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The Tourettes Action team

Tourettes Action is run by a small team of dedicated staff and an experienced board of trustees who have worked with Tourette Syndrome and disability organisations. The charity is based in our office in Farnborough, but many of the team work around the country supporting people with TS.

 Staff

Emma McNally 

 

 

CEO

Emma is both a successful business executive and an avid campaigner for the
needs of people with TS. She is passionate about the cause and has worked tirelessly on improving the access to diagnosis and treatment. Emma joined TA in January 2022 and has a son with TS.

 

Adam Janocka

 

Operations Manager

Adam has worked in operations for over ten years and holds a wealth of knowledge in delivering projects to young people and adults who experience barriers to achieving their potential. Having TS himself, Adam is driven to ensure those living with TS and their families are heard and importantly able to achieve their goals on a fair and even platform.

 

Pippa McClounan

 

Communications and Projects Manager

Pippa works 4 days a week from our office in Farnborough, Hampshire. Pippa manages TA’s internal and external communications whilst also playing a role in planning and managing strategic projects. Pippa joined TA in 2014 and has a son with TS.

Emma Myers

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Events Manager

Emma works part time, from home, and organises the TA events including TICfest, TEENfest and adult weekends as well as workshops and webinars. Emma joined TA in 2012 and has a daughter with TS.

Emma is also the TA Mental Health Safe Guarding Lead and Designated Safe Guarding Officer.

 

Alison Fazakerley

 

Accounts

Ali works four days a week in our office in Farnborough and has been with TA since 2011, making her the longest serving member of the team. She looks after the TA accounts and finances. 

Lucy Toghill

 

Education Manager

Lucy works part time and consults with schools and education professionals to optimise understanding of and support for pupils with TS. Lucy worked in mainstream schools as a primary school teacher for 15 years before joining Tourettes Action and she has a son with TS.

 

Venetia Masters

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Office Administrator

Venetia works part-time and is based at our Farnborough office. Venetia helps with all administration tasks including ensuring all online shop orders are processed, sending out information packs plus general office duties. Venetia joined TA in August 2019.

 

Ione Georgakis

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Therapies and Advocacy Manager

Ione is an Occupational Therapist who works part-time for Tourettes Action. Using her professional and lived experience, Ione develops and leads our evidence-based CPD-accredited, online and face to face training programmes and workshops. Ione provides advocacy and clinical consultations to healthcare professionals, employers, and individuals with TS.

 

Jenna Doran

 

Social Media Specialist

Jenna works 5 days a week both from home and from our office in Farnborough and manages all our social media platforms, as well as helping to grow and assist our online community. Jenna joined TA in June 2022 and has a son who manages tics and has sensory needs.

 

Suzanne Parsons

 

Support Services Manager

Suzanne is responsible for managing our support services including live chat, helpdesk, befriending, and volunteers. She has worked closely with TA since 2016 in the role of Kent support group co-ordinator. She joined the TA team in June 2022. She is passionate about promoting TS awareness and has a son and a daughter with TS.

 

Kelsie-Rose Edwards

 

Support Services Administrator

Kelsie joined TA in 2021 and works part-time to assist with admin duties to support the team. Kelsie also covers Live Chat and answers Helpdesk emails. Kelsie has Tourette Syndrome so is superbly placed to assist those who contact the TA Helpdesk for support.

Kat Congreve

 

Online Support Groups Leader

Kat works part time for TA running our online support groups. She is also a lecturer in psychological therapies and a counsellor for children and young people. Kat has Tourette's and is extremely passionate about early intervention and building awareness around TS. Kat also has three children, each with their own unique neurodiversity.

 

 

Laura Davidson

 

Support Groups Leader

Laura is our Support Groups Leader and works part time, primarily from home, but also visits our face-to-face support groups around the UK. She has a daughter and brother with Tourettes. Laura is passionate about supporting Tourettes Action and can often be found at events such as London Marathon to cheer on our fundraisers, as the charity has been a huge part of her life since she was a child. 

 

Anne-Marie Henry

 

Fundraising Assistant

In January, Anne-Marie becomes/became a part of Tourettes Action to support our fundraising initiatives. Possessing extensive expertise in both charity fundraising and marketing, she is enthusiastic about collaborating with our team to actively raise funds and realize our objectives. As a mother to four neurodiverse children, including a daughter with Tourette Syndrome (TS), Anne-Marie brings a strong personal connection to our mission.

Ros Taylor

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Trust Funding Consultant

Ros is responsible for applications that TA makes to funding bodies.

 

Read about our Board of Trustees 

TA Patrons

Daniel Katz MBE
Michael Nyman CBE
Prof. Mary M Robertson MD, DSc(med), FRCP, FRCPCH, FRCPsych

 

 

Contact us

If you have any questions we would love to hear from you

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