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About TS

Information about Tourette Syndrome, including the causes and symptoms of the condition.

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  • Leaflets

  • About TS

    ACAMH: The Bridge, Tourette Syndrome edition

    ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health.  Their online publication - The Bridge - brings together research digests, and Tourette Syndrome is the focus of their February 2019 edition.

     

    Download 1549295119_ACAMH-The-Bridge-Feb-2019.pdf

  • About TS

    Factsheet - A guide to the Genetics of Tourette Syndrome

    Since the 1980s it has been known that Tourette Syndrome can run in families. Probably most people with TS (but not all) do have other family members with some signs of the condition, including very mild tics or other features such as ADHD or OCD rather than tics.

    Download 1482150066_TA-Guide-to-the-Genetics-of-Tourette-Syndrome.pdf

  • About TS

    Factsheet: Diet and nutritional supplements

    As with most chronic conditions, people are often interested in the possible influence of diet. At Tourettes Action we often get asked about any links between diet and Tourette Syndrome or tics.

    Download 1488195649_Factsheet---Diet-and-nutritional-supplements.pdf

  • Guide to seeing a specialist

    A guide to what you can expect when you go to see a specialist.

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  • Managing tics

    We have provided a list of creative ways to manage tics, based on feedback from people in the TS community.

    Find out more

  • TS magazine feature

    Final year Journalism student, David Conway, from the University of Sheffield has created a magazine article focusing on the stories of three individuals with TS, including football's international goalkeeper Tim Howard, whilst also examining the facts behind the condition.

    Find out more

  • What Makes Us Tic

    Our principal leaflet explaining about Tourette Syndrome, the causes, symptoms and treatments available.

    Find out more

  • Report

  • About TS

    ACAMH: The Bridge, Tourette Syndrome edition

    ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health.  Their online publication - The Bridge - brings together research digests, and Tourette Syndrome is the focus of their February 2019 edition.

     

    Download 1549295119_ACAMH-The-Bridge-Feb-2019.pdf

  • Neurodiversity at work

    This report highlights the benefits of having a 'neurodiverse' workforce and aims to identify policies and practices to ensure the integration of people with neurological conditions into mainstream employment.

    Find out more

  • Videos

  • A school-based exercise to demonstrate how concentration can be impaired by tics

    Harvey is passionate about informing teachers about TS, and wanted to make a short video to demonstrate how TS can be a barrier to learning.

    Find out more

  • About TS

    Ability Magazine Interview with artist - Liu Fusheng

    Liu Fusheng, a larger than life artist lives in Singapore and has Tourette syndrome. Despite the severity of his symptoms, he was misdiagnosed until his college years.  Liu's art flourishes and his eccentric style continues to evolve.

    View video

  • About TS

    Anger and Tourette Syndrome: Top tips and coping strategies

    Dr Maria Hadji-Michael, Clinical Psychologist at Great Ormond Street Hospital defines what anger difficulties are in Tourette Syndrome, and provides information and guidance to parents and schools on how to support a young person experiencing these difficulties

    View video

  • Anger video resources: ABC Chart

    This resource has been reproduced courtesy of The Psychological Medicine Team, Great Ormond Street Hospital.

     

    Find out more

  • Anger video resources: Behaviour Support Plan

    This resource has been reproduced courtesy of The Psychological Medicine Team, Great Ormond Street Hospital.

    Find out more

  • Anger video resources: Incredible 5 point scale

    This resource has been reproduced courtesy of The Psychological Medicine Team, Great Ormond Street Hospital.

    Find out more

  • Beyond Tics

    'Beyond Tics' is a short film depicting the events of a workshop run by the London Brain Project (2015) in which Artists, Neuroscientists and people with Tourette Syndrome collaborated to create collaborative pieces of art.

    Find out more

  • BMJ podcast about Tourette Syndrome

    Tourette's Action Chief Executive, Suzanne Dobson, speaks to the British Medical Journal about Tourette Syndrome. Audio - 20.48 mins.

    Find out more

  • Channel 4 programme looks at TS

    Ben shatters the illusion that all people with TS swear.

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  • About TS

    Comprehensive Behavioral Intervention for Tics Pt. 2

    Comprehensive Behavioral Intervention for Tics Part 2 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.

    View video

  • About TS

    Comprehensive Behavioral Intervention for Tics Pt. 3

    Comprehensive Behavioral Intervention for Tics Part 3 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.

    View video

  • About TS

    Comprehensive Behavioral Intervention for Tics: Part 1

    Comprehensive Behavioral Intervention for Tics Part 1 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.

    View video

  • About TS

    Dance, Yoga and how it's helped my TS

    Clair Beckett, professional dancer, yoga teacher and theatre company director talks about her experience of movement based practices and how they support her TS.

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  • Experiences of Tourette Syndrome

    Will goes on a mission to find out more about his condition and his future by talking to other people with Tourette Syndrome.

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  • About TS

    Growing Up with Tourettes

    Top international digital star, Caspar Lee interviews young people about growing up with Tourette Syndrome in this heart-warming video.

