for Tics.
Factsheet - benefits and TS
This factsheet outlines a list of benefits which people with TS may be entitled to, and a list of organisations who offer specialist benefit advice and information.
Factsheet - Coprolalia
Coprophenomena is the involuntary expression of socially unacceptable words or gestures including Coprolalia, Coprographia and Copropraxia.
Factsheet - Disability Rights
TS is considered a disability under UK law which prohibits people with the condition being discriminated against because of it.
Children & young people
Factsheet - EHCP and TS
A comprehensive guide to the EHCP process.
Download 1692794160_Factsheet---Education,-health-and-care-plans.pdf
Children & young people
Factsheet - Exam revision tips
This factsheet offers information on what exam access arrangements are available to someone with TS and tips on how to best prepare for exams.
Factsheet - Functional Tics
This factsheet aims to give you an introduction to functional tics, it is not a factsheet about Tourette syndrome, but discusses the overlap between TS and FND.
Factsheet - housing and TS
We have outlined some potential housing issues that people with TS could face, and how you might look to resolve them.
Factsheet - pain and TS
A factsheet looking at how tics can cause pain and ways to control and manage the pain.
Education
Factsheet - Parent's guide to CBiT
Factsheet - social taboos and TS
A factsheet looking at coprophenomena, the involuntary expression of socially unacceptable words or gestures.
Factsheet - transport and TS
This factsheet discusses what challenges may arise when using different modes of transport, and suggestions to help improve your travel experiences.
Adults & TS
Factsheet for Employees
We have put some information together that looks at steps to employment, disclosing your condition, managing stress at work, how to deal with discrimination in the workplace and the responsibility of an employer including reasonable adjustments.
For professionals
Factsheet for Employers
We have created this factsheet for employers including information about TS and the Equality Act, reasonable adjustments, interview tips and some useful examples of adapting the social, physical and sensory environments in the workplace for an employee with TS.
About TS
Factsheet: Diet and nutritional supplements
As with most chronic conditions, people are often interested in the possible influence of diet. At Tourettes Action we often get asked about any links between diet and Tourette Syndrome or tics.
Download 1488195649_Factsheet---Diet-and-nutritional-supplements.pdf
Guide to seeing a specialist
A guide to what you can expect when you go to see a specialist.
How to get good sleep
The current lockdown means that many of us have disrupted routines and are largely confined to our homes. This can affect our sleep cycle and our mood. Sleep is essential for learning, growth, cell repair and memory consolidation. Here are some easy steps we can all take to ensure we get good quality sleep, even at times of uncertainty.
Key Facts for Teachers
This leaflets outlines the most important things that teachers need to know when working with a pupil who has Tourette Syndrome.
KS1 Lesson Plan
Download our lesson plan to use in a classroom environment to educate pupils about TS.
KS2 Lesson Plan
Download our lesson plan to use in a classroom environment to educate pupils about TS.
KS3 / KS4 Lesson Plan
Download our lesson plan to use in a classroom environment to educate pupils about TS.
Managing tics
We have provided a list of creative ways to manage tics, based on feedback from people in the TS community.
Research
Proforma for non-funded research (word.doc)
Putting the breaks on rage
A guide to understanding anger for parents and how to turn the rage around.
Fundraising
Setting up your Just Giving page
A simple guide to creating an effective page to help reach your fundraising goals.
Fundraising
TA Bunting
Download our FREE bunting to give your event a fun, TA theme.
TA fundraising brochure
Find out the different ways that you can fundraise for Tourettes Action.
TA Gift Aid Form
Complete this form to enable us to collect Gift Aid from your donations.
Template - MP Complaint Letter Child Awaiting Diagnosis
Template - MP Complaint Letter for parents or carers of a child who is awaiting a TS Diagnosis
Template - MP Complaint Letter Child Diagnosed with TS
Template - MP Complaint Letter for parents or carers of a child with a TS Diagnosis
Template - MP Complaint Letter for Adults with TS
Template - MP Complaint Letter for Adults with a TS Diagnosis
Template - MP Complaint Letter Friend of Person with TS
Template - MP Complaint Letter for friends of Person with a TS Diagnosis
The Education Health and Care Needs Assessment (EHCNA)
A simple guide on what to expect when applying for an Education Health and Care Plan (EHCP Plan).
Tic Attack document only - A4 Easy print
Easy print version of the A4 Tic Attacks document, for adults and children.
Tic Attack document only - A4 Easy print, child friendly version
Adapted version of the Tic Attacks document for children, with images.
Tourettes Awareness Poster in Welsh - Tourettes and Co-occurring ConditionsThis is a Tourettes Awareness Poster showing TS is much more than Tics - Welsh Version
- Tourettes Awareness Poster Welsh Version - People with Tourettes are more than their Tics
This is a Tourettes Awareness Poster celebrating people with TS for the amazing individuals they are.
- Tourettes Awareness Poster Welsh Version - Reality of Tourettes
This is a Tourettes Awareness Poster showing what the reality of TS can be like.
TS magazine feature
Final year Journalism student, David Conway, from the University of Sheffield has created a magazine article focusing on the stories of three individuals with TS, including football's international goalkeeper Tim Howard, whilst also examining the facts behind the condition.
