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Terms and Conditions of Website Use and Privacy Policy

Welcome to the Tourettes Action website. If you continue to browse and use this website, you are agreeing to comply with and be bound by the Terms and Conditions of Website Use and Privacy Policy outlined below.

Last Updated: 22/07/2024

Tourettes Action and you

The term ‘Tourettes Action’ or ‘us’ or ‘we’ refers to the owner of this website, Tourette Syndrome (UK) Association, whose registered office is at The Meads Business Centre, 19 Kingsmead, Farnborough, Hampshire, GU14 7SR.

  • Tourettes Action is a trading name of the Tourette Syndrome (UK) Association. We are a company registered in England and Wales, under company registration number 2613993.
  • The term ‘you’ refers to the user or viewer of our website.

General terms and conditions

  • The content of this website is for your general information and use only. It is subject to change without notice.
  • We do not guarantee that our website, or any content on it, will always be available or be uninterrupted. We may suspend or withdraw or restrict the availability of all or any part of our website for business and operational reasons.
  • Neither we nor any third parties provide any representation, warranty or guarantee, whether express or implied, as to the accuracy, timeliness, performance, completeness or suitability of the information and materials found or offered on this website for any particular purpose.
  • You acknowledge that such information and materials may contain inaccuracies or errors and we expressly exclude liability for any such inaccuracies or errors to the fullest extent permitted by law.
  • Your use of any information or materials on this website is entirely at your own risk, for which we shall not be liable. It shall be your own responsibility to ensure that any products, services or information available through this website meet your specific requirements.
  • Reproduction is prohibited other than in accordance with the copyright notice, which forms part of these Terms and Conditions of Website Use.
  • Unauthorised use of this website may give rise to a claim for damages and/or be a criminal offence.
  • We do not guarantee that our website will be secure or free from bugs or viruses. You are responsible for configuring your information technology, computer programmes and platform to access our website. You should use your own virus protection software.
  • You must not misuse our website by knowingly introducing viruses, trojans, worms, logic bombs or other material that is malicious or technologically harmful. You must not attempt to gain unauthorised access to our website, the server on which our website is stored or any server, computer or database connected to our website.
  • In the event of a breach of the Terms and Conditions of Website Use and/or Privacy Policy, your right to use our website will cease immediately.
  • Tourettes Action may change these Terms and Conditions of Website Use and its Privacy Policy from time to time by updating this page. You should check this page from time to time to ensure that you are happy with any changes. This policy is effective from March 2018 and was last reviewed on 20 May 2024.
  • These Terms and Conditions of Website Use, Privacy Policy and your use of this website and any dispute arising out of such use of this website is governed by English law and subject to the exclusive jurisdiction of the courts of England and Wales.

Copyright notice

  • This website contains material which is owned by or licensed to us. This material includes, but is not limited to, the content, design, layout, look, appearance and graphics.
  • This website and its content are the copyright of Tourette Syndrome (UK) Association, trading as Tourettes Action - © Tourettes Action 2022. All rights reserved.
  • Any redistribution or reproduction of part or all of the contents in any form is prohibited other than the following:
    • you may print or download to a local hard disk extracts for your personal and non-commercial use only; and
    • you may copy the content to individual third parties for their personal use, but only if you acknowledge the website as the source of the material.
  • You may not modify any materials you have printed off or downloaded in any way.
  • You may not, except with our express written permission, distribute or commercially exploit the content. Nor may you transmit it or store it in any other website or other form of electronic retrieval system.
  • You may not create a link to this website from another website or document without Tourettes Action’s prior written consent.
  • All trademarks reproduced in this website, which are not the property of, or licensed to the Tourettes Action, are acknowledged on the website.


