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Previous Research Projects

These studies are no longer recruiting, but you can read about the findings from the research.

  • Kings College London - research examining how anxiety and low mood affect children and young people with Tourette syndrome or Chronic Tic Disorders. Dr Victoria Pile or phone 0207 848 0389.  Click here for further information about the research.
  • The University of Nottingham - IT for living with Tourette Syndrome. Conducted research into the use of digital technology as a means of supporting young people with Tourette’s. 
    Email: Dr Caroline Falconer or telephone: 0115 823 1334 0115 823 1334
  • University of Sussex brain scanning studies - study involved adults with TS and without.
  • What do electrical signals in the brain look like in adults with TS? – The project involved participants who had tics in the past (childhood) and became tic free in adulthood.
  • Nottingham University - research looking at the role mobile apps have in supporting the treatment of Tourette syndrome among young people. Participants will receive a £10 high street voucher for taking part and should be between the ages of 10-17 years and have a diagnosis of Tourette syndrome. If you are interested in taking part in this study, please email the researcher.
  • European Multicentre Tics in Children Study - A new study is underway exploring the onset and worsening of tics and obsessive-compulsive symptoms in children and adolescents. The study, underway at TANDeM (Evelina Children’s Hospital), University College London Hospital & Great Ormond Street Hospital, will explore the onset and worsening of tics in children and adolescents (aged 3-16 years old). Find out more about the research.
  • Psycho-educational Survey and focus groups– an online survey exploring the satisfaction and needs of parents and patients regarding education programmes on Tourette syndrome and tic disorders.  The final goal of the discussion and survey is to develop a new, educational programme informed by people with Tourette syndrome and tailored to their needs. Find out more about the research
  • TS research investigates links between stuttering and TS - A student from the Master of Research in Speech Language and Cognition course at University College London is looking for participants who have Tourette Syndrome to be involved in her study. Read about results here.
  • Research study exploring the experiences of raising a child with TS - The aim of the study is to explore and listen to the views and experiences of parents. The study hopes to expand the evidence base on the challenges a parent of a child with Tourettes syndrome may face.Waiting to hear about results.
  • Talking therapy for tics project - Researcher Heather Smith is looking to recruit volunteers to participate in research exploring young people's experience of having had a successful talking therapy for tics. Waiting to hear about results.
  • Exploring diagnosis in Tourette Syndrome – a Neuropsychiatry student from the University of Birmingham is looking for volunteers over 16 years old with a diagnosis of Tourette Syndrome to take part in research exploring the experiences of being diagnosed with Tourette Syndrome and living with the condition after diagnosis. Read results here.
  • Parent/caregiver survey on parenting groups for tic disorders - Researchers at the University of Manchester are carrying out research on whether parents and care givers would attend parents groups. Waiting to hear about results.
  • Experiences of support in school: parent and pupil survey - Researcher Debbie Horton asked parents of children and young people aged 9-16 years old with TS about their experiences of support in school. Read about results.
  • ImPAcT project: Improving the psychosocial experiences of adolescents with TS - The research explored the experiences of young people living with TS and ways to improve support, particularly in schools. Read more about the ImPAct research.
  • RESULTS NOW IN: Brain imaging study about TS - Research by Clare Eddy, University of Birmingham, showed that reasoning about people's thoughts and emotions could be important in TS and this study investigated this further using brain imaging. Read more about the brain imaging study. Read about teh results HERE
  • Deep Brain Stimulation in TS trial - This study looked scientifically to examine whether DBS is likely to be a useful and well-tolerated operation for people with severe TS. Read more about the DBS trial.
  • Sensory Processing - This study looked at whether there are big differences between the ways that people with TS receive and react to sensory information, compared with adults who have no diagnosis. Analysis is currently being undertaken, results are expected in June 2013. Find out more about the results.
  • Electrophysiology of learning and cognitive control in TS and ADHD – results now available.
  • The Beneficial Effects of Coloured Overlays in Children with TS - Researchers looked at the effects of using coloured overlays when reading to reduce the symptoms of 'visual stress'. Read the results of the survey into coloured overlays.The published paper is now available: Ludlow, A. K., & Wilkins, A. J. (2016). Atypical Sensory behaviours in children with Tourette’s Syndrome and in children with Autism Spectrum Disorders. Research in Developmental Disabilities, 56, 108-116.
  • Quest study into the experiences of young people with TS - The study is looking for people aged 11-17 to take part. Find out more about QuEST.











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