TS Passport - A4 Easy print
Easy print version of the TS Passport for adults and children.
TS Passport with Tic Attacks sheet - A4 Easy print
Easy print version of the TS Passport for adults and children, with Tic Attacks sheet.
Children & young people
TS Social Story
A learning tool to help support the exchange of information between children with TS and their teachers, friends and others in social situations.
TS the simple truth - guide for young people
We asked children and young people with Tourette Syndrome what they wanted to know about the condition, and we've asnswered their questions in this easy to read guide.
Research
University of Sussex Tourette syndrome Research Newsletter
Updates on the study progress and analyses of University of Sussex research using brain scanning techniques to look at how brain activity and structure might contribute to symptoms like tics.
What If...a practical guide to possible problems
A “What if” board is a strategy for making plans to combat potential difficult situations. It helps us to identify what our worries are and make plans to manage them.
It’s a simple but effective strategy for managing big changes or common problems.
During the current Covid-19 pandemic people are facing unprecedented changes to their daily lives, and are coping with anxieties related to health, finances and worries about family members.
To support you we have compiled responses to some potential “What ifs” in the hope that they may provide you with some support and guidance at this difficult time.What Makes Us Tic
Our principal leaflet explaining about Tourette Syndrome, the causes, symptoms and treatments available.
Report
About TS
ACAMH: The Bridge, Tourette Syndrome edition
ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health. Their online publication - The Bridge - brings together research digests, and Tourette Syndrome is the focus of their February 2019 edition.
Children & young people
Differences and similarities of ASD and Tourette Syndrome
Chartered research psychologist and freelance neurodiversity consultant Seonaid Anderson is the author of an interesting article featured in the 2021 Jan/Feb edition of SEN magazine.
The article compares the many differences and similarities between Tourette Syndrome (TS) and Autism Spectrum Disorder (ASD), such as prevalence, symptoms, co-occurring conditions and movements which are associated with each condition.
Neurodiversity at work
This report highlights the benefits of having a 'neurodiverse' workforce and aims to identify policies and practices to ensure the integration of people with neurological conditions into mainstream employment.
For professionals
Professor Mary Robertson Prizewinner 2013
For professionals
Professor Mary Robertson Prizewinner 2014
Managing TS
Psychology at work - improving wellbeing and productivity in the workplace
Psychology is the scientific study of mind and behaviour, from communication and memory to thought and emotion. This report from the British Psychological Society can be used by policy makers, commissioners, practitioners and employers to apply relevant psychological theory, evidence and practice to design interventions that work with human behaviour, not against it.
Download 1511349992_Psychology-at-work---improving-wellbeing-and-productivity-in-the-workplace.pdf
Report into ImPAcT project: Improving the psychosocial experiences of adolescents with TS
This report summarises the findings from the research project ‘Improving the psychosocial experiences of adolescents with Tourette Syndrome’ (ImPAcT).
Research report into coloured overlays and TS
Researchers found beneficial effects in reading when children with Tourette Syndrome used coloured overlays.
Secondary Tourettes - Transition to Secondary School. SEN Magazine
Tourettes Action Research Manager Dr Seonaid Anderson, looks at how to help children with Tourette Syndrome handle the difficult transition to secondary school.
Tourettes Action information
TA Accounts - 2020 - 2021
Tourettes Action information
TA Accounts - 2021 - 2022
Tourettes Action information
TA Accounts 2022 - 2023
Download 1702484610_TA-Annual-Accounts-2022---2023-Signed.pdf
Videos
3 men with Tourettes on holiday
National Geographic programme. Three men with TS go on a road trip.
About TS
A Fixers campaign led by Sophia Savidis-Macris
‘The media tends to only show very extreme versions of Tourette’s and that’s quite frustrating for those of us who have less noticeable symptoms.’
Sophia Savidis-Macris wants to highlight the challenges she faces living with Tourette’s syndrome so she can tackle some of the misconceptions surrounding the condition.
This story was broadcast on ITV News London in January 2016.A school-based exercise to demonstrate how concentration can be impaired by tics
Harvey is passionate about informing teachers about TS, and wanted to make a short video to demonstrate how TS can be a barrier to learning.
About TS
Ability Magazine Interview with artist - Liu Fusheng
Liu Fusheng, a larger than life artist lives in Singapore and has Tourette syndrome. Despite the severity of his symptoms, he was misdiagnosed until his college years. Liu's art flourishes and his eccentric style continues to evolve.
About TS
Anger and Tourette Syndrome: Top tips and coping strategies
Dr Maria Hadji-Michael, Clinical Psychologist at Great Ormond Street Hospital defines what anger difficulties are in Tourette Syndrome, and provides information and guidance to parents and schools on how to support a young person experiencing these difficulties
Ask Ruth about Tourettes - the Ticcer Tape Parade
Ruth answers a series of questions about what his life is like with TourettesThis video is part of the Tourettes Action Ticcer Tape Parade.
BBC Report about research into TS (28 Jan 2013)
Young people with Tourette Syndrome have been given new hope as a result of pioneering work by scientists at the University of Nottingham
Belleville teacher battles Tourette Syndrome: I never knew the word 'can't'
An article and video about a teacher in the US with Tourette Syndrome.
