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Research
Reports, surveys and information about research into Tourette Syndrome.
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Leaflets
About TS
ACAMH: The Bridge, Tourette syndrome edition
ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health. Their online publication - The Bridge - brings together research digests, and Tourette syndrome is the focus of their February 2019 edition.
Factsheet - A guide to the Genetics of Tourette Syndrome
Since the 1980s it has been known that Tourette Syndrome can run in families. Probably most people with TS (but not all) do have other family members with some signs of the condition, including very mild tics or other features such as ADHD or OCD rather than tics.
Factsheet - Neupulse
There are new and emerging digital therapies that are being developed to support those living with Tourette syndrome. Neupulse is one such device.
Research
Proforma for non-funded research (word.doc)
Research
University of Sussex Tourette syndrome Research Newsletter
Updates on the study progress and analyses of University of Sussex research using brain scanning techniques to look at how brain activity and structure might contribute to symptoms like tics.
Report
About TS
ACAMH: The Bridge, Tourette syndrome edition
ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health. Their online publication - The Bridge - brings together research digests, and Tourette syndrome is the focus of their February 2019 edition.
Research
Mothers' accounts of mealtime and feeding challenges for children with Tourette syndrome or persistent tic disorders
Research study supported by TA, published in 2022.
Neurodiversity at work
This report highlights the benefits of having a 'neurodiverse' workforce and aims to identify policies and practices to ensure the integration of people with neurological conditions into mainstream employment.
Research report into coloured overlays and TS
Researchers found beneficial effects in reading when children with Tourette Syndrome used coloured overlays.
Videos
Beyond Tics
'Beyond Tics' is a short film depicting the events of a workshop run by the London Brain Project (2015) in which Artists, Neuroscientists and people with Tourette syndrome collaborated to create collaborative pieces of art.
About TS
Dance, Yoga and how it's helped my TS
Clair Beckett, professional dancer, yoga teacher and theatre company director talks about her experience of movement based practices and how they support her TS.
About TS
University of Nottingham research study into online support groups
An online survey exploring users’ experiences of using online support groups for tic disorders and Tourette syndrome
Books
Cognitive-Behavioural Management of Tic Disorders
This book provides a comprehensive review of what is known about the occurrence and diagnosis of tics.
Presentations
Research
Body perception in Tourette Syndrome - interoception, tics & premonitory urges
Slides from Dr Cahrlotte Rae's presentation at the 2019 TARN conference
Download 1569504655_Charlotte_Rae_Body-perception-in-Tourette-Syndrome_TARN_2019.pdf
Research
Co-morbidities labels, lists and lets talk
Slides from Dr Tammy Hedderley's presentation at the 2019 TARN conference.
Download 1569504740_Hedderly-Tammy_Cormorbidities,-Labels-and-Lets-talk_TARN_2019.pdf
Research
Tackle your Tics: feasibility of a brief, intensive group-based exposure therapy programme for children with Tourette Syndrome.
Slides from Annet Heijerman & Dr Cara Verdellen's presentation at the 2019 TARN conference.
Download 1569504853_Presentation-Tackle-your-Tics_TARN_2019.pdf
Research
The neurophysiology of tics
Slides from Professor John Rothwell's presentation at the 2019 TARN conference.
Research
The Stigma of Tourette Syndrome
Slides from Dr Melina Malli's presentation at the 2019 TARN conference.
Website links
Research paper: Difficulties experienced by young people with Tourette syndrome in secondary school
Difficulties experienced by young people with Tourette syndrome in secondary school: a mixed methods description of self, parent and staff perspectives.
Press cuttings
New insights into genetics of OCD, Tourette Syndrome
An international research group has provided the first direct evidence that both obsessive-compulsive disorder (OCD) and Tourette syndrome (TS) are highly heritable.
About TS
New Scientist article: People with Tourette's may find it easier to pick up new skills
People with Tourette's syndrome seem to have enhanced memory that could make them better at learning tasks unconsciously, such as speaking a second language or driving a car.
Tourettes Action Passport
Funded by the Big Lottery, TA commissioned the University of Nottingham to undertake research on improving the Psychosocial Experiences of Adolescents with Tourette Syndrome.