  • The information contained in this website is for general information purposes only.
  • The information contained in this website is provided by Tourettes Action and while we endeavour to keep the information up to date and correct, we make no representations, warranties or guarantees of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the website or the information, products, services, or related graphics contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk. Tourettes Action exclude all implied conditions, warranties, representations or other terms that may apply to our website or any content on it.
  • Tourettes Action will not be liable to you for any loss or damage, whether in contract, tort (including negligence), breach of statutory duty, or otherwise, even if foreseeable, arising under or in connection with: (i) use of, or inability to use, our website; or (ii) use of or reliance on any content displayed on our website. In particular, we will not be liable for loss of profits, sales, business, or revenue; business interruption; loss of business opportunity, goodwill or reputation; or any indirect or consequential loss or damage.
  • Every effort is made to keep the website up and running smoothly. However, Tourettes Action takes no responsibility for, and will not be liable for, the website being temporarily unavailable due to technical and other issues beyond our control.

Links to other websites

  • Our website may contain links to other websites of interest. We have no control over the nature, content and availability of those websites.
  • We cannot therefore be responsible for the protection and privacy of any information which you provide whilst visiting such websites and such websites are not governed by this Privacy Policy. You should exercise caution and look at the privacy policies applicable to the website in question.
  • Please note that the inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them.

Downloading Tourettes Action resources

  • To access certain Tourettes Action resources, registration of your details is necessary. This enables us to gather data for analysis and to provide you with pertinent updates.
  • By downloading resources from this website, you consent to the storage of your details in our secure database. Our handling of this information aligns with the specifications outlined in our Privacy Policy (reference below).
  • If at any point you wish to be removed from our mailing list, please contact us at

Privacy Policy

  • This Privacy Policy gives you information about how Tourettes Action collects and uses your personal data through your use of this website, including any data you may provide when you e.g. register with us, sign up to our newsletter or purchase a product.
  • Tourettes Action is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified when using this website, then you can be assured that it will only be used in accordance with this Privacy Policy.
  • This website may include links to third-party websites, plug-ins and applications. Clicking on those links or enabling those connections may allow third parties to collect or share data about you. We do not control these third-party websites and are not responsible for their privacy policies. When you leave our website, we encourage you to read the privacy policy of every website you visit.
  • This Privacy Policy should be read alongside the Tourettes Action Data Protection Policy.

What information we collect

  • Personal data means any information about an individual from which that person can be identified.
  • We may collect, use, store and transfer different kinds of personal data about you. These include:
    • name, age, date of birth, gender, ethnicity and job title;
    • contact information including email address, telephone number and billing and postal addresses;
    • demographic information such as postcode, preferences and interests
    • medical information but limited to information about diagnosis related to Tourette Syndrome;
    • your username and password for registration on our website;
    • information relating to purchases or orders made by you; and
    • your preferences in receiving marketing from us and our third parties and your communication preferences.
  • Tourettes Action wants to understand the demographic makeup of the Tourrettes Syndrome community who engage with us, allowing us to utilise this insight to develop our services accordingly. This includes not discriminating under the Equality Act 2010 and aims to build an accurate picture in encouraging equality and diversity throughout our organisation.
  • We do not store credit card details, nor do we share customer details with any third parties.

How we gather Information

  • If you are a service user, the information you share is stored and used to provide you with the correct level of service.
  • If you request to participate in any of our training sessions or national events the information you share is used facilitate attendance and, inform you of future events.
  • If you make a donation via our website your information will be used to process and administer your donation.
  • If you apply for an advertised vacancy, we will process the personal information you provide to us as part of your application and any interview selection process.
  • If you offer to volunteer, we will process the information captured in the Volunteer Application to determine which area of our service your skills will be most suited.
  • If you register for an account on our website or subscribe to our newsletter or marketing communications, we will process your personal information to provide you with these services.
  • If you contact us, we will use your personal information to respond to your query and/or comments.

Controlling your personal information

  • You may choose to restrict the collection or use of your personal information in the following ways:
  • whenever you are asked to fill in a form on the website, look for the box that you can click to opt in to receive information from Tourettes Action by email, sms, post etc.
  • if you have previously agreed to us using your personal information for direct marketing purposes, you may change your mind at any time by writing to or emailing us at
  • We will not share, sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so.
  • We may use your personal information to send you promotional information about third parties which we think you may find interesting if you tell us that you wish this to happen. However, you can opt out of receiving this information using the online sign-up forms.
  • You may request details of personal information which we hold about you under the Data Protection Act 1998. A small fee may be payable. If you would like a copy of the information held on you, please write to Emma McNally, Data Protection Officer at Tourettes Action, The Meads Business Centre, 19 Kingsmead, Farnborough, Hampshire, GU14 7SR.
  • If you believe that any information we are holding on you is incorrect or incomplete, please write to or email us as soon as possible, at the above address. We will promptly correct any information found to be incorrect.

