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Find your way around the Tourette Action website.
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- Home
Tourettes Action is a support and research charity working to improve the lives of people living with Tourette syndrome. Our services include online l... - About TS
Find out more about TS In this section discover: What TS is The symptoms of TS What causes TS The steps to getting diagnosed with TS Different... - What is TS?
Key features The key features are tics – involuntary sounds and movements, which must be present for at least 12 months to meet the diagnostic crit... - Symptoms
Tics Tics usually start in childhood around the age of six to seven years and tic symptoms often fluctuate in severity and frequency. Although the ... - Co-occurring symptoms
In order to understand and best support people living with TS it is vital to acknowledge - aside from tics - other associated features and condition... - Causes
The brain Brain scanning in people with TS has shown that there are some parts of the brain that function differently or have a slightly different si... - Getting diagnosed
For TS to be diagnosed, multiple motor tics and at least one vocal tic must be present for at least 12 months. TS can only be diagnosed by observing ... - Managing TS
If you or a family member has Tourette Syndrome (TS), Tourettes Action is here for you. We consult with leading health experts and professionals in th... - Behavioural Therapies
Behavioural therapies and Tourette syndrome Behavioural therapies can be useful for most people with tic disorders, although evidence suggests that i... - Telemedicine
 Liz Murray*, Seonaid Anderson and Tara Murphy, Honorary Consultant Clinical Psychologist from Great Ormond Street Hospital NHS Trust (GOSH) Be... - Medication
Medication can reduce symptoms and improve quality of life of people with TS when needed. Unfortunately side effects of the treatments are not uncommo... - Other approaches
The benefits of a healthy lifestyle Diet and exercise There are many different ways of generating health and well-being, the most obvious being a ... - Neurosurgery
DBS in Tourette Syndrome Among the neurosurgical techniques, deep brain stimulation (DBS) with implantation of electrodes at selected targets undoubt... - Resources
Click on one of the coloured boxes below to see information relevant to you, including research, treatment and about children with TS. From there, you... - FAQs
If you have any other questions about TS please contact our Helpdesk.... - eLearning
We currently offer two eLearning courses: A general module for all - Understanding Tourette syndrome this course is for anyone wanting to learn mo... - Find support
Support based information and services for people with TS and their families Education Employment Benefits Information for Adults with TS Young... - Helpdesk
You can reach us in a number of different ways:  Live chat:  Instant support via our website available Monday to Friday 10am – 3pm Contact... - Online Support Groups
Our online support groups are a great opportunity for the TS community to connect with each other. Hosted on video platform Zoom, our Online Support ... - In Person Support Groups
Our growing national network of face-to-face support groups facilitated by dedicated volunteers make a significant positive impact on the Tourette syn... - New Groups
Face to face support groups need to be run by a minimum of two people, a support group leader and a support group deputy. Both group leaders play a pi... - Education
 If your child has been recently diagnosed we suggest taking the following steps: Supporting your child through their education, needs to be approa... - Employment
However, for some people with TS, their symptoms can make it difficult to work regular hours or in their preferred field. Sometimes it is necessary fo... - Benefits
The nature of TS can mean that sometimes it is difficult to work regular hours. Whether or not you consider your TS to be a disability, there are bene... - Adults with TS
This section looks at how TS is recognised under Disability Law in the UK, what state benefits may be available to people with TS, the responsibility ... - Young people
There is a lot of information about TS available, but Tourettes Action knows that because it is a complicated condition a lot of the material can be q... - TS Passport
Professionals worked closely with young people with TS to explore their psychosocial and educational experiences and to examine what factors influence... - TA ID cards
Sometimes the symptoms of TS can be difficult to explain, and in situations like busy pubs, restaurants or on public transport, you may not want to ge... - TA Grants
We award grants of up to £500 for equipment that supports people with TS in their day-to-day life. Some examples of what we have funded in the past i... - TS around the world
If you belong to a group or know of another organisation not on this list please contact TA and we will be happy to add them. Argentina - Tourette ... - Community
Events Find out about local and national events run by Tourettes Action and volunteers in the TS community. TS Champions The TS Champion programmeÂ... - Events
 TICfest events - our popular weekend family residential events run annualy throughout the late spring/summer in different locations across the UK.... - Events Calendar
- Events by Region
- TICfest
What is TICfest? TICfest provides a safe, non-judgemental environment where parents and children can relax, have fun and make friends. We keep the ch... - TEENfest
What is TEENfest? TEENfest offers the chance for teens with TS to meet other teens for a weekend of making friends, mutual support and fun. Many youn... - Weekend for adults with TS
