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  • Last edited: 22-02-2024

    Understanding the expression of everyday vocal and motor tics in adults A cross-disciplinary team from the University of Hertfordshire is looking for adult participants (aged 18 or over) who have a confirmed...

  • Our Trustees

    Last edited: 19-02-2024

    TA trustees Marc Lewis Chair of Trustees Marc became a trustee in 2020 and has been a supporter of the charity for a number of years. Marc has two daughters, who both have TS. Leading up to...

  • TS Advisory Panel

    Last edited: 19-02-2024

    Meet our Advisory Panel members!   Amanda Marples   Amanda Marples is a Social Worker and writer from Rotherham in South Yorkshire. She has many years experience in community mental...

  • What is Tourette Syndrome?

    Last edited: 14-02-2024

    Key features The key features are tics – involuntary sounds and movements, which must be present for at least 12 months to meet the diagnostic criteria. Up to 85% of people with TS will also experience...

  • Previous projects

    Last edited: 13-02-2024

    2023 Research Studies Parents of young people aged 10-17 years old who have developed sudden tics Amanda Ludlow, a researcher at the University of Hertfordshire conducted research into parents of young...

  • Our Corporate Partners

    Last edited: 12-02-2024

    Tourettes Action & Corporates - A Partnership With Impact   We believe there is a huge mutual benefit to these special corporate relationships: Our website receives an average of 9,305 new visitors...

  • Donate to Tourettes Action

    Last edited: 03-01-2024

    Without the support of people like you, it would not be possible for Tourettes Action (TA) to continue this work.We receive no government funding and rely entirely on voluntary contributions. How your...

  • TS Passport

    Last edited: 02-01-2024

    Professionals worked closely with young people with TS to explore their psychosocial and educational experiences and to examine what factors influence tics and social interactions. The young people were...

  • TS Champions - Class of 2023

    Last edited: 06-12-2023

    The Tourettes Action TS Champion programme brings together young people to advocate for and talk about TS and Tic Disorders in their local community and before their peers at school and clubs. Each...

  • Get involved

    Last edited: 26-11-2023

    Donate to Tourettes Action Our work is funded completely by voluntary donations so your donation, be it £10 or £1,000, is essential in enabling us to continue our work. Donate online now. Fundraise...

  • TA events calendar

    Last edited: 30-09-2023

  • Tourettes Action Helpdesk

    Last edited: 22-08-2023

    You can reach us in a number of different ways:   Live chat:  Instant support via our website available Monday to Friday 10am – 3pm Contact the Helpdesk: Send a contact form and we will get...

  • Tourettes Action Funded Research 2017-2019

    Last edited: 27-07-2023

    Why Tourettes Action funded this round of research TS is perhaps the most publicly misunderstood of all neurological conditions and has considerable stigma attached. People with TS experience personal...

  • Research

    Last edited: 27-07-2023

    Tourettes Action is the leading UK based charity working with families and individuals living with TS, and is therefore well placed to promote research. We are committed to ensuring that research can make...

  • Tourettes Action Funded Research 2018

    Last edited: 24-07-2023

    1. Tackle your Tics: Feasibility of a brief, intensive group-based exposure therapy programme for children with Tourette Syndrome Annet Heijerman, Dutch Knowledge Centre for Child and Adolescent Psychiatry,...

  • Tourettes Action Funded Research 2019

    Last edited: 24-07-2023

    Developing novel brain imaging approaches to investigate the neural basis of premonitory urges in Tourette Syndrome Prof Penny Gowland, Professor of Physics, University of Nottingham, UK Award: £16,500 Study...

  • Tourettes Action Funded Research 2017

    Last edited: 24-07-2023

    1. The impact of executive functioning and time processing abilities on adaptive functioning in children with Tourette Syndrome Dr Tara Murphy, Consultant Paediatric Neuropsychologist, Great Ormond Street...

  • #TourettesWeMatter

    Last edited: 03-05-2023

    What’s the issue? There are over 300,000 children and adults living with tic disorders in the UK. Tics are usually lifelong, meaning that we need services for children, adolescents and adults.   People...

  • Other approaches to help manage TS

    Last edited: 03-05-2023

    The benefits of a healthy lifestyle  Diet and exercise There are many different ways of generating health and well-being, the most obvious being a healthy, balanced diet and regular exercise. Although...

  • Medication for Tourette Syndrome

    Last edited: 03-05-2023

    Medication can reduce symptoms and improve quality of life of people with TS when needed. Unfortunately side effects of the treatments are not uncommon and their effectiveness varies from person to person,...

  • Behavioural therapy and Telemedicine

    Last edited: 03-05-2023

      Liz Murray*, Seonaid Anderson and Tara Murphy, Honorary Consultant Clinical Psychologist from Great Ormond Street Hospital NHS Trust (GOSH)  Behavioural therapy Behavioural therapy can be useful...

  • Behavioural Therapies and Tourette Syndrome

    Last edited: 03-05-2023

    Behavioural therapies and Tourette Syndrome Behavioural therapies can be useful for most people with tic disorders, although evidence suggests that it is effective for children as young as five years...

  • Managing Tourette Syndrome

    Last edited: 03-05-2023

    If you or a family member has Tourette Syndrome (TS), Tourettes Action is here for you. We consult with leading health experts and professionals in the education sector, and draw upon the latest research,...

  • Causes of Tourette Syndrome

    Last edited: 03-05-2023

    The brain Brain scanning in people with TS has shown that there are some parts of the brain that function differently or have a slightly different size e.g. some of the structures in the motor circuits...

