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Tourettes Action Helpdesk

The Tourettes Action Helpdesk provides confidential and impartial support to those living with Tourette Syndrome (TS), their friends and family plus anyone else needing information such as teachers and employers.

You can reach us in a number of different ways:


  • Live chat:  Instant support via our website available Monday to Thursday 10am – 3pm
  • Contact the Helpdesk: Send contact form and we will get back to you 
  • Helpline telephone 0300 777 8427: available every Monday 6pm - 8pm and Thursday 9am - 2pm and 6pm - 8pm
  • Request a callback: leave a message on 0300 777 8427 and we will get back to you

(We will endeavour to get back to you within 48 hours)


We welcome calls and emails from people with TS as well as their friends, family and any professionals who are seeking information and guidance. We deal with a wide range of subjects, including:

Please note that our Helpdesk does not give diagnoses or advice on medications; you should contact a medical professional to discuss such issues. 

For a list of consultants who specialise in diagnosing and treating TS, please click here.  

We also have a list of Behavioural Therapists who provide behavioural therapy for managing tics.



The Helpdesk is a confidential service. For our statistical purposes, and to inform you of local TA events, we add service users contact details and the reason for the call to our secure database. You can chose to be contacted about news, research,local events etc. We will not share the details of your call or email with any person outside of the organisation. However, in extreme circumstances, where there is a real and present risk of harm to a caller or another individual, we will break confidentiality.

Call charges

Calls to the Helpdesk are charged at local rate. If you have inclusive minutes with your mobile phone or landline contract, calls are included as part of your inclusive minutes. If you do not have inclusive minutes then calls will be charged at the cost of calling a local landline number.

RNID Typetalk

Deaf, hard of hearing, deaf-blind and speech impaired people can contact us by using RNID Typetalk and a textphone or computer. Simply dial 18001 0300 777 8427.

Calls are charged at standard telephone rates. To find out more about RNID Typetalk, visit


The Helpdesk relies heavily on volunteers and we are always looking to recruit and train more people to help us continue providing information and support by phone and email. If volunteering on the helpdesk interests you, please read more about what the role is, what it can do for you, and how you can get involved.

"I just wanted to say a massive thank you to everyone who is on the helpdesk you are always such a help. I have gone from worrying to feeling really positive again"



Wednesday 16 June 16:30

8-12 year old support group, Online via zoom

Teenage get together, Online via zoom

Thursday 17 June 10:00

Parents Coffee Morning, Online via zoom

Contact us

If you have any questions we would love to hear from you






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