Down to content

My Challenges with TS

Posted Fri 17th Dec 2021 at 14:00
by Rin White

Share

17 year old Rin White shares her story.

I was diagnosed with Tourettes at age 8 and I also have social anxiety and I am being assessed for ASD and ADHD.

Some things were challenging, but my Tourettes didn’t prevent me from doing what I wanted to do even though it made life harder. This all changed when I hit 16 in 2020. My tics became much worse, I started swearing, making obscene gestures, repeating phrases, and uttering offensive sentences out of my control. I began having tic attacks that would last for hours.

I’m a resilient person and got on with my A-Levels, did my grade 8 flute in the summer and was applying to university to study engineering. I was determined that Tourettes wasn’t going to limit what I could achieve. I felt that it was hard, but I was able to do what I wanted to do and could get on with my life.

That was until this Autumn. On the 15th of October after attending a county orchestra rehearsal I lost the ability to walk or sit up. It is like having two or three extreme tics that prevent me from walking, sitting and being independent in any way. I had two A&E admissions which thankfully ruled out anything degenerative or physical for which I was very relieved. I have had to drop out of year 13, withdraw my university applications, stop playing flute and piano which I love as I can barely leave my room. I have not been able to access specialist support so do not really understand what is happening to me.

I am still determined that my condition will not limit me. I got crutches last week and can walk on my own again. I walked to our local co-op yesterday and bought some sweets after being stuck in my room for 8 weeks.

Those sweets were the best I have ever eaten!

School have said I can redo year 13 and are making adjustments to help me go back to school when my condition improves. My short-term goals are to walk unaided, play flute and piano again, go back to school and get my A-Level’s then go to university to study aeronautical engineering. I know that it won’t be easy, but I will get there. When I get better, I am sure that there will be more blips and challenges along the way, but I won’t give up!


Return to blog


Contact us

If you have any questions we would love to hear from you

donate

 

 

 

 


This website may use cookies to provide an improved experience. You can refuse these cookies by changing your browser settings.
To remove this message, click here to accept cookies.