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Below is a list of current research projects sponsored or supported by Tourettes Action which we welcome you to participate in.

Children: 8-16 years old

  • Stigma and TS
    A research team at the University of Kent is carrying out a new and exciting study about the stigma of TS funded by Tourettes Action. The study involves an online survey and the possibility of being invited for an interview by phone or Skype.  A £10 voucher will be given to everyone who takes part in an interview as a way of saying thank you.  You don’t need to have experienced stigma and bullying to take part! Watch participants from the study talk about the project and why you should get involved. Take part in the survey here.
    If you are a parent please do the following:
    1. Email Melina: M.A.Malli@kent.ac.uk
    2.She will send you an information sheet and consent form 
    3.If you decide to take part and return the consent form, Melina will send you a link to the online survey.
    For further information contact: T: Melina 01227 816590 E: M.A.Malli@kent.ac.uk
    Recruitment closes December 2019

Young people & adults 12-35 years old

  • Group Meeting at the University of Nottingham to discuss the development of an app for wellbeing 
    Researchers are holding a group meeting at the University of Nottingham on Sunday 17th November, 11am-1pm with young people aged 9-17 who have tics or Tourette Syndrome and their parents. They want to ask you your thoughts on the ideas they've had for the app so far. During this meeting there will also be an opportunity to meet other young people from the local area who have tics. A £10 voucher will be given to parents and young people who get involved. If you’re interested in coming along, please email Camilla.Babbage1@nottingham.ac.uk who can give you more information.
    You can watch a short animation to update you on the research project so far.
  • New study investigating the effects of a new type of treatment.  
    GREAT NEWS! THIS RESEARCH NOW ACCEPTS PEOPLE UP TO 60 YEARS OLD! Researchers at the University of Nottingham are examining the effects of a novel type of treatment based upon entirely safe non-invasive brain stimulation. Are you aged between 14-60 years old and show very frequent tics (as frequent as every minute of the day)? You will be paid an inconvenience allowance for your time and there is a travel budget to help with travel costs. Your participation and feedback regarding the effects of this could help researchers develop an effective and cheap treatment for tics. Please, contact Barbara Morera lpxbm1@nottingham.ac.uk if interested.
  • Exercise, tics and the brain
    Researchers at the University of Nottingham are looking for participants with TS who are aged 13 - 28 years old to take part in a study which investigates what happens in the brain after exercise and how this reduces tics. The study will involve a short, fun exercise session and some brain scanning. An inconvenience allowance will be provided. Please contact: Katherine.Dyke@nottingham.ac.uk for details. Recruitment closes December 2019.
  • Stigma and TS
    A research team at the University of Kent is carrying out a new and exciting study about the stigma of TS funded by Tourettes Action. The study involves an online survey and the possibility of being invited for an interview by phone or Skype.  A £10 voucher will be given to everyone who takes part in an interview as a way of saying thank you.  You don’t need to have experienced stigma and bullying to take part!
    Watch participants from the study
     talk about the project and why you should get involved. 
    Take part in the survey here.  Recruitment closes December 2019
  • Understanding what happens before movement using brain imaging
    Researchers at the University of Nottingham are looking for participants with TS who are aged 16 - 35 years old to take part in a brain imaging study looking at what happens in the brain when movements are made. In this study you would be asked to do a simple computer based task while in an MRI scanner. An inconvenience allowance and travel allowance are available. Participants will also receive a copy of their brain scan as a unique souvenir for taking part! Please contact Katherine.dyke@nottingham.ac.uk for more information.  Recruitment closes August 2020.
  • Tapping in time and making movements
    Researchers at the University of Nottingham are looking for participants with TS who are aged 8 - 35 years old to take part in two short, computer based studies. The first of these studies investigates how well people of different ages with and without TS can tap along to a beat. This is a quick and easy study lasting about 20 minutes in total. The second study looks at how quickly people can make responses to visual cues and lasts about 30 minutes. Both of these studies will help us to understand how movement and timing developed in people with TS. Participants will be paid for their time and a travel allowance to help with getting to Nottingham is also available. Please contact Katherine.dyke@nottingham.ac.uk for more information.  Recruitment closes August 2020.
  • Understanding what happens before movement
    Researchers at the University of Nottingham are looking for participants with TS who are aged 14 - 35 years old to take part in a safe, non-invasive brain stimulation study looking at what happens in the brain just before a movement is made. In this study a technique called transcranial magnetic stimulation (TMS) will be used during a simple computer based task. You can find out more about TMS here. Please contact Katherine.dyke@nottingham.ac.uk for more information.  Recruitment closes August 2020.

     

Adults 18 years and over

  • Investigating Motor and Cognitive Control in Developmental Motor Disorders.  The Motor Development and Impact Lab (MoDI Lab) at the University of Surrey would like to invite you to volunteer for a study investigating motor and cognitive processes. The study investigates the processes in the brain that facilitate the control of movement and performance on learning tasks. Please click here for further information about this study and how to get involved. Watch a short video about the research.  Recruitment closes Fenruary 2019  
  • Why Tourettes Matters?  
    Tourettes Action has created a survey about having Tourette Syndrome (TS) or a Tic Disorder.  This information will be very useful in raising awareness with the public, medical professionals, funders and policy makers.  Please allow 10-15 minutes to complete this survey.
  • Pain? 
    Complete a short survey by Tourettes Action about injuries, physical problems or pain due to tics.  Help us understand the issues facing people with TS.
  • Stigma and TS
    A research team at the University of Kent is carrying out a new and exciting study about the stigma of TS funded by Tourettes Action. The study involves an online survey and the possibility of being invited for an interview by phone or Skype.  A £10 voucher will be given to everyone who takes part in an interview as a way of saying thank you. Watch participants from the study talk about the project and why you should get involved. Take part in the survey here. You don’t need to have experienced stigma and bullying to take part! Recruitment closes December 2019
  • New study investigating the effects of a new type of treatment.  
    Researchers at the University of Nottingham are examining the effects of a novel type of treatment based upon entirely safe non-invasive brain stimulation. Are you aged between 14-60 years old and show very frequent tics (as frequent as every minute of the day)? You will be paid an inconvenience allowance for your time and there is a travel budget to help with travel costs. Your participation and feedback regarding the effects of this could help researchers develop an effective and cheap treatment for tics. Please, contact Barbara Morera lpxbm1@nottingham.ac.uk if interested.

Parents only

  • Why Tourettes Matters?  
    Tourettes Action has created a survey about having Tourette Syndrome (TS) or a Tic Disorder.  This information will be very useful in raising awareness with the public, medical professionals, funders and policy makers.  Please allow 10-15 minutes to complete this survey. 
  • Pain? 
    Complete a short survey by Tourettes Action about injuries, physical problems or pain due to tics.  Help us understand the issues facing people with TS

Professional clinicians

  • Are you a clinical professional working in the field of TS?
    Researchrs at Hertfordshire University would like to interview you about your clinical experience, focusing on the clinical presentation of TS and mealtimes/eating difficulties you have encountered.  Email s.bamigbade@herts.ac.uk for more information.

You can read about previous research projects in our Archive section

Want to know who's behind the research?  Read about our researchers and the studies they are pioneering here

Tourettes Action is a member of the  AMRC (Association of Medical Research Charities). AMRC membership is the hallmark of quality research funding. The AMRC is a network of over 130 medical and health research charities, supporting medical research in the UK.

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"“I feel absolutely honoured to have taken part with this much needed research. For once, I felt someone “understood”."

 

 

 

 

 

 

 

 

 

 

 


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