Down to content

Up to

Support with your research


Letters of support for researchers

Tourettes Action are very happy to encourage and support research into Tourettes Syndrome in all areas by providing a letter of support for your application of research funding to other funding organisations.

Tourettes Action can review applications for a letter of support if:

• the applicant is affiliated to a legitimate research institution, university or hospital

• it is accompanied by the (early or full) proposal due for grant submission

• full details of the research grant applied for are provided

To apply for help, please contact Seonaid Anderson, Tourettes Action Research Manager at


Recruiting participants

We know that recruiting participants for research can sometimes be challenging. That’s why Tourettes Action have set up a Research Participant Registry for people willing to be research participants or lay reviewers for Tourettes Action research grants. This forms part of Tourettes Actions Patient and Public Involvement Programme. Tourettes Action can help your recruitment by sharing your research with our supporters.

How we do this

• by emailing our network of research supporters across the UK (or specific areas)

• by featuring your project on our website and sharing it with our online community

• by putting you in contact with our local groups

What you need to do

We ask that researchers do not approach our local groups directly, instead, please contact Tourettes Action Research Manager Seonaid Anderson at

You will be asked to provide:

• full ethical approval or support letter

• patient information sheet and consent form

Read more about how we can help in our 'Supporting non-financial research' and 'Recruting and engaging research participants' in the right side column


Writing a lay summary

Lay summaries are short accounts of research that are targeted at a general audience. For the Tourettes Action audience they can be useful in supporting wider public engagement with research. The main aims of the lay summary of your research for the Tourettes Action website are:

• To have an article of around 300–500 words, this is the suggested lower word limit for a web article.

• This summary is to communicate research to a non-specialist audience, so please describe your research in non-specialist language.

• Please bear in mind when writing the lay summary that by disseminating your research to the lay audience it will increase the relevance of the research to people with tics and Tourettes Syndrome.

• It is also hoped that such dissemination with engage people in research and therefore increase recruitment to research.

• Please show how your research findings will be used to make a difference to service users’ lives.

On behalf of Tourettes Action we would like to thank you warmly for engaging with us and the Tourette Syndrome community by telling us about your research and its benefits.