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Previous projects

These studies are no longer recruiting, but you can read about the findings from the research.

  • A Research Study into Mothers' accounts of mealtime and feeding challenges for children with Tourette syndrome or persistent tic disorders: A lay summary of one of the research studies conducted by Sandra- Eve Bamigbade as part of her Doctorate in Psychology into the mealtime experiences of families with a child with a tic disorder, looking at mealtime challenges, their impact and how these challenges are navigated. Read the lay summary here.
  •  An Exploration of Support for Children and Young People with Tourette Syndrome in Schools: This is a lay summary of Thesis research conducted by Hannah Warnock as part of a Doctorate in Educational Psychology. The aims of this research were to explore the current practices in UK mainstream schools for supporting children with Tourette Syndrome (TS). Online questionnaires were completed by 25 school staff with experience of supporting children with TS and 74 parents of children with TS. Read the lay summary here.
  • ORBIT Trial (Online Remote Behavioural Intervention for Tics) Trial results published: This was a clinical trial to see whether an online platform with two different types of treatment could help children and young people with tics. The ORBIT treatment also involved help from an online therapist as well as support from a family member, usually a parent. Read the full report here.
  • Safety requirements of Neurodiverse fans at live sporting events: The research, carried out in partnership with Level Playing Field and conducted by the National Centre for Social Research (NatCen), aimed to better understand the experiences and safety requirements of neurodiverse fans when attending live sporting events. Developments to ticketing, staff training and matchday information will improve the experience of neurodiverse fans, according to new research commissioned by the Sports Grounds Safety Authority (SGSA). Read the full report here.
  • Driving with tic disorders: An international survey of lived experiences: Little is known about the lived experiences of individuals with tic disorders when driving vehicles or trying to obtain a driving license.Tourettes Action helped promote this research study to gather participants so we are pleased to share the findings of the final report of 228 adult drivers with TS or a chronic tic disorder. Read the report here.
  • Understanding what happens before movement using brain imaging: Researchers at the University of Nottingham asked participants with TS aged 16 - 35 years old to take part in a brain imaging study looking at what happens in the brain when movements are made. Recruitment closed August 2020.
  • Tapping in time and making movements: Researchers at the University of Nottingham recruited 8-35 year olds to take part in two short, computer based studies. The first of these studies investigated how well people of different ages with and without TS could tap along to a beat. The second study looked at how quickly people can make responses to visual cues. Both studies will help to understand how movement and timing developed in people with TS. Recruitment closed August 2020.
  • Understanding what happens before movement: Researchers at the University of Nottingham asked for participants with TS aged 14 - 35 years old to take part in a safe, non-invasive brain stimulation study looking at what happens in the brain just before a movement is made. In this study a technique called transcranial magnetic stimulation (TMS) was used during a simple computer based task. You can find out more about TMS here. Contact Katherine Dyke for more information. Recruitment closed August 2020.
  • Is skin sensitivity in Tourette syndrome just a feeling or reality?  University of Nottingham research study
  • European Tourette Syndrome Research Survey: A short questionnaire for patients and families with Tourette Syndrome, to inform researchers about what you would like TS research to focus on.  Survey is avaiable in 14 languages and closed in March 2018.  We will publish results as soon as they are ready.
  • Researchers at the University of Hertfordshire conducted a study exploring the eating and dietary behaviours in children with TS.  Read a summary of the results here.
  • 'Buzzbeats Drumkit Smartwatch' study - A Nottingham University research team is looking for volunteers to take part in a pilot study that aims to explore whether a smartwatch can help reduce tics.  Young people can take part if they are aged 10-17 and they have been diagnosed with Tourette Syndrome or a tic disorder.  Click here for more information.
  • University of Wolverhampton - recruited people between 11 - 13 to participate in research that will measure the effect of Mindfulness in reducing tics in young people.
  • Sleep study – Kings College London
    Researching sleep and learning in young people with Tourette Syndrome (TS) or Chronic Tic Disorders (CTD). 
  • Kings College London - research examining how anxiety and low mood affect children and young people with Tourette syndrome or Chronic Tic Disorders. Dr Victoria Pile or phone 0207 848 0389.  Click here for further information about the research.
  • The University of Nottingham - IT for living with Tourette Syndrome. Conducted research into the use of digital technology as a means of supporting young people with Tourette’s. 
