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The Tourettes Action Blog

The Tourettes Action blog gives people with Tourette Syndrome (TS) a space to talk about how the condition affects them. We hope that by explaining what life is really like to have or to live with someone who has TS, we can fight the stigma about the condition.

If you would like to write about your experiences of TS, we would love to hear from you. Please email us to find out more and discuss what you might like to write about.


October 2016

  • Staring

    In one outing I showed a tuna and sweetcorn salad my middle finger, shouted the word ‘BEIGE!’ at a man dressed entirely in said hue, and told the whole of Starbucks to f- off. In the queue for the ladies, I let out an innocuous (albeit incongruous) ‘WOO’, and the woman in front actually backed away. As a general rule, I turn heads. People look at me, but people also more than look at me: they stare.

    Posted Wed 26th Oct 2016 at 13:37
    by Alice Franklin

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  • The Importance of Peer Support

    Tracey Francis is a freelance writer and researcher with a particular interest in improving the chances and life choices available to young people who face barriers to inclusion. She was awarded a Travel Fellowship by the Winston Churchill Memorial Trust to explore the experiences of young people with Tourettes, Asperger’s Syndrome or ADHD in Italy, Norway and the Czech Republic after they leave school. Her findings, taken from conversations with 50 young people and/or their family members, are the basis of a new report offering practical insights and recommendations to improve the experiences of this group as they make the transition to adulthood. For full details of the project, or to download a copy of the final report, visit www.lifeontheedgeofthecliff.com

    Posted Thu 20th Oct 2016 at 14:28
    by Tracey Francis

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  • Anatomically Speaking - Adrian Reynolds tells us about his tics.

    I have been asked many times exactly what Tourette’s does to me, how it manifests day to day. There is such a frequent shift in severity, frequency, movements and physical toll that it’s of limited value to produce a simple list.

    Posted Thu 6th Oct 2016 at 12:48
    by Adrian Reynolds

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