Beyond Tics
'Beyond Tics' is a short film depicting the events of a workshop run by the London Brain Project (2015) in which Artists, Neuroscientists and people with Tourette Syndrome collaborated to create collaborative pieces of art.
BMJ podcast about Tourette Syndrome
Tourette's Action Chief Executive, Suzanne Dobson, speaks to the British Medical Journal about Tourette Syndrome. Audio - 20.48 mins.
Brent marries Challis in a lovely Las Vegas wedding.
Find out what Brent has been up to since he appeared on "The Undateables."
Brent vs Tourettes
ITV Fixers programme. Funded documentary on coping mechanisms for Tourettes Syndrome sufferer Brent Zillwood.
C4 programme "The Undateables" catch up with Ruth.
Monday 26 January, saw Ruth Ojadi hit the small screen, as "The Undateables" team caught up with her. As well as working as a Groups Development Officer for Tourettes Action, find out how her dates went and what she hopes the future will hold.
Carlos Guevara's struggles with Tourette Syndrome won't hold him back - The X Factor USA 2013
Carlos Guevara has Tourette Syndrome and an amazing voice. Watch him as he auditions for the X Factor USA 2013.
Children & young people
Caspar Lee speaks out about life with TS
Catherine - "My life with Tourette Syndrome" - The Ticcer Tape Parade
Catherine talks about what his life is like with Tourettes, including how it feels not to be able to work. This video is part of the Tourettes Action Ticcer Tape Parade.
Channel 4 programme looks at TS
Ben shatters the illusion that all people with TS swear.
Chelsea White talks about life with Tourette Syndrome
Comedian Chelsea White talks about her life with Tourette Syndrome in this series of seven short videos.
Comprehensive Behavioral Intervention For Tics - A guide for parents
The Tourette Association of America have produced an informative guide for parents on tic management, in particular looking at the treatment of Comprehensive Behavioral Intervention For Tics (CBIT); presented by Dr Michael Himle, Associate Professor of Psychology at the University of Utah.
About TS
Comprehensive Behavioral Intervention for Tics Demonstration Pt. 4
Comprehensive Behavioral Intervention for Tics Demonstration by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee; featuring Carlos Guevara, taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Comprehensive Behavioral Intervention for Tics Pt. 2
Comprehensive Behavioral Intervention for Tics Part 2 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Comprehensive Behavioral Intervention for Tics Pt. 3
Comprehensive Behavioral Intervention for Tics Part 3 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Comprehensive Behavioral Intervention for Tics: Part 1
Comprehensive Behavioral Intervention for Tics Part 1 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Dance, Yoga and how it's helped my TS
Clair Beckett, professional dancer, yoga teacher and theatre company director talks about her experience of movement based practices and how they support her TS.
Discussion with Greg Storey who has TS - This Morning 17th Sept 2012
Discussion with Greg Storey who has Tourette Syndrome on This Morning, 17th Sept 2012.
Managing TS
Do-IT talking Neurodiversity with Paul Stevenson, Tourette Syndrome Advocate
A short video interview about Neurodiversity focusing on Tourette Syndrome. Professor Amanda Kirby of Do-IT Solutions discusses Neurodiversity and what is important about it with Paul Stevenson, Tourette Syndrom Advocate.
Experiences of Tourette Syndrome
Will goes on a mission to find out more about his condition and his future by talking to other people with Tourette Syndrome.
Grace explains why she wouldn't change her TS - The Ticcer Tape Parade
Grace talks about what life is like with Tourettes and how, as difficult as it can be, she wouldn't change it even if she could. Part of the Tourettes Action Ticcer Tape Parade.
About TS
Growing Up with Tourettes
Top international digital star, Caspar Lee interviews young people about growing up with Tourette Syndrome in this heart-warming video.
Harry 'Yakkamakakka' on life with TS - the Ticcer Tape Parade
As part of the Tourettes Action Ticcer Tape Parade, Harry talks about what life it like living with Tourettes Syndrome.
Hollywood actor, Dash Mihok, talks about working with Tourette Syndrome
Watch a CNN interview with Dash Mihok, a Hollywood actor with Tourette's about his fight to put a stop to bullying.
What you say about your TS
I have Tourette's. Get over it. | Analise and Robyn Twemlow | TEDxChristchurch
In this brave and touching talk, Analise and Robyn argue for Tourettes to be recognised as a disability in New Zealand, and for treatment to be made available accordingly.
Jack Mangan: Me and my Tourettes
8 year old Jack talks about his experience of having Tourette Syndrome.
About TS
James McCraken: Treatment options for tic disorders and comorbidities
In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, James T McCracken M. D., Professor of Child Psychiatry Director, Division of Child & Adolescent Psychiatry, Dept of Psychiatry & Bio-Behavioural Sciences at UCLA, gives an overview of the role of medical treatments in the treatment of TS and co-occurring conditions.
About TS
Jamie Sanders on Tourettes jokes
Jamie discusses the misuse of the word Tourettes in popular culture, and how this limits people's understanding of the condition
Jess Thom is interviewed on This Morning, 9 May 2012
Touretteshero co-founder Jessica Thom talks to Holly Willoughby & Philip Schofield about living with TS and how it's created new opportunities for creativity and learning. Find out more at www.touretteshero.com.
