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Managing TS
Information about how to treat and manage Tourette Syndrome.
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Leaflets
About ADHD - A guide for children
This booklet is designed for children with ADHD and will help them understand what ADHD is, how it may affect them, what help they may need and how they can help themselves.
About TS
ACAMH: The Bridge, Tourette syndrome edition
ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health. Their online publication - The Bridge - brings together research digests, and Tourette syndrome is the focus of their February 2019 edition.
Behavioural Therapist List
This is a list of psychological therapists in the UK who offer Behavioural Therapy & Cognitive Behavioural Therapy for the treatment of tics & Tourette syndrome. Some of these practitioners work independently and others practice within a multidisciplinary service.
Consultant List
This is a list of consultants who have indicated they have specialist experience in diagnosing and treating Tourette Syndrome.
Factsheet - Anger and TS
A factsheet looking at anger issues in people with Tourette syndrome, including ways to manage anger attacks.
Factsheet - Coprophenomena
Coprophenomena is the involuntary expression of socially unacceptable words or gestures including coprolalia, coprographia and copropraxia.
Factsheet - Exam revision tips
This factsheet offers information on what exam access arrangements are available to someone with TS and tips on how to best prepare for exams.
About TS
Factsheet - Executive Functioning WELSH TRANSLATION
Download 1784038549_Tourettes-Action-Factsheet---Executive-Functioning-Welsh-PRINT.pdf
Factsheet - Medical options for Tourette syndrome
Behavioural therapies are key to treating TS, but many people may also benefit from medication. This factsheet explains the different typpes of medication that may be available to you.
Factsheet - Pain and TS
A factsheet exploring the causes of tic‑related pain and providing guidance on strategies to manage symptoms.
About TS
Factsheet - Pain and TS WELSH TRANSLATION
Download 1784038615_Tourettes-Action-Factsheet---Pain-and-TS-Welsh-PRINT.pdf
About TS
Factsheet - Therapy options for TS
Behavioural therapy can be helpful for some people living with TS. This factsheet explains the different types of therapy that are currently recommended for TS.
Download 1760966788_Factsheet---Therapy-Options-for-TS-v1.pdf
Children & young people
Factsheet - Transitioning to higher education: A student's guide
A helpful guide with advice and information to aid the smooth transition from further to higher education.
Download 1727102218_Factsheet---Transitioning-to-higher-education---students.pdf
Children & young people
Factsheet - Transitioning within the education system: A parent/carers guide
A helpful guide on managing the transition process, with ideas and strategies to support what can be a challenging time for those with TS.
Download 1727102298_Factsheet---Transitioning-within-the-education-system---parent-carers-(1).pdf
Managing TS
Factsheet - TS and Depression
Depression is when someone experiences low mood for a prolonged period of time. Everyone can experience low mood from time to time - it is a normal emotion. When feelings of low mood and sadness are persistent, this might be a sign of depression.
About TS
Factsheet - TS and Disability Rights WELSH TRANSLATION
Download 1784038651_Tourettes-Action-Factsheet---TS-and-Disability-Rights-Welsh-PRINT.pdf
About TS
Factsheet for Employees WELSH TRANSLATION
Download 1784038459_Tourettes-Action-Factsheet---Employees-Welsh.pdf
About TS
Factsheet for Employers WELSH TRANSLATION
Download 1784038502_Tourettes-Action-Factsheet---Employers-Welsh.pdf
How to get good sleep
The current lockdown means that many of us have disrupted routines and are largely confined to our homes. This can affect our sleep cycle and our mood. Sleep is essential for learning, growth, cell repair and memory consolidation. Here are some easy steps we can all take to ensure we get good quality sleep, even at times of uncertainty.
Putting the breaks on rage
A guide to understanding anger for parents and how to turn the rage around.
Tic Attack document only - A4 Easy print
Easy print version of the A4 Tic Attacks document, for adults and children.
Tic Attack document only - A4 Easy print, child friendly version
Adapted version of the Tic Attacks document for children, with images.
TS Passport - A4 Easy print
Easy print version of the TS Passport for adults and children.
TS Passport with Tic Attacks sheet - A4 Easy print
Easy print version of the TS Passport for adults and children, with Tic Attacks sheet.
Children & young people
TS Social Story
A learning tool to help support the exchange of information between children with TS and their teachers, friends and others in social situations.
What If...a practical guide to possible problems
A “What if” board is a strategy for making plans to combat potential difficult situations. It helps us to identify what our worries are and make plans to manage them.
It’s a simple but effective strategy for managing big changes or common problems.
During the current Covid-19 pandemic people are facing unprecedented changes to their daily lives, and are coping with anxieties related to health, finances and worries about family members.
