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Below is a list of current research projects supported by Tourettes Action which we welcome you to participate in.

Due to the coronavirus, UK universities are no longer able to conduct face to face research.  As a result, many of the current research projects are on hold; however we encourage you where possible to get involved with the online research studies which are still active.  These include:

 

Exciting opportunity to get involved with developing an app to support a wristwatch-like device

The team at the University of Nottingham who recently developed a potential treatment for Tourette syndrome (TS) using median nerve stimulation, are developing an app to monitor TS and associated symptoms.

The app has several aims, one of which is to provide you with the ability to accurately monitor and evaluate the progression of your clinical symptoms, including any changes in response to any treatment. Importantly, this app will work together with the wrist band later on.

You can join via a Zoom meeting to discuss what you consider to be the must-haves for this app. Meetings will have a maximum capacity of 10 people and may be done within different age groups. They will last about 1 hour and will be run by Prof. Georgina Jackson and a staff member from Tourettes Action. At the end of the zoom meeting, you will have the opportunity to ask us questions about the progress on the development of a device that delivers the treatment for TS using median nerve stimulation.

Please be aware that meetings will be recorded.

If you have tics or have a child with tics and would like to get involved, please get in touch with barbara.Morera@nottingham.ac.uk

 

Understanding the needs and experiences of neurodiverse sports fans

As part of a project to re-write Accessibility Guidance for stadia and sports grounds, Level Playing Field and the Sports Grounds Safety Authority (SGSA) have commissioned NatCen Social Research to conduct this important piece of research to help make stadia or sports grounds more inclusive.

Taking part will involve participating in an online focus group in February 2021 using video calling software Microsoft Teams. The focus group will last approximately 90-minutes and be hosted by a NatCen researcher. During the discussion, you will take turns to speak about your experiences of attending different sports events.

Click here to find out more and contact the research team at NDfans@natcen.ac.uk to take part.

 

The TIC-ToCS Project: Tourettes, Cognition, and Sleep

Researchers in University College Dublin are inviting parents of children with Tourette Syndrome to complete an online survey about sleep, tics, and everyday behaviour.

The survey takes around 15 minutes to complete, with a series of short questions and some optional open-ended questions where parents can provide further insights into their child’s experience with sleep and tics. If your child wears a Fitbit, there is also an option to share some sleep data from the device.

The researchers will make family-friendly resources to share findings with the TS community. The study will increase understanding of how sleep is impacted in children with TS, with the aim of using this information to inform future supports and interventions for sleep. 

Click here to find out more and take the survey.

If you have any questions, please contact Lisa Keenan at lisa.keenan1@ucdconnect.ie

 

Research projects involving computer based games

Researchers at the University of Nottingham are looking for people with tics and TS to help with their new online studies. These involve completing a questionnaire and playing computer based games. There are four different studies to try and each of them will enter you into a prize draw to win Amazon vouchers. To find out more information and take part please click here. You can also contact hannah.slack@nottingham.ac.uk for more details.

 

Performance Control and Motor Functioning Study

The Movement Development and Impact lab at the University of Surrey would like to invite you to take part in a new online study!

The study focuses on how individuals with tics and Tourette Syndrome control their actions. This includes movements, learning and decision-making processes. The study comes in 3 parts, you can complete it from the comfort of your home and you will be reimbursed with a £10 Amazon voucher. You can participate if you have a diagnosis of a chronic tic disorder – chronic motor tics, chronic vocal tics or Tourette Syndrome.

You should be between the age of 18 and 65.

You can also participate with your child! If you have a child with a chronic tic disorder and they are between the age of 8 and 17 they can also take part!

To find out more and take part in the study, please click this link.

  

Factors affecting the transition from child to adult mental health services

This study from researchers at the University of Southampton explores experiences with young people’s mental health care and adult mental health care and the possible transition period between them. This study aims to further understand the factors that need to be taken into consideration in the future, to help create better conditions for individuals transitioning from child to adult services.

To find out more and take part in the online survey, please click this link.

 

Dietary behaviours in adults with Tourette Syndrome

Researchers at the University of Hertfordshire are asking adults, aged 18 and over, with Tourette Syndrome to take part in their study exploring dietary behaviours in adults

Part 1 of the study is an online questionnaire, which takes approximately 15 minutes to complete. You will be asked if you have taken any nutritional supplements and/or special diets and your experience of using them. Upon completion, you will be invited to Part 2 where you will be asked to complete an online food diary listing everything you eat and drink over a four day period. Both parts of the study will be completely anonymous.

To find out more and to take part in the studay, please click on this link.

To find out more about the researcher, Bobbie Smith, please visit our 'Spotlight on Researchers' page. You can also reach her using the following Twitter Handle @Bobbie_22

      

You can read about previous research projects in our Archive section

Want to know who's behind the research?  Read about our researchers and the studies they are pioneering here

""Taking part in research was quite an interesting and even enjoyable experience""

 

 

 

 

 

 

 

 

 

 

 


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