Jess, Ruth and Luke talk about life with TS to Australian TV show
Australian TV show 'Sunday Night' spends time with Jess, Ruth and Luke to gain insight into the reality of living with TS
About TS
John Piacentini: Environmental influences and behaviour therapy
In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, John Piacentini PhD ABPP Professor of Psychiatry & Bio-Behavioural Sciences at UCLA discusses the environmental influences on tics, and behaviour therapy.
Kids With Tourettes In Their Own Words (June 2013)
ITV programme about three young boys with Tourette Syndrome as they undergo treatment at Great Ormond Street Hospital.
Leo living with tourettes - the Tourettes Action Ticcer Tape Parade
As part of the Tourettes Action Ticcer Tape Parade, six year old Leo from Australia talks about what life it like living with Tourettes Syndrome.
Living with Tourettes: Finding the flip side
Michael Chichioco tells an inspiring and deeply emotional story about living with Tourette's syndrome .
Living with TS - Wales this Week (July 2013)
Joe Holloway, 17, of Henllan, near Denbigh, speaks to ITV and says he wants people to ask him about the condition - not to stare or ignore him.
Children & young people
Living with TS: Young people's perspective
Lockdown Blues Original Coronavirus Song!
Wilamena and her sister Marley, bored in lockdown in Devon, decided to write a song which they have called "lockdown blues" all about the coronavirus crisis. Wilamena says "It was a bit of fun and whilst I did it my tourettes did not bother me! We hope you enjoy! :)"
Louis Williams, Tourettes and Creativity - The Ticcer Tape Parade
As part of the Tourettes Action Ticcer Tape Parade, Louis a young musician living in Cornwall, England talks about life with Tourettes and how he deals with it using music.
No "Casualty" as BBC1 script "TICked" all the right boxes.
The BBC1 medical drama Casualty, featuring a TS storyline, aired on February 21st at 21:15. But how do they put the stories together and what does it all entail?
Oxfordshire schoolboy tells his Tourette story (July 2013)
Tourette Syndrome is often characterised as outbursts of bad language, but when eight-year-old Spencer Davies-Monk was diagnosed, his parents Richard and Hayley from Upper Heyford, near Bicester in Oxfordshire learned the condition is far more complex.
What you say about your TS
Plymouth Support Group video
About TS
Prof Kevin Black: What are tics and what company do they keep?
In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video Kevin Black, Professor of Psychiatry, Neurology, Radiology and Neuroscience at Washington University, St Louis; discusses in detail what Tourette Syndrome is.
Rupert shares his experience of CBIT therapy with Tourettes Action
Watch this informative video which shows the benefits of Comprehensive Behavioral Intervention for Tics (CBIT).
Russian Dolls
‘Russian Doll’ is a film made by Clair Beckett in collaboration with Street Factory and Red5 films, as part of a project called 'Hip Hop Hope' funded by the Arts Council England.
About TS
Samuel Morris
12 year old Samuel made a fantastic awareness video to share all about TS with his class at school.
Shane Fistell: A portrait of Tourette Syndrome
Despite the adversityShane has faced, his drive is strong to express his creativity and be out in the world.
Spencers Ticcer Tape Parade video - How he doesn't let his tics get in the way of life
Spencer talks about what his life is like with Tourettes and how he doesn't let it get in the way of his favourite sports. This video is part of the Tourettes Action Ticcer Tape Parade.
Tourettes Action information
Supporting families in the TS community
This short film has been created to inform people about how Tourettes Action can support families in the TS community. The film was shot at TICfest Kent in 2019. Our TICfest events bring families together across the UK for a weekend residential of activities, support and fun. We wanted to give a platform to families, to express how they have benefited from engaging with our broad range of services.
T-Jay on how his Tourettes appeared as an adult and what life is like living with TS
T-Jay talks about what his life is like with Tourettes and what triggers his tics. This video is part of the Tourettes Action Ticcer Tape Parade.
What you say about your TS
The barber who lives his life with TS
Cutting hair is precision work that demands calm and steady hands. So what do you do if your dream is to become a barber, but you're diagnosed with Tourette syndrome? David Arce, 27, has the answer: "You just go out there and follow your dreams. If I can do it, anybody can."
About TS
Things Not To Say To People With Tourette Syndrome
The fantastic BBC3 series 'Things Not To Say To People', that helps break down stereotypes and myths about social groups have made an episode on Tourette Syndrome.
Children & young people
This is me! Cello, music and Tourette Syndrome
12 year old Wilamena is determined to "help other children who have TS and inspire them to live life to the max, regardless of any sneaky tics." In this video Wilamena talks about her love of music, and her journey so far living with Tourette Syndrome.
Tic Talk: School Transition
This video is part of our 'Tic Talk' series, in which we have collaborated with Specialist Teacher - Katie Skinner - to bring strategies and advice to children, parents and teachers about topics relating to school and TS.
Tom "swings & jazzes" into BBC 1 show "The Voice"
Saturday 17 January saw charismatic singer, Tom Carpenter take to the stage on the popular BBC1 TV series "The Voice."
Tourette Syndrome: "So f*cking funny you'll cry!"
