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Support in school

School children with Tourette Syndrome (TS) have the same IQ range as the population at large, but difficulties associated with TS may present additional challenges at school. Depending on how your child's TS affects them a range of support can be implemented to ensure they get the help they need.

Steps to take following a diagnosis

Supporting your child through their education, needs to be approached as a working partnership between families and school. The following is a brief outline of the steps you should take when talking to the school following a diagnosis of TS:

  • Organise a meeting with the school to discuss how TS affects your child
  • Find out what the school's level of understanding is regarding TS - what experience do they have of supporting pupils with TS?
  • Provide Tourettes Action (TA) information and resources for teachers
  • Discuss the possibility of informing the rest of the class/school about TS to help reduce any misunderstanding, unwanted attention or bullying. 
  • Remember to discuss support needs around your child's TS and any related conditions, such as OCD, anxiety etc.
  • Share information about strategies you have found helpful at home
  • If your child is on medication, explain the possible side effects and inform the school of any changes to medication
  • Stay in communication with the school and meet with your child's class teacher and/or SENCO on a regular basis, keeping records of discussions about your child's progress.
  • Discuss ways for your child to manage their tics during the school day, what adjustments can the school make to support your child?  

Education and TS - advice for parents booklet

You will find more comprehensive information and advice for parents/carers in our booklet Education and TS - advice for parents that you can download. It contains information including:

  • Detailed Steps to take following a diagnosis
  • The different stages of support
  • Useful organisations and resources

Tourettes Action: support for TS in school

This simple yet effective exercise powerfully demonstrates how tics can impact on a child's concentraton and ability to complete a task under time constraints

Subscribe to our You Tube channel to receive current videos and resources relating to TS

TA has a range of resources for families and teachers with advice on supporting children with TS in school:

  • Key facts for teachers leaflet - an easy-to-read leaflet that outlines the main facts that all teachers need to know when supporting a child with TS (see right-hand side downloads)
  • Power point presentations that can be used in primary and secondary schools to provide greater understanding of TS
  • What Makes Us Tic leaflet – an introduction to TS. (see right-hand side downloads)
  • Tourette Syndrome Passport - developed as a result of the big lottery funded research at the University of Nottingham. Contact Pippa for your free passport.
  • We provide training opportunities for schools in house or via video conferencing - please contact our Education Manager Lucy for further information. 
  • Research article looking at environmental effects on TS - specifically tic suppression in the classroom
  • Recent media articles about education articles
  • Medical conditions at school offers guidance and tools to schools who are looking after children with health conditions. You can download a template medical conditions policy, a sample individual healthcare plan and advice on what it should contain, guidance on the legal situation across the UK and a process for making sure children who require education in different settings get the support they need too.

Support for young people with TS in Higher and Further Education

Read our factsheets with advice for young people with TS in higher and further education:

 
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