    Email: Dr Caroline Falconer or telephone: 0115 823 1334 0115 823 1334
  • University of Sussex brain scanning studies - study involved adults with TS and without. Read the full report to find out how researchers at the University of Sussex used brain scanning to look at brain activity in people with tics.
  • What do electrical signals in the brain look like in adults with TS? – The project involved participants who had tics in the past (childhood) and became tic free in adulthood.
  • Nottingham University - research looking at the role mobile apps have in supporting the treatment of Tourette syndrome among young people.
  • European Multicentre Tics in Children Study - This study explored the onset and worsening of tics and obsessive-compulsive symptoms in children and adolescents. 
  • Psycho-educational Survey and focus groups– an online survey exploring the satisfaction and needs of parents and patients regarding education programmes on Tourette syndrome and tic disorders.  The final goal of the discussion and survey is to develop a new, educational programme informed by people with Tourette syndrome and tailored to their needs. Find out more about the research
  • TS research investigates links between stuttering and TS - Read about results here.
  • Research study exploring the experiences of raising a child with TS -The study hopes to expand the evidence base on the challenges a parent of a child with Tourettes syndrome may face.Waiting to hear about results.
  • Talking therapy for tics project - Waiting to hear about results.
  • Exploring diagnosis in Tourette Syndrome – Research exploring the experiences of being diagnosed with Tourette Syndrome and living with the condition after diagnosis. Read results here.
  • Parent/caregiver survey on parenting groups for tic disorders - Researchers at the University of Manchester are carrying out research on whether parents and care givers would attend parents groups. Waiting to hear about results.
  • Experiences of support in school: parent and pupil survey - Researcher Debbie Horton asked parents of children and young people aged 9-16 years old with TS about their experiences of support in school. Read about the results.
  • ImPAcT project: Improving the psychosocial experiences of adolescents with TS - The research explored the experiences of young people living with TS and ways to improve support, particularly in schools. Read more about the ImPAct research.
  • RESULTS NOW IN: Brain imaging study about TS - Research by Clare Eddy, University of Birmingham, showed that reasoning about people's thoughts and emotions could be important in TS and this study investigated this further using brain imaging. Read more about the brain imaging study. Read about teh results HERE
  • Deep Brain Stimulation in TS trial - This study looked scientifically to examine whether DBS is likely to be a useful and well-tolerated operation for people with severe TS. Read more about the DBS trial.
  • Sensory Processing - This study looked at whether there are big differences between the ways that people with TS receive and react to sensory information, compared with adults who have no diagnosis. Analysis is currently being undertaken, results are expected in June 2013. Find out more about the results.
  • Electrophysiology of learning and cognitive control in TS and ADHD – results now available.
  • The Beneficial Effects of Coloured Overlays in Children with TS - Researchers looked at the effects of using coloured overlays when reading to reduce the symptoms of 'visual stress'. Read the results of the survey into coloured overlays.The published paper is now available: Ludlow, A. K., & Wilkins, A. J. (2016). Atypical Sensory behaviours in children with Tourette’s Syndrome and in children with Autism Spectrum Disorders. Research in Developmental Disabilities, 56, 108-116.
  • Quest study into the experiences of young people with TS - The study is looking for people aged 11-17 to take part. Find out more about QuEST.
  • The University of Nottingham ran a research programme called CATS (Volitional Control of Action in Young People with Tourette syndrome). Find out more about this research.  Contact Katherine Dyke for more information.
  • Visual processing in neurodiverse children - King's College London recruited parents of children ages 4-15 to take part in a survey to explore visual processing and neurodiversity. Identifying differences in visual processing could increase understanding of the pathway from basic vision to behaviour, and aid in identification of difficulties or differences in sensory processing.
  • Eating behaviours in adults with TS (adults) - Researchers at the University of Hertfordshire asked adults with TS, (18+) to answer some questions about their eating behaviours, dietary intake and sensory sensitivity. 
  • The role of pet dogs in helping children and young people with Tics - Researchers at the University of Nottingham asked parents of children with tics, who have a pet dog, to complete an online survey. They were asked about their relationship with the dog, their child’s relationship with the dog and the impact this might have on their child’s tics.
  • Tic Suppression in the classroom - You can read a summary of this topic, written by Seonaid Anderson who examines thinking around environmental effects on TS, specifically the disparity that is often noticed between home and school. Read more here.