A video filmed by Meredith, sister to Mason, to point out to comedians who use TS as part of their act, that it isn't always a laughing matter.
Tourette's Syndrome - Life With Tourette's
Australian news programme talks to Ruth, Jess and Luke who have TS.
Tourette's syndrome - the alchemy of chaos: Jess Thom at TEDxA
Find out how Jess Thom is "changing the world one tic at a time" in this inspiring TEDx talk.
Tourettes Action - parent and school partnership
Geraldine Hills discusses how parents of children with Tourette Syndrome can work with the school to get the best support in place for their child.
About TS
Tourettes and how to be unstoppable
I constantly twitch, jerk and today love being an 837 + performance keynote speaker living with the rare neurological disorder Tourettes Syndrome www.itwitch.com
Touretteshero Saturday Night Show Interview 9th March 2013
Touretteshero co-founder Jess Thom's live interview with Brendan O'Connor on the RTÉ Saturday Night Show (9th March 2013).
Children & young people
TS: creative inspiration
About TS
University of Nottingham research study into online support groups
An online survey exploring users’ experiences of using online support groups for tic disorders and Tourette syndrome
What makes me tic
Find out how these inspiring young people manage their condition and other people's reaction throughout their everyday lives.
What TS means to me
Meet Logan, he has Epilepsy, Tourette Syndrome, Autism Spectrum Disorder (Asperger’s), Attention Deficit Hyperactivity Disorder (ADHD) and Hypermobility Disorder. These conditions can make life difficult at times, but Logan has a great attitude to life that supports him in doing everything he wants to do. In this video he explains what having TS means to him.
Children & young people
Yusuke Osada: Finding solace in the piano
Yusuke Osada is a talented pianist who finds that his tics stop when he plays the piano. In this inspiring video, Yusuke talks about his relationship with music and urges other people with TS to take up an instrument and see what happens...
Books
Anger management games for children
This practical handbook helps adults to understand, manage and reflect constructively on children's anger.
Breaking Free from OCD: A CBT Guide for Young People and Their Families
This self-help book for young people aged 10-16 is for adolescents who have suffered from, or know someone who has suffered from, OCD, their families, teachers, carers, and mental health professionals.
Busy Body: My Life with Tourette's Syndrome
Nick van Bloss' memoir gives an insight into TS, and allows us into the heart and mind of a wonderfully witty and talented man.
Can I Tell You About Tourette Syndrome? - Mal Leicester
A guide about TS for friends, family and professionals.
About TS
Can I tell you about Tourette Syndrome?: A guide for friends, family and professionals
Meet Max - a boy with Tourette syndrome (TS). Max invites readers to learn about Tourette's from his perspective, helping them to understand what tics and triggers are and what it feels like to have TS. He explains how living with TS can sometimes be difficult, and how people around him can help him to feel happy and accepted. This illustrated book is ideal for young people aged 7 upwards, as well as parents, friends, teachers and other professionals working with children with TS. It is also an excellent starting point for family and classroom discussions.
Cognitive-Behavioural Management of Tic Disorders
This book provides a comprehensive review of what is known about the occurrence and diagnosis of tics.
Coping with Tourette Syndrome: A Workbook for Kids with Tic Disorders
This practical workbook includes forty activities to help kids with TS, obsessive compulsive disorder (OCD), or attention-deficit hyperactivity disorder (ADHD) understand, prepare for, and mask their tics.
Disorganised Children: A Guide for Parents and Professionals
Psychiatrists, speech, family and occupational therapists present a range of behavioural and psychological strategies to help disorganized children improve concentration in the classroom and a variety of behaviour and social interaction difficulties.
Front of the class
Brad Cohen has TS and in this book outlines the journey he took to become a teacher.
Kids in the Syndrome Mix
A concise, scientifically up-to-date, all-in-one guide to the whole range of often co-existing neuro-behavioral disorders in children.
Late, Lost & Unprepared - A parents' guide to helping children with Executive Functioning.
Executive functions are the cognitive skills that help us manage our lives and be successful. This book is suitable for parents of children from primary school through high school who struggle with: Impulse Control; Cognitive Flexibility; Initiation; Working Memory; Planning & Organising; and, Self-monitoring.
Making allowances
A collection of personal stories of Tourette Syndrome sufferers and their families.
Managing Tourette Syndrome
A Behavioral Intervention for Children and Adults Therapist Guide (Treatments That Work).
Nix Your Tics!: Eliminate Unwanted Tic Symptoms: A How-To Guide for Young People
Dr. B. Duncan McKinlay, Psychologist (‘Dr. Dunc’) has Tourette Syndrome. That means he’s been living with both motor tics (movements he has a hard time stopping) and phonic tics (noises he has a hard time stopping) for most of his life.
Piper Jolly: Piper Saves a Pigeon: Volume 1
A girl who sniffs and clears her throat. A pigeon that becomes part of the family. Life is never dull when Piper and Patrick the pigeon are together. Just as Patrick isn't a conventional pet, Piper isn’t like everyone else in her class at school.
Second Chances - A young person's guide to emotional resilience
An inspiring book that looks at various ways in which young people can build emotional resilience to help them cope with the stresses and strains of being a young person with health issues.