To support you we have compiled responses to some potential “What ifs” in the hope that they may provide you with some support and guidance at this difficult time.About TS
What Makes Us Tic WELSH TRANSLATION
Download 1784038401_Tourette-Action-Brochure---What-Makes-Us-Tic-Welsh-PRINT.pdf
Report
About TS
ACAMH: The Bridge, Tourette syndrome edition
ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health. Their online publication - The Bridge - brings together research digests, and Tourette syndrome is the focus of their February 2019 edition.
Children & young people
Differences and similarities of ASD and Tourette Syndrome
Chartered research psychologist and freelance neurodiversity consultant Seonaid Anderson is the author of an interesting article featured in the 2021 Jan/Feb edition of SEN magazine.
The article compares the many differences and similarities between Tourette Syndrome (TS) and Autism Spectrum Disorder (ASD), such as prevalence, symptoms, co-occurring conditions and movements which are associated with each condition.
Managing TS
Psychology at work - improving wellbeing and productivity in the workplace
Psychology is the scientific study of mind and behaviour, from communication and memory to thought and emotion. This report from the British Psychological Society can be used by policy makers, commissioners, practitioners and employers to apply relevant psychological theory, evidence and practice to design interventions that work with human behaviour, not against it.
Download 1511349992_Psychology-at-work---improving-wellbeing-and-productivity-in-the-workplace.pdf
Videos
About TS
Anger and Tourette syndrome: Top tips and coping strategies
Dr Maria Hadji-Michael, Clinical Psychologist at Great Ormond Street Hospital defines what anger difficulties are in Tourette syndrome, and provides information and guidance to parents and schools on how to support a young person experiencing these difficulties
Comprehensive Behavioral Intervention For Tics - A guide for parents
The Tourette Association of America have produced an informative guide for parents on tic management, in particular looking at the treatment of Comprehensive Behavioral Intervention For Tics (CBIT); presented by Dr Michael Himle, Associate Professor of Psychology at the University of Utah.
About TS
Comprehensive Behavioral Intervention for Tics Demonstration Pt. 4
Comprehensive Behavioral Intervention for Tics Demonstration by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee; featuring Carlos Guevara, taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Comprehensive Behavioral Intervention for Tics Pt. 2
Comprehensive Behavioral Intervention for Tics Part 2 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Comprehensive Behavioral Intervention for Tics Pt. 3
Comprehensive Behavioral Intervention for Tics Part 3 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Comprehensive Behavioral Intervention for Tics: Part 1
Comprehensive Behavioral Intervention for Tics Part 1 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Dance, Yoga and how it's helped my TS
Clair Beckett, professional dancer, yoga teacher and theatre company director talks about her experience of movement based practices and how they support her TS.
Managing TS
Do-IT talking Neurodiversity with Paul Stevenson, Tourette Syndrome Advocate
A short video interview about Neurodiversity focusing on Tourette Syndrome. Professor Amanda Kirby of Do-IT Solutions discusses Neurodiversity and what is important about it with Paul Stevenson, Tourette Syndrom Advocate.
About TS
James McCraken: Treatment options for tic disorders and comorbidities
In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, James T McCracken M. D., Professor of Child Psychiatry Director, Division of Child & Adolescent Psychiatry, Dept of Psychiatry & Bio-Behavioural Sciences at UCLA, gives an overview of the role of medical treatments in the treatment of TS and co-occurring conditions.
About TS
John Piacentini: Environmental influences and behaviour therapy
In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, John Piacentini PhD ABPP Professor of Psychiatry & Bio-Behavioural Sciences at UCLA discusses the environmental influences on tics, and behaviour therapy.
Rupert shares his experience of CBIT therapy with Tourettes Action
Watch this informative video which shows the benefits of Comprehensive Behavioral Intervention for Tics (CBIT).
About TS
TA Ambassadors - What makes us tic?
Our TikTok Ambassadors meet up to tell us what they think the public should know about Tourette syndrome.
Tic Talk: School Transition
This video is part of our 'Tic Talk' series, in which we have collaborated with Specialist Teacher - Katie Skinner - to bring strategies and advice to children, parents and teachers about topics relating to school and TS.
About TS
University of Nottingham research study into online support groups
An online survey exploring users’ experiences of using online support groups for tic disorders and Tourette syndrome
What TS means to me
Meet Logan, he has Epilepsy, Tourette Syndrome, Autism Spectrum Disorder (Asperger’s), Attention Deficit Hyperactivity Disorder (ADHD) and Hypermobility Disorder. These conditions can make life difficult at times, but Logan has a great attitude to life that supports him in doing everything he wants to do. In this video he explains what having TS means to him.
