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Find your way around the Tourette Action website.

If you have any questions about information on our site please contact us.

  • Home
    Tourettes Action is a support and research charity working to improve the lives of people living with Tourette Syndrome. Our services include online l...
  • About TS
    Find out more about TS In this section discover: What TS is The symptoms of TS What causes TS The steps to getting diagnosed with TS Different...
    • What is TS?
      Key features The key features are tics – involuntary sounds and movements, which must be present for at least 12 months to meet the diagnostic crit...
    • Symptoms
      Tics Tics usually start in childhood around the age of six to seven years and tic symptoms often fluctuate in severity and frequency.  Although ...
    • Co-occurring symptoms
      In order to understand and best support people living with TS it is vital to acknowledge - aside from tics - other associated features and conditions ...
    • Causes
      The brain Brain scanning in people with TS has shown that there are some parts of the brain that function differently or have a slightly different si...
    • Getting diagnosed
      For TS to be diagnosed, multiple motor tics and at least one vocal tic must be present for at least 12 months. TS can only be diagnosed by observing ...
    • Managing TS
      If you or a family member has Tourette Syndrome (TS), Tourettes Action is here for you. We consult with leading health experts and professionals in th...
      • Behavioural therapies
        Behavioural therapies and Tourette Syndrome Behavioural therapies can be useful for most people with tic disorders, although evidence suggests that i...
      • Telemedicine
          Liz Murray*, Seonaid Anderson, Research Manager at Tourettes Action and Tara Murphy, Honorary Consultant Clinical Psychologist from Great...
      • Medication
        Medication can reduce symptoms and improve quality of life of people with TS when needed. Unfortunately side effects of the treatments are not uncommo...
      • Other approaches
        The benefits of a healthy lifestyle  Diet and exercise There are many different ways of generating health and well-being, the most obvious bein...
      • Neurosurgery
        DBS in Tourette Syndrome Among the neurosurgical techniques, deep brain stimulation (DBS) with implantation of electrodes at selected targets undoubt...
    • Resources
      Click on one of the coloured boxes below to see information relevant to you, including research, treatment and about children with TS. From there, you...
    • FAQs
      If you have any other questions about TS please contact our Helpdesk....
  • Find support
    Support based information and services for people with TS and their families Young people Support in school Support in everyday life, including h...
    • Helpdesk
      You can reach us in a number of different ways:   Live chat:  Instant support via our website available Monday to Thursday 10a...
    • Online Support Groups
      Our online support groups are a great opportunity for the TS community to connect with each other. Hosted on interactive video platform Zoom, our Vol...
    • Education
        If your child has been recently diagnosed we suggest taking the following steps: Supporting your child through their education, needs to be ap...
    • Everyday life
      This section looks at how TS is recognised under Disability Law in the UK, what state benefits may be available to people with TS, the responsibility ...
    • Young people
      There is a lot of information about TS available, but Tourettes Action knows that because it is a complicated condition a lot of the material can be q...
    • TA Passport
      Professionals worked closely with young people with TS to explore their psychosocial and educational experiences and to examine what factors influence...
    • TA ID cards
      Sometimes the symptoms of TS can be difficult to explain, and in situations like busy pubs, restaurants or on public transport, you may not want to ge...
    • TA Grants
      We award grants of up to £500 for equipment that supports people with TS in their day-to-day life. Some examples of what we have funded in the past i...
    • TS around the world
      If you belong to a group or know of another organisation not on this list please contact TA and we will be happy to add them. Argentina - Tourette ...
  • Community
    Events Find out about local and national events run by Tourettes Action and volunteers in the TS community. Your videos about TS We think the best ...
    • Events
        TICfest events - our popular weekend family residential events run annualy throughout the late spring/summer in different locations across the...
      • TICfest
        TICfest 2022 We are thrilled to announce our schedule of exciting events for the 2022 season. For those who have been previously, you will know what...
      • TEENfest
        TEENfest 2022   TEENfest is a wonderful opportunity for teens with TS to meet other teens for a weekend of making friends, mutual support and fun. ...
      • Weekends for adults with TS
        Weekends for Adults with TS 2022   Our adult weekends are an opportunity for individuals over the age of 18 with a diagnosis of TS (plus one guest)...
      • Events by Region
      • Events Calendar
    • Your TS videos
      Why not make your own video? If you have something you want to say about your TS that contributes to helping, supporting, reassuring and informing th...
    • TA online
      Sign up now to follow us at: Facebook Twitter Youtube Instagram If you want news direct to your inbox don’t forget to sign up to the TA...
    • TA Blog
      If you would like to write about your experiences of TS, we would love to hear from you. Please email us to find out more and discuss what you might l...
    • TA Newsletter
      The monthly Tourettes Action newsletter is emailed directly to your inbox and is packed with information about events, research projects, fundraising ...