Teaching the Tiger
A practical reference book for educators working with students who have Tourette Syndrome, Attention Deficit Disorder, and/or Obsessive-Compulsive Disorder.
About TS
The Tourettes Survival Kit: Tools for Young Adults with Tics
Struggling to manage your tics in the classroom? Worried about your tics in a job interview or on a first date? This survival kit will give you the tools to survive and thrive in every location - at home, school, work or out with friends. Presenting everyday situations, from schools and exams through to driving and dates, this guide provides simple solutions to common problems and concerns. Dr Tara gives her top tips for managing tics, alongside behavioural therapy techniques for stress management and strategies for coping with commonly co-occurring conditions such as ADHD, OCD and anxiety.
Tic Disorders - A Guide for Parents and Professionals
Uttom Chowdhury and Tara Murphy. Foreword by Suzanne Dobson, Chief Executive of Tourettes Action UK.
Tic Talk: Living with Tourette Syndrome
Dylan Peters shares what he has learned of tolerance and acceptance during the five years he has had Tourette Syndrome
Tics and Tourette Syndrome: A Handbook for Parents and Professionals
This guide to tic disorders and Tourette Syndrome tackles problems faced both at home and at school.
Tictionary: A Reference Guide to the World of Tourette Syndrome
This A-Z resource guide is for anyone needing information and common-sense strategies as they deal with neurological disorders, including TS.
Touch and Go Joe: An Adolescent's Experience of OCD
One in every 100 people suffers from Obsessive-Compulsive Disorder (OCD), and 16-year-old Joe Wells is one of them.
Tourette Syndrome
Tourette Syndrome covers all of the main aspects related to TS, analyzing the complexity of its clinical presentation, the novel viewpoints of causes and mechanisms, the best way to assess TS patients, and the multifaceted and multidisciplinary treatment options.
Tourette Syndrome (The Facts)
The Facts explains the causes of TS, how it is diagnosed, and how to cope if you or a relative has been recently diagnosed.
Tourette Syndrome: A Practical Guide for Teachers, Parents and Carers (Resource Materials for Teachers)
Clinical descriptions and medical treatments are discussed and advice on diagnosis, identification and assessment in the classroom is given.
Welcome to Biscuit Land: A year in the life of Touretteshero
Jess Thom says ‘biscuit’ up to 16 times per minute. In her book she explains what life is like living with TS.
What to Do When Your Brain Gets Stuck: A Kid's Guide to Overcoming OCD
A what-to-do guides for kids with OCD.
Whatever Happened To Twitch Morgan?: A Life with Tourette's Syndrome by David Jowsey
WHATEVER HAPPENED TO TWITCH MORGAN? 'An approachable and uplifting story of life with Tourette's Syndrome'
Links
About ADHD - A guide for children
This booklet is designed for children with ADHD and will help them understand what ADHD is, how it may affect them, what help they may need and how they can help themselves.
Coprolalia Myths Demystified
An article looking at the reasons behind coprolalia and inappropriate behaviour.
Children & young people
Online ID card application form
Complete your application for a TS ID card online and submit all supporting documents plus a passport size photo (Jpeg).
Click here to apply online
- Tourettes Awareness Email Footer Banner - Corporate
This is the Corporate Email Footer Banner that forms part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June. We are hoping as many people as possible will take part to help us raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness Email Footer Banner - Personal
This is the Personal Email Footer Banner that forms part of our social media pack. We are asking individuals and companies to use these resources during Tourettes Awareness Month, 15th May to 15th June. We are hoping to encourage as many people as possible to take part in helping us raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness Facebook Cover - Corporate
This is the Corporate Facebook Cover Photo that forms part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June. We are hoping to encourage as many people as possible to take part in helping us to raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness Facebook Cover - Personal
This is the Personal Facebook Cover Photo that forms part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June.
We are hoping to encourage as many people as possible to take part in helping us to raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness Instagram Card
This is the Instagram Card that forms part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June.
We are hoping to encourage as many people as possible to take part in helping us to raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness LinkedIn Banner - Corporate
This is the Corporate LinkedIn Banner that forms part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June.
We are hoping to encourage as many people as possible to take part in helping us to raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness LinkedIn Banner - Personal
This is the Personal LinkedIn Banner that forms part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June.
We are hoping to encourage as many people as possible to take part in helping us to raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness Poster - People with Tourettes are more than their Tics
This is a Tourettes Awareness Poster celebrating people with TS for the amazing individuals they are.
- Tourettes Awareness Poster - Reality of Tourettes
This is a Tourettes Awareness Poster showing what the reality of TS can be like.
- Tourettes Awareness Poster - Tourettes and Co-occurring Conditions
This is a Tourettes Awareness Poster showing TS is much more than Tics.
- Tourettes Awareness Twitter Banner - Corporate
This is the Corporate Twitter Banner that forms part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June.
We are hoping to encourage as many people as possible to take part in helping us to raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness Twitter Banner - Personal
This is the Personal Twitter Banner that forms part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June.
We are hoping to encourage as many people as possible to take part in helping us to raise awareness of what is still a very misunderstood condition.
