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What is Tourette Syndrome?

Tourette Syndrome (TS) is an inherited neurological condition. It affects one school child in every hundred and is more common amongst boys. Over 300,000 children and adults are living with TS in the UK.

Key features

The key features are tics – involuntary sounds and movements, which must be present for at least 12 months to meet the diagnostic criteria. Over 85% of people with TS will also experience co-occurring conditions and features which might include Attention Deficit Hyperactivity Disorder (ADHD), Obsessive Compulsive Disorder (OCD), and Anxiety.  Visit our Symptoms page for further information.

Destroying the myths about TS

TS is often misunderstood as a condition which makes people swear, or say socially inappropriate things. Although it is true that ‘coprolalia’ – the clinical term for involuntary swearing – is a symptom of TS, it only affects a minority of people. 90% of people with TS do not have coprolalia

Who has TS?

It is estimated that TS affects one school child in every hundred and more than 300,000 children and adults in the UK live with the condition.

As with other neurological conditions, TS is more prevelant in boys.

Currently there is no technology that can predict how TS might affect someone long-term. It is thought that approximately half of children with a TS diagnosis will see a significant reduction in their symptoms as they approach adulthood. For some people, living with TS will continue throughout their life, but symptoms are likely to wax and wane (a term often used to describe the coming and going of tics).

BMJ Learning podcast on Tourette Syndrome

Listen to a BMJ Learning podcast with TA Chief Executive, Suzanne Dobson, on the subject of Tourette Syndrome.

Other Tic disorders

Tourette Syndrome is on the spectrum of conditions known as Tic Disorders.  Other conditions on this spectrum include:

  • Transient tic disorder or provisional tic disorder –motor tics usually confined to the face and neck although other body parts may be affected; sometimes vocal tics are also present.  Tics only last a few weeks or months.
  • Chronic tic disorder – tics tend to persist rather than be transitory and can include blinking, sniffing or neck movements.  Tics occur for more than 1 year
  • Tourette Syndrome – multiple motor tics and one or more vocal tics present for at least 12 months although not always concurrently.
  • A tic disorder not specified - tics are present, but do not meet the criteria for any specific tic disorder

 

 

"People need to know that TS is involuntary. We don't need pity, but some will always need help, support and understanding"

 
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