  • Get involved
    Donate to Tourettes Action Our work is funded completely by voluntary donations so your donation, be it £10 or £1,000, is essential in en...
    • Make a donation
      Without the support of people like you, it would not be possible for Tourettes Action (TA) to continue this work.We receive no government funding and ...
      • Other ways to donate
        Donate in celebration Is it your birthday soon or are you getting married? If so why not ask for donations to Tourettes Action instead of presents? I...
      • Leave a legacy
        Leaving Tourettes Action a gift in your will is one of the most valuable and lasting ways that you can support us. It costs nothing during your lifeti...
    • Fundraise for TA
      There are lots of ways to get involved with fundraising for TA. Many of our supporters collect sponsorship for taking part in an organised challenge, ...
      • Fundraise your way
        Your options for events to organise are limited only by your imagination. Here are some ideas: Ask your school to organise a non-uniform day in aid...
      • Sponsored challenges
        Run the London Marathon for TA The Virgin London Marathon is the biggest charity event in the world. TA is lucky to have one Golden Bond for the Virg...
    • Shop
      Order your goodies now TA merchandise make great gifts or order some for yourself to show your support. Add items to your shopping basket and then fo...
    • Volunteer for TA
      We currently have a variety of volunteering opportunities available: Helpdesk volunteers Our Helpdesk is a vital service that provides information a...
    • Campaigns
      As a charity, Tourettes Action want people with TS to receive the practical support and social acceptance they need to help them live their lives to t...
      • #TourettesWeMatter
        What’s the issue? There are over 300,000 children and adults living with tic disorders in the UK.  Tics are usually lifelong, meaning that we nee...
      • Tourettes Awareness 2022
        What is the issue? Whilst the majority of people have heard of Tourette Syndrome, many do not really understand what it entails, most thinking that s...
  • Professionals
    Education Tourettes Action has compiled advice for teachers and other professionals working in education and supporting a child with TS. There is inf...
    • Employers
      Many people with TS have amazing streaks of creativity. There are no jobs closed to people with TS. People with the condition work as chefs, bricklaye...
    • Health Professionals
      Information for GPs What is TS and how is it treated? Tourette Syndrome is an inherited, neurological condition, the key features of which are tics,...
    • Teachers
      How can TS affect learning? Approximately 1% of school children have TS (the same prevelance as Autism). Many of those children will try to suppr...
    • Training and Events
      Training events for clinicians Behavioural Therapy Training  Clinical Consultations   ...
      • Behavioural Therapy
        We are following government advice very carefully regarding coronavirus public health measures.  As a result, our plans for CBITS training 2020 a...
      • Clinical consultation sessions
        Planned clinical consultation sessions for 2020 have been suspended until further notice due to government advice regarding social distancing measures...
  • News
  • About TA
    Find out more about Tourettes Action Watch our video to find hear about our work from the people we support. You can find out more about who we are ...
    • TA team
       Staff Emma McNally CEO Emma is both a successful business executive and an avid campaigner for theneeds of people with TS. She is ...
    • Our Trustees
      TA trustees Robin Paxton Chair of Trustees Robin has been Tourettes Action Chair of Trustees for the past ten years, after retiring from ...
    • TA accounts
      TA accounts - 2020 - 2021 TA accounts - 2019 - 2020 TA accounts - 2018 - 2019 If you have any questions about the TA accounts please email us....
    • Jobs at TA
      There are currently no vacancies for positions at TA.  However, we are often looking for volunteers to support our work. Please check our volunt...
    • Contact us
    • Media enquiries
      Tourettes Action can provide the media with: Up to date and accurate information on TS Comment from leading figures and healthcare professionals ...
    • Privacy policy
      The term ‘Tourettes Action’ or ‘us’ or ‘we’ refers to the owner of the website whose registered office is Tourette Syndrome (UK) Associati...
    • Data Protection Policy
  • Research
    Tourettes Action is the leading UK based charity working with families and individuals living with TS, and is therefore well placed to promote researc...
    • Research Projects
      Important aspects of research include increasing our understanding of the prevalence of TS, the quality of life among people affected by TS and risk a...
      • Current projects
        Exploring the experiences of people who use online communities for Tourette syndrome and tics Researchers at the University of Nottingham are investi...
      • Previous projects
        ORBIT Trial (Online Remote Behavioural Intervention for Tics) Trial results published: This was a clinical trial to see whether an online platf...
      • Spotlight on researchers
          Danni Phoenix-Kane is a PhD student at the University of Hertfordshire. Danni's doctoral research is exploring the diagnostic journey, lived exp...
    • Support with your research
        Recruiting participants We know that recruiting participants for research can sometimes be challenging. Tourettes Action can help your recrui...
    • Ask the experts
      Tourettes Action asked the TS community to tell us what questions they would ask health professionals and researchers working in the field of Tourette...
  • Donate
    The money you donate goes a long way • £300 pays towards support in education for a pupil with TS• £250 ena...

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