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Below is a list of current research projects supported by Tourettes Action which we welcome you to participate in.

Due to the coronavirus, UK universities are no longer able to conduct face to face research.  As a result, many of the current research projects are on hold; however we encourage you where possible to get involved with the online research studies which are still active.  These include:

 

Exploring the views of school staff and parents of children with TS with regards to the support schools provide

A research study from Hannah Warnock, a Trainee Educational Psychologist, at Cardiff University.

The purpose of this research is to explore the views of school staff and parents of children with TS with regards to the support schools provide to children with TS. The findings from these questionnaires will be considered alongside information gathered from staff working with young people with TS to better understand the support available in schools for children with TS and parents views of this support.

If you wish to take part in this study you will be asked to complete an online questionnaire which should take no longer than 15 minutes to complete.

If you have any questions or would like more information please contact Hannah Warnock at WarnockHC@cardiff.ac.uk

Click here to take the questionnaire for school staff

Click here to take the questionnaire for parents of children with TS

 

Pain & Tics

A research study from the University of Nottingham investigating experiences of pain and using pain management techniques in Tourette syndrome. 

Do you have tics – and have experienced pain arising from tics? Are you interested in taking part in study looking at experiences of pain and use of pain management in Tourette syndrome and tics?

Currently there is very little research and understanding into tic-related pain and how people manage and relieve the pain they experience from their tics. A researcher from the University of Nottingham (UK) is looking for people with tics to take part in an online survey. This will involve general questions about your tics, pain you have experienced arising from tics, and how you may manage the pain arising from tics. By investigating this, it can help to improve the understanding of healthcare professionals, and subsequently improve support for those affected.

Participants need to be aged 16+ and experience tics to take part - even if you don't have a diagnosis of Tourette syndrome or a tic disorder but suspect you might do, you can still take part in this study.

All information is kept confidential and anonymous, and you can withdraw from the survey at any time. The study has been approved by the University of Nottingham Ethics committee.

If you have any further questions about any of the above information or the research, please do not hesitate to contact Evangeline Taylor at msxet9@nottingham.ac.uk.

Click here to take part in the study.

 

The Voice - Mechanisms of Identity and Change

Research project from Newcastle University, in collaboration with University College London.

Take part in this study investigating how people talk in different environments and with different conversational partners, compared to when they talk alone. The research looks at the effect your voice has on everyday interactions with people who don’t have Tourettes or a stammer. This will help us understand the social impact of these conditions.

Recruiters are inviting:

• People with Tourette Syndrome

• People who stammer

• People with no history of speech and language difficulty

You will be asked to take part in two Zoom calls, scheduled at your convenience. In the first one you will read some passages aloud and answer some questions about your experience of your voice. This takes around 20 mins. In the second call you’ll be paired up with another participant and you’ll play three rounds of a spot-the-difference game together. This takes around 45 mins.

You need to be over 18, have normal hearing, and speak British English as your first language.

For more information contact Dr Sophie Meekings at sophie.meekings@ncl.ac.uk

Click here to find out more and register your interest.

 

Exciting opportunity to get involved with developing an app to support a wristwatch-like device

The team at the University of Nottingham who recently developed a potential treatment for Tourette syndrome (TS) using median nerve stimulation, are developing an app to monitor TS and associated symptoms.

The app has several aims, one of which is to provide you with the ability to accurately monitor and evaluate the progression of your clinical symptoms, including any changes in response to any treatment. Importantly, this app will work together with the wrist band later on.

You can join via a Zoom meeting to discuss what you consider to be the must-haves for this app. Meetings will have a maximum capacity of 10 people and may be done within different age groups. They will last about 1 hour and will be run by Prof. Georgina Jackson and a staff member from Tourettes Action. At the end of the zoom meeting, you will have the opportunity to ask us questions about the progress on the development of a device that delivers the treatment for TS using median nerve stimulation.

Please be aware that meetings will be recorded.

If you have tics or have a child with tics and would like to get involved, please get in touch with barbara.Morera@nottingham.ac.uk

 

Research projects involving computer based games

Researchers at the University of Nottingham are looking for people with tics and TS to help with their new online studies. These involve completing a questionnaire and playing computer based games. There are four different studies to try and each of them will enter you into a prize draw to win Amazon vouchers. To find out more information and take part please click here. You can also contact hannah.slack@nottingham.ac.uk for more details.

 

Dietary behaviours in adults with Tourette Syndrome

Researchers at the University of Hertfordshire are asking adults, aged 18 and over, with Tourette Syndrome to take part in their study exploring dietary behaviours in adults

Part 1 of the study is an online questionnaire, which takes approximately 15 minutes to complete. You will be asked if you have taken any nutritional supplements and/or special diets and your experience of using them. Upon completion, you will be invited to Part 2 where you will be asked to complete an online food diary listing everything you eat and drink over a four day period. Both parts of the study will be completely anonymous.

To find out more and to take part in the studay, please click on this link.

To find out more about the researcher, Bobbie Smith, please visit our 'Spotlight on Researchers' page. You can also reach her using the following Twitter Handle @Bobbie_22

      

You can read about previous research projects in our Archive section

Want to know who's behind the research?  Read about our researchers and the studies they are pioneering here

""Taking part in research was quite an interesting and even enjoyable experience""

 

 

 

 

 

 

 

 

 

 

 


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