  • Health Professionals

    Last edited: 02-05-2023

    Information for GPs What is TS and how is it treated? Tourette Syndrome is an inherited, neurological condition, the key features of which are tics, involuntary and uncontrollable sounds and movements....

  • About TA

    Last edited: 18-04-2023

    Find out more about Tourettes Action Watch our video to find hear about our work from the people we support. You can find out more about who we are and what we do: TA staff TA accounts Jobs at TA Contact...

  • Support with your research

    Last edited: 06-04-2023

      Recruiting participants We know that recruiting participants for research can sometimes be challenging. Tourettes Action can help your recruitment by sharing your research with our supporters. How...

  • Last edited: 06-04-2023

    Important aspects of research include increasing our understanding of the prevalence of TS, the quality of life among people affected by TS and risk and protective factors associated with the impact of...

  • Spotlight on researchers

    Last edited: 06-04-2023

      Danni Phoenix-Kane is a PhD student at the University of Hertfordshire. Danni's doctoral research is exploring the diagnostic journey, lived experience, support and outcomes for adults presenting...

  • Events

    Last edited: 05-04-2023

      TICfest events - our popular weekend family residential events run annualy throughout the late spring/summer in different locations across the UK. TEENfest events - these events are for unaccompanied...

  • Ask the experts

    Last edited: 05-04-2023

    Tourettes Action asked the TS community to tell us what questions they would ask health professionals and researchers working in the field of Tourette Syndrome. We then put your questions to leading professionals...

  • Research Archive

    Last edited: 03-04-2023

    Pre 2019 Research Studies European Tourette Syndrome Research Survey A short questionnaire for patients and families with Tourette Syndrome, to inform researchers about what you would like TS research...

  • About TS

    Last edited: 30-09-2022

    Find out more about TS In this section discover: What TS is The symptoms of TS What causes TS The steps to getting diagnosed with TS Different treatments for TS Answers to frequently asked questions...

  • Welcome to Tourettes Action

    Last edited: 09-12-2021

    Tourettes Action is a support and research charity working to improve the lives of people living with Tourette Syndrome. Our services include online live-chat and email support, a befriender network, information,...

  • Deep Brain Stimulation (DBS) in Tourette Syndrome

    Last edited: 15-02-2021

    DBS in Tourette Syndrome Among the neurosurgical techniques, deep brain stimulation (DBS) with implantation of electrodes at selected targets undoubtedly offers advantages over traditional surgery, which...

  • Tourettes Action online

    Last edited: 06-04-2020

    Sign up now to follow us at: Facebook Twitter Youtube Instagram If you want news direct to your inbox don’t forget to sign up to the TA newsletter as well.   Tourettes Action's social...

  • Latest news

    Last edited: 19-02-2020

  • Resource library

    Last edited: 12-12-2017

    Click on one of the coloured boxes below to see information relevant to you, including research, treatment and about children with TS. From there, you will be able to decide what kind of materials you...

  • Sign up to the Tourettes Action e-newsletter

    Last edited: 21-03-2017

    The monthly Tourettes Action newsletter is emailed directly to your inbox and is packed with information about events, research projects, fundraising and stories about TS from the last month. We also occasionally...

  • Search Tourettes Action

    Last edited: 30-07-2013

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News

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Events

  • Webinar - Update from the developers of the wearable wrist device

    Date: 12-04-2023

    Professors Stephen and Georgina Jackson deliver an update on the research and clinical trial investigating the effects of median nerve stimulation on TS. Neupulse have been researching the pathophysiology...

  • Webinar - Anger and TS

    Date: 09-03-2022

    We are thrilled to offer this webinar with TS specialist Dr Tara Murphy, Consultant Paediatric Neuropsychologist and Clinical Psychologist at Great Ormond Street hospital. Dr Murphy has also been involved...

  • Webinar - TS and sleep issues with The Sleep Charity

    Date: 14-07-2021

    Vicki Dawson is CEO and Founder of The Sleep Charity and mum to Danny, who has Tourette Syndrome. The Sleep Charity use behavioural sleep intervention that has an evidence-base, with a research study...

  • WEBINAR - Understanding and supporting research into tics and TS

    Date: 03-03-2021

    We all know how important research is to the advancement of understanding and treatments for tics, so we are delighted to bring you this bespoke session to talk about research into tics and TS. Hosted...

  • Tourettes Action Research Network (TARN) meeting 2019

    Date: 13-09-2019

    This event provides a vital link between the researchers, academics and clinicians who see and treat patients with tics and Tourette Syndrome across the UK and internationally.  

  • 12th European Conference on Tourette Syndrome and Tic Disorders

    Date: 15-05-2019

    Calling all clinicians, post-doctoral researchers, residents, fellows and other professionals working in all areas associated with Tourette Syndrome, tics and related disorders. The 12th European Conference...

  • TICS Connect - TS and Tic Disorder Information Event

    Date: 23-11-2018

    TICS Connect  Tourette Syndrome & Tic Disorders Information Event This event is free for everyone to attend and families are welcome This public engagement event is for patients with a tic...

  • Tourettes Action: Teacher Training Workshop

    Date: 31-03-2014

    Tourettes Action are pleased to announce a FREE one day workshop for teachers exploring Tourette Syndrome and best practice for supporting children with TS in the classroom. Guest speakers include,Chartered...

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Resources


 
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