Tourettes Action Helpdesk
The Tourettes Action Helpdesk provides confidential and impartial support to adults and children living with Tourette Syndrome (TS).
We know how important it is to have somebody to talk to about your experiences of TS. If you have questions or concerns about TS and want to speak to someone who understands the issues, then please contact us either by phone or email:
- Helpdesk telephone: 0300 777 8427
- Helpdesk email: firstname.lastname@example.org
We welcome calls and emails from people with TS as well as their friends, family and any professionals who are seeking information and guidance. We deal with a wide range of subjects, including:
- Information on getting a diagnosis
- Support available after diagnosis
- Advice on handling TS in school
Please note that our Helpdesk does not give diagnoses or advice on medications; you should contact a medical professional to discuss such issues. Our aim is to listen supportively to you.
The TA Helpdesk is open Monday to Friday between 9am – 3pm. And Saturday morning service between 9am-12pm. If you call out of hours, you will be able to leave a voicemail. We endeavour to reply to all voicemails and emails within three working days.
The Heldesk is a confidential service. For our statistical purposes, and to inform you of local TA events, we add service users contact details and the reason for the call to our secure database. You can chose not to have your details recorded, or opt out of being contacted about local events. We will not share the details of your call or email with any person outside of the organisation. However, in extreme circumstances, where there is a real and present risk of harm to a caller or another individual, we will break confidentiality.
Calls to the Helpdesk are charged at local rate. If you have inclusive minutes with your mobile phone or landline contract, calls are included as part of your inclusive minutes. If you do not have inclusive minutes then calls will be charged at the cost of calling a local landline number.
Deaf, hard of hearing, deaf-blind and speech impaired people can contact us by using RNID Typetalk and a textphone or computer. Simply dial 18001 0300 777 8427.
Calls are charged at standard telephone rates. To find out more about RNID Typetalk, visit www.typetalk.org.