Down to content

Up to
top

Our Trustees

Tourettes Actions' Trustees have responsibility for the governance of the charity, directing how it is managed and run; and ensuring that we meet our objectives. Our dynamic Trustee team comprises of people with TS and family members with TS, medical and education professionals, and individuals with backgrounds spanning across a wide range of industries.

TA trustees

marc_lewis_132_01

Marc Lewis

Chair of Trustees

Marc became a trustee in 2020 and has been a supporter of the charity for a number of years. Marc has two daughters, who both have TS. Leading up to the time of their formal diagnoses, their family received amazing support from TA, helping their daughters establish the right support at school. Professionally, Marc has worked in the Financial Services industry for over 20 years and enjoys cycling in his spare time. 

ian_ayres_132_01

Ian Ayres

Treasurer

Having worked in the finance sector for more than 40 years, mainly within the television production sector, and now retired, Ian is keen to use his financial experience to help benefit Tourettes Action, a charity he has recently become involved with.

Genna Barnett

Genna Barnett

Trustee

Genna joined the TA Board of Trustees in September 2019. Having been diagnosed with TS at the age of 7, she has first-hand experience of the challenges faced by those with TS. Genna works at Nesta in the research, analysis and policy division. With this experience, she is passionate about supporting Tourettes Action to measure the impact of their work.

anna_bhandari_132_02

Anna Bhandari

Trustee

Anna first became aware of Tourettes Action in 2006 when her daughter was diagnosed with Tourette Syndrome. Anna and her family were very grateful for the help and support offered by the many resources available from TA. She became a Tourettes Action trustee in 2015 and is also a valued member of the F&GP subcommittee.

Eileen Joyce

Professor Eileen Joyce

Trustee

Eileen Joyce is a Professor of Neuropsychiatry at The Institute of Neurology, University College London. Her current research focuses on interventions for neuropsychiatric disorders such as schizophrenia, OCD and TS and their mechanisms of action. Her clinic work includes the management of complex neuropsychiatric disorders such as conversion disorder, Parkinson’s disease and epilepsy. She runs the National Tourette Syndrome Service, and is Chairman of the Faculty of Neuropsychiatry, Royal College of Psychiatrists.

Edward Palmer

Dr Edward Palmer

Trustee

Dr Edward Palmer is a trainee Psychiatrist and researcher at the University of Birmingham. He has had symptoms of TS since early childhood, but was only diagnosed with the condition in his teens. It was at this point we came into contact with Tourettes Action and became aware of the amazing work they do and support they provide. 

Edward has been a member of the Board of Trustees since 2017 and has found it a privilege to contribute. 

amanda_132

Amanda Pape

Trustee

Amanda became a trustee after spending 3 years volunteering on the helpline, befriending and visiting schools.

She has 15 years' experience teaching A-level business, as well as teaching martial arts to ages 5 to 65. She is an advocate of exercise being essential for the well-being of children, and believes in teaching resilience in a changing world. She has an adult son with TS.

Sharon White

Trustee

Sharon joined the Trustee Board in December 2022 and has a daughter recently diagnosed with TS and was very grateful for the resources provided by TA. Sharon has had a long career in finance, both in the commercial and public sector. Her most recent role is her first move into the charitable sector as Finance Director for a Hospice.

Sonal Dhulashia

Trustee

Sonal joined the Trustee Board in December 2022. The resources on the TA website have been, and continue to be invaluable to Sonal and her family. Sonal has an established career as an HR professional having worked in a number of HR roles across both the professional services and retail sectors. Sonal is currently Head of Inclusion, Diversity and Wellbeing at a UK accountancy firm.

jeremy_stern_132

Dr Jeremy Stern

Honorary Medical Advisor

Dr Jeremy Stern is a Consultant Neurologist and former Chair and Trustee of Tourettes Action. He is currently Honorary Medical Advisor to the charity, and a member of the Scientific Advisory Board.

 Read about our staff members