- Tourettes Awareness Virtual Background
This is the Virtual background that can be used on zoom or teams and is part of our social media pack. We are asking individuals and companies to use our pack during Tourettes Awareness Month, 15th May to 15th June.
We are hoping to encourage as many people as possible to take part in helping us to raise awareness of what is still a very misunderstood condition.
Presentations
Education
About Me Leaflet
This document is shown in our Tics and Transition video - a resource providing strategies and advice for children, parents and teachers; presented by specialist teacher, Katie Skinner.
You can watch the video on our You Tube channel
Research
Body perception in Tourette Syndrome - interoception, tics & premonitory urges
Slides from Dr Cahrlotte Rae's presentation at the 2019 TARN conference
Download 1569504655_Charlotte_Rae_Body-perception-in-Tourette-Syndrome_TARN_2019.pdf
Research
Co-morbidities labels, lists and lets talk
Slides from Dr Tammy Hedderley's presentation at the 2019 TARN conference.
Download 1569504740_Hedderly-Tammy_Cormorbidities,-Labels-and-Lets-talk_TARN_2019.pdf
Managing My Worries
This document is shown in our Tics and Transition video - a resource providing strategies and advice for children, parents and teachers; presented by specialist teacher, Katie Skinner.
You can watch the video on our You Tube channel
Once Upon A Tic
This is the journey of a young girl Alice, transitioning from primary to secondary school, and looks at some of the difficulties she faces in this journey, and the support she receives to make the process more manageable. In our story Alice and her mother use the resources from Tourettes Action to educate both her teachers and peers on her condition, to help improve her time in school. Please note that the illustrations are narrated in the notes section of the powerpoint.
Education
Reframing my thoughts
This document is shown in our Tics and Anxiety video - a resource providing strategies and advice for children, parents and teachers; presented by specialist teacher, Katie Skinner.
You can watch the video on our You Tube channel
Education
STAR Chart
This document is shown in our Tics and Anxiety video - a resource providing strategies and advice for children, parents and teachers; presented by specialist teacher, Katie Skinner.
You can watch the video on our You Tube channel
Research
Tackle your Tics: feasibility of a brief, intensive group-based exposure therapy programme for children with Tourette Syndrome.
Slides from Annet Heijerman & Dr Cara Verdellen's presentation at the 2019 TARN conference.
Download 1569504853_Presentation-Tackle-your-Tics_TARN_2019.pdf
Research
The neurophysiology of tics
Slides from Professor John Rothwell's presentation at the 2019 TARN conference.
Research
The Stigma of Tourette Syndrome
Slides from Dr Melina Malli's presentation at the 2019 TARN conference.
Education
Using Apps
This document is shown in our Tics and Anxiety video - a resource providing strategies and advice for children, parents and teachers; presented by specialist teacher, Katie Skinner.
You can watch the video on our You Tube channel
Education
What If Board Part 1
This document is shown in our Tics and Transition video - a resource providing strategies and advice for children, parents and teachers; presented by specialist teacher, Katie Skinner.
You can watch the video on our You Tube channel
Education
What If Board Part 2
This document is shown in our Tics and Transition video - a resource providing strategies and advice for children, parents and teachers; presented by specialist teacher, Katie Skinner.
You can watch the video on our You Tube channel
What is TS? A presentation for Primary School children
This presentation has been designed to inform young people about Tourette Syndrome; and help friends and family better understand how they can support someone living with this condition.
What is TS? A presentation for Secondary School children
This presentation has been designed with young adults of secondary school age in mind. It's aim is to inform about the complexities of Tourette Syndrome and to dispel some misconceptions around the condition. By increasing TS knowledge amongst pupils, this will hopefully breed acceptance and understanding of the condition.
Website links
"A smartphone App helped me treat my Tourettes"
The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.
Contact a family website
Contact a Family is a charity that works to support the families of disabled children.
GOSH - TS information pack
The experts at Great Ormond Street Hospital (GOSH) have put together an information pack for young people and families on Tourette Syndrome (TS). It includes information on anger management and managing tics.
How can brands engage better with customers with invisible disabilities?
Serena Bhandari joined Martin Newman from Consumer Focus (a podcast which aims to educate, inform and provoke debate on how businesses can offer the best possible experience and service to their customers).to discuss her experiences around having Tourette Syndrome, and how stores and restaurants can make sure that staff can assist customers with ‘invisible’ disabilities.
Children & young people
Living with TS: Young people's perspective
Neurodiversity in the workplace
A podcast interview with Alice Franklin, a strategy intern at advertising agency BBH London.
Research paper: Difficulties experienced by young people with Tourette syndrome in secondary school
Difficulties experienced by young people with Tourette syndrome in secondary school: a mixed methods description of self, parent and staff perspectives.
The Umbrella Gang
The Umbrella Gang tells the story of five young people and their pets – all of whom are neurodiverse – and their journey from first learning to understand their learning differences, to overcoming a struggle and emerging at the end triumphant, understanding and managing their new-found superpowers.
Press cuttings
"A smartphone App helped me treat my Tourettes"
The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.
"I won't let Tourettes hold me back!" an interview with Ruth Ojadi
Woman magazine recently caught up with Ruth, to find out how she came to terms with developing TS in adulthood.