What is the Adult Weekend? Our adult weekend is an opportunity for individuals over the age of 18 with a diagnosis of TS (plus one guest), to get awa... - TA Blog
If you would like to write about your experiences of TS, we would love to hear from you. Please email us to find out more and discuss what you might l... - TS Champions Programme
Spread Tolerance of TS The aim is to educate young people to spread tolerance of and understanding about TS, while displacing the myths and stereotyp... - TS Champions - Class of 2024
The Tourettes Action TS Champion programme brings together young people to advocate for and talk about TS and Tic Disorders in their local community... - TS Champions - Class of 2023
The Tourettes Action TS Champion programme brings together young people to advocate for and talk about TS and Tic Disorders in their local community... - TS Advisory Panel
Meet our Advisory Panel members!  Amanda Marples  Amanda Marples is a Social Worker and writer from Rotherham in South Yorkshire... - TS Friendly Scheme
The TS Friendly Scheme is a way for organisations to confirm their commitment to developing an environment and culture that enables people of all ages... - Our TS Friendly Organisations
All recognised organisations have completed a bespoke TA training session and have shown a commitment to supporting and understanding the needs of peo... - Corporate Partners
We believe there is a huge mutual benefit to these special corporate relationships: Our website receives an average of 9,305 new visitors every mon... - Your TS videos
Why not make your own video? If you have something you want to say about your TS that contributes to helping, supporting, reassuring and informing th... - TA online
Sign up now to follow us at: Facebook Twitter Youtube Instagram If you want news direct to your inbox don’t forget to sign up to the TA... - TA Newsletter
The monthly Tourettes Action newsletter is emailed directly to your inbox and is packed with information about events, research projects, fundraising ... - TACA - Creativity Awards Exhibition
The awards gives people with TS a chance to showcase their artistic talents. We invite artists, animators, stand-up comedians, musicians, short filmma... - Get involved
Donate to Tourettes Action Our work is funded completely by voluntary donations so your donation, be it £10 or £1,000, is essential in enabling us ... - Make a donation
Without the support of people like you, it would not be possible for Tourettes Action (TA) to continue this work.We receive no government funding and ... - Other ways to donate
Donate in celebration Is it your birthday soon or are you getting married? If so why not ask for donations to Tourettes Action instead of presents? I... - Leave a legacy to Tourettes Action
By making a Will you can ensure that your wishes, and the people and causes you care about, are provided for. After providing for your family and fri... - Gift Aid your donation
  It won’t cost you anything more, but it makes a big difference to us and the people we support.  To be eligible, you must pay enough ... - Fundraise for TA
There are lots of ways to get involved with fundraising for TA. Many of our supporters collect sponsorship for taking part in an organised challenge, ... - Sponsored Challenges
We are thrilled to partner up with Run 4 Charity, Ultra Challenges and Endure24 to offer you, our wonderful supporters, a whole plethora of events. Wh... - Move for Tourette's
What's the challenge? Ready to take on a challenge your way? You get to pick the goal, the time, the place—everything! Just make it happen sometime... - Tea for Tourette's
What is it? Coffee mornings and tea parties are the bread and butter of fundraising for charities. They provide a great opportunity to get your frien... - London Marathon and Landmarks Half Marathon
Run the London Marathon for TA The London Marathon is the biggest charity event in the world. TA is lucky to have one Golden Bond for the London Ma... - Fundraise your way
Your options for events to organise are limited only by your imagination. Here are some ideas: Ask your school to organise a non-uniform day in aid... - January Challenge
Studies show that doing something good for yourself and others can have a powerful, positive effect on the immune system, improve self-worth and self-... - Campaigns
As a charity, Tourettes Action want people with TS to receive the practical support and social acceptance they need to help them live their lives to t... - Tourette's Awareness Month 2025
For this years campaign #Misunderstood, we give viewers a window into the real, everyday challenges faced by those with TS - from having to constantly... - Tourette's Awareness Month 2024
It's not about raising awareness of Tourette’s It's about challenging misconceptions  The stereotypes of Tourette’s have led to prejudice, s... - Tourette's Awareness Month 2024 - Social Media Pack
Download our Tourettes Awareness Month Social Media Pack Tourettes Awareness Month 15 May - 15 June 2024 For this years campaign, #TourettesHurts, ... - Download our 2024 Tourette's Awareness Month Posters
Tourette's Awareness Month 15 May - 15 June 2024 For this years campaign, #TourettesHurts we will highlight the impact Tourette’s can have on thos... - Tourette's Awareness Month 2023
For this years campaign, #ItsWhatMakesMeTic, we will be sharing real life content as it happens. The content will be told by our 5 ambassadors in r... - Tourette's Awareness Month 2022
What is the issue? Whilst the majority of people have heard of Tourette Syndrome, many do not really understand what it entails, most thinking that s... - #TourettesWeMatter
What’s the issue? There are over 300,000 children and adults living with tic disorders in the UK. Tics are usually lifelong, meaning that we need s... - Shop
