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Previous projects

These studies are no longer recruiting, but you can read about the findings from the research.

  • Is skin sensitivity in Tourette syndrome just a feeling or reality?  University of Nottingham research study
  • European Tourette Syndrome Research Survey: A short questionnaire for patients and families with Tourette Syndrome, to inform researchers about what you would like TS research to focus on.  Survey is avaiable in 14 languages and closed in March 2018.  We will publish results as soon as they are ready.
  • Researchers at the University of Hertfordshire conducted a study exploring the eating and dietary behaviours in children with TS.  Read a summary of the results here
  • 'Buzzbeats Drumkit Smartwatch' study - A Nottingham University research team is looking for volunteers to take part in a pilot study that aims to explore whether a smartwatch can help reduce tics.  Young people can take part if they are aged 10-17 and they have been diagnosed with Tourette Syndrome or a tic disorder.  Click here for more information
  • University of Wolverhampton - recruited people between 11 - 13 to participate in research that will measure the effect of Mindfulness in reducing tics in young people.
  • Sleep study – Kings College London
    Researching sleep and learning in young people with Tourette Syndrome (TS) or Chronic Tic Disorders (CTD). 
  • Kings College London - research examining how anxiety and low mood affect children and young people with Tourette syndrome or Chronic Tic Disorders. Dr Victoria Pile or phone 0207 848 0389.  Click here for further information about the research.
  • The University of Nottingham - IT for living with Tourette Syndrome. Conducted research into the use of digital technology as a means of supporting young people with Tourette’s. 
    Email: Dr Caroline Falconer or telephone: 0115 823 1334 0115 823 1334
  • University of Sussex brain scanning studies - study involved adults with TS and without.
  • What do electrical signals in the brain look like in adults with TS? – The project involved participants who had tics in the past (childhood) and became tic free in adulthood.
  • Nottingham University - research looking at the role mobile apps have in supporting the treatment of Tourette syndrome among young people.
  • European Multicentre Tics in Children Study - This study explored the onset and worsening of tics and obsessive-compulsive symptoms in children and adolescents. 
  • Psycho-educational Survey and focus groups– an online survey exploring the satisfaction and needs of parents and patients regarding education programmes on Tourette syndrome and tic disorders.  The final goal of the discussion and survey is to develop a new, educational programme informed by people with Tourette syndrome and tailored to their needs. Find out more about the research
  • TS research investigates links between stuttering and TS - Read about results here.
  • Research study exploring the experiences of raising a child with TS -The study hopes to expand the evidence base on the challenges a parent of a child with Tourettes syndrome may face.Waiting to hear about results.
  • Talking therapy for tics project - Waiting to hear about results.
  • Exploring diagnosis in Tourette Syndrome – Research exploring the experiences of being diagnosed with Tourette Syndrome and living with the condition after diagnosis. Read results here.
  • Parent/caregiver survey on parenting groups for tic disorders - Researchers at the University of Manchester are carrying out research on whether parents and care givers would attend parents groups. Waiting to hear about results.
  • Experiences of support in school: parent and pupil survey - Researcher Debbie Horton asked parents of children and young people aged 9-16 years old with TS about their experiences of support in school. Read about results.
  • ImPAcT project: Improving the psychosocial experiences of adolescents with TS - The research explored the experiences of young people living with TS and ways to improve support, particularly in schools. Read more about the ImPAct research.
  • RESULTS NOW IN: Brain imaging study about TS - Research by Clare Eddy, University of Birmingham, showed that reasoning about people's thoughts and emotions could be important in TS and this study investigated this further using brain imaging. Read more about the brain imaging study. Read about teh results HERE
  • Deep Brain Stimulation in TS trial - This study looked scientifically to examine whether DBS is likely to be a useful and well-tolerated operation for people with severe TS. Read more about the DBS trial.
  • Sensory Processing - This study looked at whether there are big differences between the ways that people with TS receive and react to sensory information, compared with adults who have no diagnosis. Analysis is currently being undertaken, results are expected in June 2013. Find out more about the results.
  • Electrophysiology of learning and cognitive control in TS and ADHD – results now available.
  • The Beneficial Effects of Coloured Overlays in Children with TS - Researchers looked at the effects of using coloured overlays when reading to reduce the symptoms of 'visual stress'. Read the results of the survey into coloured overlays.The published paper is now available: Ludlow, A. K., & Wilkins, A. J. (2016). Atypical Sensory behaviours in children with Tourette’s Syndrome and in children with Autism Spectrum Disorders. Research in Developmental Disabilities, 56, 108-116.
  • Quest study into the experiences of young people with TS - The study is looking for people aged 11-17 to take part. Find out more about QuEST.
  • The University of Nottingham ran a research programme called CATS (Volitional Control of Action in Young People with Tourette syndrome). Find out more about this research.  Contact Katherine Dyke for more information.











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