Retaining and deleting personal data

  • This section sets out our data retention policies and procedure, which are designed to help ensure that we comply with our legal obligations in relation to the retention and deletion of personal data.
  • Personal data that we process for any purpose shall not be kept for longer than is necessary for that purpose, including for the purposes of satisfying any legal, regulatory, tax, accounting or reporting requirements.
  • We will retain your personal data as follows:
  • Personal data will be retained for a minimum period of 5 years following 01.01.2018, and for a maximum period of 25 years following 01.01.2018.
  • Notwithstanding the other provisions of this section, we may retain your personal data where such retention is necessary for compliance with a legal obligation to which we are subject, or in order to protect your vital interests or the vital interests of another natural person.


  • We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online.

How we use cookies

  • A cookie is a small file which asks permission to be placed on your computer's hard drive. Once you agree, the file is added, and the cookie helps analyse web traffic or lets you know when you visit a particular website.
  • Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences.
  • We use traffic log cookies to identify which pages are being used. This helps us analyse data about web page traffic and improve our website in order to tailor it to customer needs. We only use this information for statistical analysis purposes and then the data is removed from the system.
  • Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.
  • We also use cookies to remember the pages that you like to see on the website. This happens if you select to view information for a specific user group, the option to do so appears at the top of the website and is available for adults, young people, parents, doctors and teachers. We use a cookie to remember your selection so that the next time you visit the website you see all the information you want to.
  • To change your cookie preferences for this website, please click here.

Cookies used by our service providers

  • Our service providers use cookies and those cookies may be stored on your computer when you visit our website.
  • We use Google Analytics to analyse the use of our website. Google Analytics gathers information about website use by means of cookies. The information gathered relating to our website is used to create reports about the use of our website. Google's privacy policy is available at:
  • You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. Please note that this may prevent you from taking full advantage of the website.


  • All contact with the Tourettes Action Helpdesk is treated as confidential, unless we feel that there is a risk to the caller or another individual, when we may break confidentiality.
  • Emails and Live Chats to the Helpdesk are logged for reporting purposes which help us provide a better service. By providing us with your contact details you consent that we can store them on our secure database. The storage of this data conforms with the details in our Privacy Policy (above).
  • We use Live Chat softwareon our website (a messaging platform that enable live communication), this is provided by Click4Assistance, a third party UK based Software Company. Information regarding how the data is processed and stored can be viewed here
  • If you do not wish for us to store your data you can contact us at any point. Please refer to the section above entitled ‘controlling your personal information’.


  • By signing up to the Tourettes Action newsletter you give us permission to email you with information and news relevant to Tourettes Action and Tourettes Syndrome.
  • We will store your data securely within a third party system ( and neither us or they will share it with any other parties without your permission.
  • If at any point you wish to be removed from our newsletter mailing list please contact us at or click ‘unsubscribe’ on the bottom of the newsletter.

Social media

  • The Tourettes Action website contains links to pages maintained by us on third party social media websites.
  • The terms specified on those websites will apply to your use of those websites in addition to these Terms and Conditions of Website Use.

Online shop

  • Purchases from our online shop are logged on our secure database. We store your contact details and information about your purchase for our financial records. We do not store credit card details nor do we share customer details with any third parties.
  • We aim to dispatch all orders from our shop within 7 working days of receiving your order. Orders are sent by Royal Mail, second class post, unless otherwise indicated.
  • Postage includes delivery in the UK. If you are outside the UK please contact usto discuss additional postage fees that may be applicable.
  • To request a refund or cancel an order, please email We aim to respond and action all such calls and emails within 7 working days.

You can contact us:

Data protection officer

  • Our data protection officer's contact details are: Emma McNally, The Meads Business Centre, 19 Kingsmead, Farnborough, Hants, GU14 7SR.

Contact us

If you have any questions we would love to hear from you