Down to content

"We had such an amazing time, relaxing as a family and enjoying the activities. The children loved it so much, being able to be themselves and spend time with other TS families. Thank you thank you thank you!"

Up to

TICfest Events

Our residential weekend events for families, teens and young adults aim to bring people in the TS community together for fun, rest and fellowship.

We ran our first TICfest events in 2017. Funded by BBC Children In Need, the intention was to bring families together in a safe, non-judgemental environment so that young people and their parents could enjoy socialising together, relaxing, taking a break from the daily routine, and get involved with the fun, organised activities.

The response from those first events was incredible, blowing everyone's expectations out of the water. The children had a fantastic time; making friends, playing freely and joining in with all the fun activities that were planned. The parents were able to relax, talk, laugh and share; whilst watching their children enjoy themselves and recognise that they aren't alone in their experiences.

The feedback was so positive that we knew we had to continue delivering these events.

In 2018, with further funding from BBC Children In Need, we ran three TICfest family weekend events, this time covering the West, as well as the South and North.  We also hosted the first ever Teenfest for 14-18 year olds.  All of the events were a huge success, once again bringing families together to forge new friendships and support networks, whilst allowing children to truly be themselves and enjoy doing what kids love most - having fun.

To ensure the running of these vital events, we applied for a long-term grant from BBC Children In Need to deliver TICfests family events for a further three years, and we are delighted to say that we were awarded the grant. 2019 will see four TICfests across the country!


2019 Dates

TICfest Norfolk at Thorpe Woodlands, Thetford, May 31st – June 2nd 

A beautiful location in the Thetford Forest just an hour from junction 10 of the M1. Close to the River Thet. Indoor accommodation plus fabulous family camping pods! Capacity 100.


TICfest Devon at the Beacon Centre, Lynton, July 12th – 14th

Fabulous coastal location with the beach 10 mins walk away. Indoor accommodation. Capacity 37.


TICfest Kent at Carroty Wood, Tonbridge, July 19th - 21st

Just outside Tonbridge set in 58 acres of mature woodland. Indoor accommodation in Chestnut Lodge with adjacent patrol tent campsite. Sports hall and indoor heated pool! Capacity 70.


TICfest Yorkshire at Peak Venture, Aug 30th - September 1st

30 minutes from Sheffield, easy access from M1. Set in 9 acres of parkland on the edge of the Peak District. Indoor accommodation. Capacity 100.



TICfest Wales at the Summit Centre just outside Merthyr Tydfil, Oct 4th - 6th

This event is only open to Welsh residents. Families will enjoy the lovely surroundings and superb en-suite accommodation. The Centre is famous for its indoor climbing facilities, caving and water sports.


What can I expect?

We understand that some children, and their care givers, may feel nervous about attending their first TICfest event; for many families it is the first time meeting other people with TS. Our supportive team are there to welcome you when you arrive, along with the 'tic mates' who are children and parents who have previously attended the events, to show you around, answer questions and help you feel at ease.

ticmates_132            emma_pip_karey_michele_132

Prior to arriving you will receive a welcome pack which will give you all the information you need about the venue and the activitites that your child will be participating in. Typically, families arrive Friday late afternoon and have time to get settled before joining together in the evening for dinner followed by a fun ice breaker session and (weather permitting) a campfire and marshmallow roast!!

Saturday is packed with a variety of activities and workshops such as coding, mountain biking, swimming, climbing, giant inflatables and much more! 

               inflatable1_132        pool1_132       9e1d42c4f0a0434db7532b851f5703e3_132_01.       ribbons1_132

The activities are primarily for the children although the adults have been known to get involved on occasion, and we welcome their participation too! With the children occupied, parents and caregivers can socialise or spend time alone to relax. For 2019 we are hoping to stage parent workshops at TICfest with specialist presentations, discussion forums and Q&A sessions.

On Saturday evening we provide entertainment. Past events have included live music, magician, photobooths, discos and karaoke.


             band_271  on_the_beach_271


Sunday morning is once again filled with fun activities for the kids to get involved with, and a final lunch before everyone heads home.

Breakfast, lunch, dinner and plenty of snacks are included over the weekend; we've never known anyone to go hungry!

Accommodation varies according to the venue, but all families have their own room, and some venues also offer camping options too.

Some people who have attended our TICfest events felt inspired to write a blog about their experience. Read here for further insight as to what can be gained from attending these events.

How do I apply?

Email to register your interest, you will then receive a proforma asking for details of your group.

In January you will receive a link to our booking page on Ticket Tailor.

If a particular venue is oversubscribed, applicants will be put into a ballot and those who are successful will be given the opportunity to book their place via Ticket Tailor.

As in previous years we will keep a waiting list as we do have cancellations.

Once you have booked and paid your deposit you will receive a registration form. This must be completed and returned promptly as the planning of the weekend depends on this information.

Six weeks prior to TICfest you will receive the balance request (if applicable).

Two weeks prior to TICfest you will receive your Information pack telling you everything you need to know about the event, the venue and what to expect.

All that’s left then is to get down to TICfest!


Terms and conditions

Families are limited to one TICfest as we want as many people as possible to enjoy a TICfest experience.

‘Family’ comprises of one or more parent/guardian and the siblings of the child/children with TS (all need to be 18 or under at the time of the event).

All children with TS must have a diagnosis; we cannot accept people onto the event who are waiting for a diagnosis.

Cost: TICfest is largely funded by BBC Children in Need, therefore the charge is just £30 per adult, the children (18 and under) go free! At the time of booking we ask for a deposit of £30 and the balance if applicable will be requested 6 weeks before the event. Payment will be made via Paypal.

All meals and activities are included in the cost.



We'd like to say a huge thank you to BBC Children In Need, and thank the Shanly Foundation who are supporting the TICfest events in 2019.















This website may use cookies to provide an improved experience. You can refuse these cookies by changing your browser settings.
To remove this message, click here to accept cookies.