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Tourettes Action Helpdesk

The Tourettes Action Helpdesk provides confidential and impartial support to adults and children living with Tourette Syndrome (TS).


We know how important it is to have somebody to talk to about your experiences of TS. If you have questions or concerns about TS and want to speak to someone who understands the issues, then please contact us either by phone or email:

  • Helpdesk telephone: 0300 777 8427
  • Contact the Helpdesk: Send contact form
  • Live chat: similar to a messenger service, this facility allows for instant chat via our website
  • Facebook Messenger: send us your questions through Facebook messenger
  • We are running online support groups for parents, adults and teenagers.  Please click here for further information.

We welcome calls and emails from people with TS as well as their friends, family and any professionals who are seeking information and guidance. We deal with a wide range of subjects, including:

Please note that our Helpdesk does not give diagnoses or advice on medications; you should contact a medical professional to discuss such issues. Our aim is to listen supportively to you and provide you with information.

You can download a list of consultantants who are specialist in diagnosing and treating TS here.

We also have a list of Behavioural Therapists you can download who provide behavioural therapy for managing tics


Opening hours

Open from 9am – 3pm Monday, Tuesday, Wednesday and Friday

Open from 9am – 8pm Thursday

Live Chat

Available from 9am – 3pm Monday – Friday



The Helpdesk is a confidential service.  For our statistical purposes, and to inform you of local TA events, we add service users contact details and the reason for the call to our secure database.  You can chose to be contacted about news, research,local events etc.  We will not share the details of your call or email with any person outside of the organisation. However, in extreme circumstances, where there is a real and present risk of harm to a caller or another individual, we will break confidentiality.

Call charges

Calls to the Helpdesk are charged at local rate. If you have inclusive minutes with your mobile phone or landline contract, calls are included as part of your inclusive minutes. If you do not have inclusive minutes then calls will be charged at the cost of calling a local landline number.

RNID Typetalk

Deaf, hard of hearing, deaf-blind and speech impaired people can contact us by using RNID Typetalk and a textphone or computer. Simply dial 18001 0300 777 8427.

Calls are charged at standard telephone rates. To find out more about RNID Typetalk, visit


The Helpdesk relies heavily on volunteers and we are always looking to recruit and train more people to help us continue providing information and support by phone and email.  If volunteering on the helpdesk interests you, please read more about what is involved in the role, what it can do for you, and how you can get involved.

"What helped me was the helpdesk. I rang a few times when I was at my lowest and they were fab"


Contact us

If you have any questions we would love to hear from you






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