"Stillness in Movement" - An interview with Gilbert Ratcliffe
An article written by Allison Livingstone for Cornwall Today magazine, tells of how one young man's triumph over aadversity has led to a promising career in dance.
'On the tic' - SEN Magazine, March 2013
TA Chief Executive, Suzanne Dobson, writes in SEN magazine about how TS affects pupils and what schools can do to help.
An insider's guide to Tourette's syndrome (October 2012)
Article from the Guardian online, Sunday 14 October 2012. "Jessica Thom squeaks, swears, beats her chest and laughs. Here she describes living with her complex and mystifying condition."
Belleville teacher battles Tourette Syndrome: I never knew the word 'can't'
An article and video about a teacher in the US with Tourette Syndrome.
Carlos Guevara's struggles with Tourette Syndrome won't hold him back - The X Factor USA 2013
Carlos Guevara has Tourette Syndrome and an amazing voice. Watch him as he auditions for the X Factor USA 2013.
Dateline: Twitch & Shout
Documentary from Australian tv, Dateline, about kids at the US Twitch & Shout camp.
Hollywood actor, Dash Mihok, talks about working with Tourette Syndrome
Watch a CNN interview with Dash Mihok, a Hollywood actor with Tourette's about his fight to put a stop to bullying.
Life less ordinary - Jess Thom, disability superhero
An interview with Jess Thom, Touretteshero, on the Fun London section of the Time Out website. Read the interview online.
Local newspaper "Echo" support for Liverpool Family
Local Liverpool newspaper "The Echo," talked to Lisa Rudge about the sudden onset of her son Josh's Tourette Syndrome.
New insights into genetics of OCD, Tourette Syndrome
An international research group has provided the first direct evidence that both obsessive-compulsive disorder (OCD) and Tourette syndrome (TS) are highly heritable.
About TS
New Scientist article: People with Tourette's may find it easier to pick up new skills
People with Tourette's syndrome seem to have enhanced memory that could make them better at learning tasks unconsciously, such as speaking a second language or driving a car.
Scientists find genetic architecture behind TS and OCD
OCD and Tourette Syndrome are highly heritable: Scientists find genetic architecture behind disorders
About TS
SEN magazine article April 2018
Don’t panic! Pupils with Tourette’s just need the right support, not fear and misunderstanding, writes Suzanne Dobson, Chief Executive of Tourettes Action.
Swearing disease no joke for Dylan
Swearing disease no joke for Dylan - article in the Nottingham Post about Dylan, 13, who has TS.
Teaching the world about TS
Interview with Jess Thom, Lucy Benyon, Daily Express, June 2013.
Tourette Syndrome, the 'extra' factor
Tourette Syndrome can often be misunderstood but people must think before they react, Claire Findlay tells health reporter Kate Liptrot.
Tourettes Action Passport
Funded by the Big Lottery, TA commissioned the University of Nottingham to undertake research on improving the Psychosocial Experiences of Adolescents with Tourette Syndrome.
Tourettes duo looking forward to embracing their syndrome
Two musicians with Tourette Syndrome have explained how performing keeps their tics in check.
TS magazine feature
Final year Journalism student, David Conway, from the University of Sheffield has created a magazine article focusing on the stories of three individuals with TS, including football's international goalkeeper Tim Howard, whilst also examining the facts behind the condition.
USA Goalkeeper Tim Howard On Playing With TS (May 2013)
USA and Everton goalkeeper, Tim Howard, talks about how he is able to play football whilst having TS. Article from Next Impulse Sports.
Spotlight on professions
Child and adolescent psychiatrist
As part of our 'Spotlight on Professions' series, we speak to Dr Osman Malik, Child and adolescent psychiatrist.
Clinical psychologist
As part of our 'Spotlight on Professions' series, we speak to Dr Alesia Moulton Perkins and Dr Tara Murphy, clinical psychologists.
Educational psychologist
As part of our 'Spotlight on Professions' series, we speak to Dr Olivia Kenneally, educational psychologist.
Neurologist
As part of our 'Spotlight on Professions' series, we speak to Dr Jeremy Stern, Consultant Neurologist.
Neuropsychiatrist
As part of our 'Spotlight on Professions' series, we speak to Professor Eileen Joyce, Professor of Neuropsychiatry at The Institute of Neurology, University College London.
Occupational Psychologist
As part of our 'Spotlight on Professions' series, we speak to Nancy Doyle, Occupational psychologist.
Occupational Therapist
As part of our 'Spotlight on Professions' series, we speak to Lucy Bates, Occupational Therapist.
Paediatrician
As part of our 'Spotlight on Professions' series, we speak to Dr Inyang Takon, Consultant Paediatrician.
Psychiatrist
As part of our 'Spotlight on Professions' series, we speak to Professor Chris Hollis, psychiatrist.
SENCo
As part of our 'Spotlight on Professions' series, we speak to Jill Aitken, Deputy Head (Students and Achievement).
Specialist nurse
As part of our 'Spotlight on Professions' series, we speak to Joe Kilgariff, Specialist nurse
Spotlight on professions
Speech and Language Therapist
As part of our 'Spotlight on Professions' series, we speak to Jenni Lindinger, Speech and Language Therapist