Books
Anger management games for children
This practical handbook helps adults to understand, manage and reflect constructively on children's anger.
Breaking Free from OCD: A CBT Guide for Young People and Their Families
This self-help book for young people aged 10-16 is for adolescents who have suffered from, or know someone who has suffered from, OCD, their families, teachers, carers, and mental health professionals.
Cognitive-Behavioural Management of Tic Disorders
This book provides a comprehensive review of what is known about the occurrence and diagnosis of tics.
Coping with Tourette syndrome: A Workbook for Kids with Tic Disorders
This practical workbook includes forty activities to help kids with TS, obsessive compulsive disorder (OCD), or attention-deficit hyperactivity disorder (ADHD) understand, prepare for, and mask their tics.
Disorganised Children: A Guide for Parents and Professionals
Psychiatrists, speech, family and occupational therapists present a range of behavioural and psychological strategies to help disorganized children improve concentration in the classroom and a variety of behaviour and social interaction difficulties.
Kids in the Syndrome Mix
A concise, scientifically up-to-date, all-in-one guide to the whole range of often co-existing neuro-behavioral disorders in children.
Late, Lost & Unprepared - A parents' guide to helping children with Executive Functioning.
Executive functions are the cognitive skills that help us manage our lives and be successful. This book is suitable for parents of children from primary school through high school who struggle with: Impulse Control; Cognitive Flexibility; Initiation; Working Memory; Planning & Organising; and, Self-monitoring.
Managing Tourette syndrome
A Behavioral Intervention for Children and Adults Therapist Guide (Treatments That Work).
My Tics and Me
My Tics and Me is a warm, engaging picture book that introduces young children to Tourette syndrome in a way they can easily understand. Written in playful rhymes and brought to life with colourful illustrations, it follows Jamie — a lively child who sometimes makes unexpected sounds and movements called tics. Written by Paul Stevenson using his lived experience of living his life with Tourette syndrome.
Nix Your Tics!: Eliminate Unwanted Tic Symptoms: A How-To Guide for Young People
Dr. B. Duncan McKinlay, Psychologist (‘Dr. Dunc’) has Tourette Syndrome. That means he’s been living with both motor tics (movements he has a hard time stopping) and phonic tics (noises he has a hard time stopping) for most of his life.
Second Chances - A young person's guide to emotional resilience
An inspiring book that looks at various ways in which young people can build emotional resilience to help them cope with the stresses and strains of being a young person with health issues.
Teaching the Tiger
A practical reference book for educators working with students who have Tourette Syndrome, Attention Deficit Disorder, and/or Obsessive-Compulsive Disorder.
The Tourettes Survival Kit: Tools for Young Adults with Tics
Struggling to manage your tics in the classroom? Worried about your tics in a job interview or on a first date? This survival kit will give you the tools to survive and thrive in every location - at home, school, work or out with friends.
Tic Disorders - A Guide for Parents and Professionals
Uttom Chowdhury and Dr Tara Murphy. Foreword by Suzanne Dobson, Chief Executive of Tourettes Action UK.
Tics and Tourette syndrome: A Handbook for Parents and Professionals
This guide to tic disorders and Tourette syndrome tackles problems faced both at home and at school.
Touch and Go Joe: An Adolescent's Experience of OCD
One in every 100 people suffers from Obsessive-Compulsive Disorder (OCD), and 16-year-old Joe Wells is one of them.
Tourette syndrome (The Facts)
The Facts explains the causes of TS, how it is diagnosed, and how to cope if you or a relative has been recently diagnosed.
What to Do When Your Brain Gets Stuck: A Kid's Guide to Overcoming OCD
A what-to-do guides for kids with OCD.
Links
About ADHD - A guide for children
This booklet is designed for children with ADHD and will help them understand what ADHD is, how it may affect them, what help they may need and how they can help themselves.
Children & young people
Online ID card application form
Complete your application for a TS ID card online and submit all supporting documents plus a passport size photo (Jpeg).
Click here to apply online
Website links
How can brands engage better with customers with invisible disabilities?
Serena Bhandari joined Martin Newman from Consumer Focus (a podcast which aims to educate, inform and provoke debate on how businesses can offer the best possible experience and service to their customers).to discuss her experiences around having Tourette Syndrome, and how stores and restaurants can make sure that staff can assist customers with ‘invisible’ disabilities.
Press cuttings
About TS
New Scientist article: People with Tourette's may find it easier to pick up new skills
People with Tourette's syndrome seem to have enhanced memory that could make them better at learning tasks unconsciously, such as speaking a second language or driving a car.
