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My Neuro Survey

Posted on 20 December 2021 by Pippa McClounan


Share your experiences and help improve neuro services

Tourettes Action is proud to be a member of The Neurological Alliance – a coalition of over 70 organisations campaigning together to improve treatment and care for people with neurological conditions.

The Neurological Alliance runs the National Neurological Patient Experience Survey (now called My Neuro Survey) every two years, with the 2019 survey receiving over 10,000 responses.

My Neuro Survey is the largest survey of people with neurological conditions in the UK

Getting the right care, treatment and support at the right time can make a lifechanging difference when you have a neurological condition, like Tourette Syndrome.

But there are huge variations across the UK – not everyone with a neurological condition in the UK has access to the same high quality, joined up care and support. More recently, the COVID-19 pandemic has placed additional strain on already overstretched services – it’s never been more important to make your voice heard.

This has to change now.

Please help improve services for everyone living with a neurological condition by filling out My Neuro Survey.

The survey asks questions about whether you are getting the treatment and support you need, including questions about:

  • Diagnosis
  • Treatment and therapy
  • Access to specialists
  • Social care
  • Employment and financial support
  • Support for mental wellbeing
  • The impacts of COVID-19 on treatment and care

There is a version for adults and a version for children and young people. If your child has a neurological condition, you can complete the survey with them or on their behalf.

Visit My Neuro Survey to take part

For support with completing the survey, call the survey partners, Quality Health on 0800 783 1775 (Freephone) to:

  • hear and complete the survey over the phone in any language
  • ask for a paper copy to be sent to your address
  • ask for a large print version
  • ask for an Easy Read version of the survey

Tell everyone you know about #MyNeuroSurvey

Share your experiences

By sharing your experiences, you’ll help to gather the evidence to make the case for change. My Neuro Survey is completely anonymous and secure.


Make a real difference

Data from previous surveys has been used to improve services in hospitals, develop new specialist centres, and spark debate in Parliament.

The survey takes around 20 minutes to complete. Please take part and make your voice heard.

The My Neuro Survey closes on Sunday 6 February 2022 – please complete the survey before then.

Complete My Neuro Survey now

Thank you

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