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Volunteer for Tourettes Action

Volunteering for Tourettes Action is a great way to get involved in the charity's work and to help support people living with Tourette Syndrome.

We currently have a variety of volunteering opportunities available:

Helpdesk volunteers

Our Helpdesk is a vital service that provides information and support to people with TS, their families and health and education professionals. 

Volunteering on the Helpdesk is a diverse and rewarding experience. We provide comprehensive training and continued development to equip you with the necessary skills and knowledge needed for the role of Helpdesk volunteer; and we are committed to supporting our volunteers throughout their Helpdesk experience.  

Through volunteering on the Helpdesk you will acquire transferable skills and will be directly contributing to our aim, which is to help people with TS receive the practical support and social acceptance to help them live their lives to the full. 

Our volunteers need to have the ability to listen, be non-judgemental, empathetic and self-aware. If you are interested in more information about this role you can email the Helpdesk co-ordinator Suzanne Parsons who will provide you with a full volunteer role description and person specification. 


Why a befriending service?

Not everyone is able to access a local support group and some people prefer to communicate with others on a one-to-one basis. This is where our volunteer befrienders can help.

Many families and adults have told us that they would like to be able to email or telephone another family , adult, teenager or child to talk candidly about their experiences with someone who understands, who has been through similar experiences.

The main role of the befriender (you, the volunteer) is to offer informal support and a listening ear by forming a trusting and supportive relationship by email/or telephone with the service user. If successful, the relationship will help to reduce isolation and provide information, understanding and mutual friendship.

Many people may feel lost, socially isolated and stressed following a diagnosis of TS or whilst navigating the health system to seek a diagnosis. They may be distressed about living with Tourettes or managing it within a school or work environment. Our volunteer befrienders can play a part in helping reduce all of these feelings and to help the person or family to move forward.

The role is home based and hours are to suit.
If this is something that you would be interested in and would like some more information, please contact

Other Volunteering Opportunities

Occasionally, we ask for volunteers to help at TA events, such as TICfest and TEENfest. Please email Emma Myers if this is something you are interested in.

For any questions about volunteering for TA, please email Suzanne Parsons.

"Tourettes Action is a charity working to make life better for people with Tourette Syndrome"



Friday 19 August 17:00

The Weekend@Moor Hall, Cookham, Berkshire

Sunday 28 August 14:00

Guildford Support Group, Guildford Spike, Warren Road, Guildford, Surrey, GU1 3JH

Friday 02 September 16:30

TICfest@ Thorpe Woodlands, Thetford, Norfolk