Support in everyday life for people living with TS
We know that living with Tourette Syndrome (TS) can be a daily challenge. The condition can make going to work, school or even out with friends more complicated. Aside from the symptoms themselves being problematic, a lot of the time issues arise through other's lack of understanding and awareness.
This section looks at how TS is recognised under Disability Law in the UK, what state benefits may be available to people with TS, the responsibility of employers and service providers towards people with TS and general advice concerning other areas in life such as housing and transport.
Is TS a disability?
TS is considered a disability under UK law, which prohibits people with the condition being discriminated against because of it. We have outlined information about TS & disability, including the definition of disability under the 2010 Equality Act.
The nature of TS can mean that sometimes it is difficult to work regular hours. Whether or not you consider your TS to be a disability, there are benefits available that can help to pay the bills. We have put together a list of benefits which people with TS may be entitled to and useful organisations to contact.
Personal Independence Payment
Personal Independence Payment (PIP) is a disability benefit for working age claimants (age16-64) from April 2013. TA has put together some general information about claiming and a list of organisations that can provide detailed information and advice on benefits.
Please note that Tourettes Action does not specialise in benefits and is unable to assist with individuals’ cases or help fill in claim forms. We suggest that you contact the organisations listed in our factsheets for advice and support.
We have put together a Factsheet - employment and TS, looking at:
- Steps to employment: Choosing careers, job finding, interviews;
- Disclosing your condition to your employer: When is it appropriate to tell your employer you have TS, telling your colleagues;
- Managing stress at work: self-help tools to help manage stress;
- Responsibility of the employer: Employer’s duty to disabled workers, reasonable adjustments;
- Discrimination in the workplace: What to do if you feel you have been discriminated against at work, bullying;
- Other types of employment options for people with TS: Social firms, self-employment; and,
- Useful organisations and resources.
Information for employers
Employers have a responsibility under law to support employees with disabilities. TA has put together information for employers about TS which you can pass to them.
Access to good, services and facilities should be equal to everybody, regardless of whether they have a disability. We have put together information about the duty of Service Providers to make reasonable adjustments to remove barriers for disabled people and your rights.
Unfortunately, some people with TS have difficulties with their housing situation. We have put together details of some potential housing issues that people with TS could face, and how you might look to resolve them.
The guide also contains organisations to contact with housing queries. Please note that Tourettes Action does not specialise in housing policy and is unable to assist with individuals’ housing cases. We suggest you contact the organisations listed in this document for advice.
Flying, using public transport and even driving yourself around aren’t always straightforward for people with TS. We’ve put together a factsheet about TS & transport explaining your rights and ways to improve your travel experiences.