Tourette’s Awareness brings together a community

Posted Wed 11th Jun 2025 at 09:00
by Kirsty & Chris O'Keefe

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How the thriving TA Chelsea Support Group is making a difference

As Tourette’s Awareness Month begins on the 15th of May, we wanted to take a moment to share the story behind our Tourette’s Support Group — how it came to be, and the difference it’s making within our community.

Tourette Syndrome is a neurological condition that causes a person to make involuntary sounds or movements called tics. It’s  often misunderstood and, sadly, can lead to feelings of isolation or embarrassment, especially in social settings. For many living with Tourette’s, the challenges go far beyond the tics themselves — it can affect confidence, relationships, school, work, and overall wellbeing. Even simple things like going to the shops or sitting in a quiet room can feel overwhelming. Our journey began when our daughter was diagnosed with Tourette’s at the age of 12. As a family, we found ourselves navigating a new world — learning, adjusting, and trying to support her the best we could. While we found information online, what we really longed for was connection. We wanted to speak to people who understood what it was like, who’d lived it, and who could share real experiences — not just textbook advice.

That’s when the idea for a support group came about.

With the encouragement of others and the support of our church parish, we opened the doors to a small group — just a few chairs, a kettle on, and hearts open. From that first meeting, something special happened. We weren’t alone anymore. Conversations flowed, laughter broke the tension, and tics were met with nothing but acceptance. Over time, our group grew, bringing together individuals, parents, siblings, and friends — all connected by a shared experience and a desire for understanding.

Our meetings are a place where people can show up exactly as they are. No need to explain, no fear of judgement — just a warm, welcoming space where everyone is accepted and encouraged. We share stories, frustrations, strategies, and sometimes just a quiet nod that says, “I get it.”

This month is about awareness, yes — but more than that, it’s about community. It’s about the power of coming together, especially when life feels a little heavy. We’ve seen first-hand the difference a bit of kindness and connection can make, and we’re so grateful to be part of something that brings hope and comfort to others.

From  our family to yours — thank you for reading, for learning, and for helping us make Tourette’s just a little less lonely for those who live with it every day.

With love,

The O’Keefes

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