Order your goodies now TA merchandise makes great gifts or order for yourself to show your support. Add items to your shopping basket and then follow... - Volunteer for TA
Volunteering Opportunities Occasionally, we ask for volunteers to help at TA events. For any questions about volunteering for TA, Please email our ... - Professionals
Employers Employers have specific responsibilities when supporting people with TS. We can offer training, resources, tips on interviewing those with ... - Employers
Many people with TS have amazing streaks of creativity. There are no jobs closed to people with TS. People with the condition work as chefs, bricklaye... - Health Professionals
Information for GPs What is TS and how is it treated? Tourette syndrome is a genetically determined neurological condition, the key features of whic... - Education Professionals
How can TS affect learning? Approximately 1% of school children have TS (the same prevelance as Autism). Many of those children will try to suppr... - Our Training Offer
Employers, health professionals, education professionals, and individuals with Tourette syndrome or their families can contact us by email at help@tou... - Workplace Training: Supporting Neurodiversity
Length: 1.5 - 2 hoursFormat: Virtual Training Session Price: £200 per session  What the Virtual Training Session covers: What is Tourette syn... - Business Awareness Session: Understanding TS
Length: 1.5 - 2hoursFormat: Virtual Training Session Price: £200  What the Virtual Training Session covers: What is Tourette syndrome? A c... - Lunch and Learn Session: Understanding TS
Length: 45 minutes to 1 hourFormat: Virtual Training Session Price: £150  What the Virtual Training Session covers: What is Tourette syndrome... - Health and Social Care Training
We currently offer two specialised virtual training sessions for Health and Social Care Professionals  Option 1: Introduction to Tics and Tourett... - Teaching and support staff: Training for those in education provisions
Length: 1 - 1.5 hoursFormat: Virtual Training Session Price: £250 per session  What the Virtual Training Session covers: Gain a good underst... - Parent/Carer Webinar: Supporting Young People with Tics and TS
Length: 1 hourFormat: Interactive Webinar Price: £200 We currently offer two specialised webinars for parents/carers  Option 1: For Parents/Ca... - News
- About TA
Our Vision We want a world where people with Tourette syndrome are: accepted, supported and embraced. This is a world which enables people with the ... - TA team
 Staff Emma McNally   CEO Emma is both a successful business executive and an avid campaigner for theneeds of people with T... - Our Trustees
TA Trustees Marc Lewis  Chair of Trustees Marc became a trustee in 2020 and has been a supporter of the charity for a number of ye... - TA Accounts & Impact Reports
Annual Accounts TA Accounts - 2023 - 2024 TA Accounts - 2022 - 2023 TA Accounts - 2021 - 2022 Â Impact Report Impact Report Apr 23 - Mar ... - Jobs at TA
 Volunteering We are often looking for volunteers to support our work. Please check our volunteers’ page for information about current volunteer... - Contact us
- Media enquiries
Tourettes Action can provide the media with: Up to date and accurate information on TS Comment from leading figures and healthcare professionals ... - Complaints Policy
Click on the download file (right) to open the Tourettes Action Complaints Policy.... - Privacy policy
Last Updated: 04/09/2024  Tourettes Action and you The term ‘Tourettes Action’ or ‘us’ or ‘we’ refers to the owner of this website, T... - Data Protection Policy
- Research
Tourettes Action is the leading UK based charity working with families and individuals living with TS, and is therefore well placed to promote researc... - Tourettes Action Funded Research
Why Tourettes Action funded this round of research TS is perhaps the most publicly misunderstood of all neurological conditions and has considerable ... - 2017 Funded Projects
1. The impact of executive functioning and time processing abilities on adaptive functioning in children with Tourette Syndrome Dr Tara Murphy, Consu... - 2018 Funded Projects
1. Tackle your Tics: Feasibility of a brief, intensive group-based exposure therapy programme for children with Tourette Syndrome Annet Heijerman, D... - 2019 Funded Projects
The impact of interoceptive awareness and attentional control on tics, anxiety and quality of life in young people with Tourette Syndrome/Chronic Tic ... - Research Projects
Important aspects of research include increasing our understanding of the prevalence of TS, the quality of life among people affected by TS and risk a... - Current projects
Investigating interhemispheric M1-M1 interactions in Tourette syndrome The aim of this study is to investigate how the motor regions (M1) in both sid... - Previous projects
2025 Research Studies Young people needed to help design a new research study Researchers wanted to speak to 18–21-year-olds with autism and tics... - Research Archive
Pre 2019 Research Studies European Tourette Syndrome Research Survey A short questionnaire for patients and families with Tourette Syndrome, to inform... - Spotlight on researchers
 Danni Phoenix-Kane is a PhD student at the University of Hertfordshire. Danni's doctoral research is exploring the diagnostic journey, lived exp... - Support with your research
 Recruiting participants We know that recruiting participants for research can sometimes be challenging. Tourettes Action can help your recruitmen... - Ask the experts
Tourettes Action asked the TS community to tell us what questions they would ask health professionals and researchers working in the field of Tourette... - Donate
The money you donate goes a long way • £300 pays towards support in education for a pupil with TS• £250 enables us to plan and deliver webi...