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  • About TS

    James McCraken: Treatment options for tic disorders and comorbidities

    In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, James T McCracken M. D., Professor of Child Psychiatry Director, Division of Child & Adolescent Psychiatry, Dept of Psychiatry & Bio-Behavioural Sciences at UCLA, gives an overview of the role of medical treatments in the treatment of TS and co-occurring conditions.

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  • About TS

    Jamie Sanders on Tourettes jokes

    Jamie discusses the misuse of the word Tourettes in popular culture, and how this limits people's understanding of the condition

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  • Jess, Ruth and Luke talk about life with TS to Australian TV show

    Australian TV show 'Sunday Night' spends time with Jess, Ruth and Luke to gain insight into the reality of living with TS

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  • About TS

    John Piacentini: Environmental influences and behaviour therapy

    In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, John Piacentini PhD ABPP Professor of Psychiatry & Bio-Behavioural Sciences at UCLA discusses the environmental influences on tics, and behaviour therapy.

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  • Living with Tourettes: Finding the flip side

    Michael Chichioco tells an inspiring and deeply emotional story about living with Tourette's syndrome .

     

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  • About TS

    Prof Kevin Black: What are tics and what company do they keep?

    In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video Kevin Black, Professor of Psychiatry, Neurology, Radiology and Neuroscience at Washington University, St Louis; discusses in detail what Tourette Syndrome is.

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  • Rupert shares his experience of CBIT therapy with Tourettes Action

    Watch this informative video which shows the benefits of Comprehensive Behavioral Intervention for Tics (CBIT).

    Find out more

  • Russian Dolls

    ‘Russian Doll’ is a film made by Clair Beckett in collaboration with Street Factory and Red5 films, as part of a project called 'Hip Hop Hope' funded by the Arts Council England.

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  • About TS

    The barber who lives his life with TS

    Cutting hair is precision work that demands calm and steady hands.  So what do you do if your dream is to become a barber, but you're diagnosed with Tourette syndrome?  David Arce, 27, has the answer: "You just go out there and follow your dreams. If I can do it, anybody can."

    View video

  • About TS

    Things Not To Say To People With Tourette Syndrome

    The fantastic BBC3 series 'Things Not To Say To People', that helps break down stereotypes and myths about social groups have made an episode on Tourette Syndrome.

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  • Tourettes Action - parent and school partnership

    Geraldine Hills discusses how parents of children with Tourette Syndrome can work with the school to get the best support in place for their child.

    Find out more

  • About TS

    Tourettes and how to be unstoppable

    I constantly twitch, jerk and today love being an 837 + performance keynote speaker living with the rare neurological disorder Tourettes Syndrome www.itwitch.com 

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  • What is Tourette Syndrome?

    Neurologist Dr Jeremy Stern explains Tourette Syndrome.

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  • What makes me tic

    Find out how these inspiring young people manage their condition and other people's reaction throughout their everyday lives.

    Find out more

  • Books

  • About TS

    Can I tell you about Tourette Syndrome?: A guide for friends, family and professionals

    Meet Max - a boy with Tourette syndrome (TS). Max invites readers to learn about Tourette's from his perspective, helping them to understand what tics and triggers are and what it feels like to have TS. He explains how living with TS can sometimes be difficult, and how people around him can help him to feel happy and accepted. This illustrated book is ideal for young people aged 7 upwards, as well as parents, friends, teachers and other professionals working with children with TS. It is also an excellent starting point for family and classroom discussions.

  • Nix Your Tics!: Eliminate Unwanted Tic Symptoms: A How-To Guide for Young People

    Dr. B. Duncan McKinlay, Psychologist (‘Dr. Dunc’) has Tourette Syndrome. That means he’s been living with both motor tics (movements he has a hard time stopping) and phonic tics (noises he has a hard time stopping) for most of his life. 

    Find out more

  • About TS

    The Tourettes Survival Kit: Tools for Young Adults with Tics

    Struggling to manage your tics in the classroom? Worried about your tics in a job interview or on a first date? This survival kit will give you the tools to survive and thrive in every location - at home, school, work or out with friends. Presenting everyday situations, from schools and exams through to driving and dates, this guide provides simple solutions to common problems and concerns. Dr Tara gives her top tips for managing tics, alongside behavioural therapy techniques for stress management and strategies for coping with commonly co-occurring conditions such as ADHD, OCD and anxiety.

    Download 1559075259_Lancet-review-of-Toolkit.pdf

  • Tic Disorders - A Guide for Parents and Professionals

    Uttom Chowdhury and Tara Murphy. Foreword by Suzanne Dobson, Chief Executive of Tourettes Action UK.

    Find out more

  • Whatever Happened To Twitch Morgan?: A Life with Tourette's Syndrome by David Jowsey

    WHATEVER HAPPENED TO TWITCH MORGAN? 'An approachable and uplifting story of life with Tourette's Syndrome' 

    Find out more

  • Presentations

  • Anger video resources: ABC Chart

    This resource has been reproduced courtesy of The Psychological Medicine Team, Great Ormond Street Hospital.

     

    Find out more

  • Anger video resources: Behaviour Support Plan

    This resource has been reproduced courtesy of The Psychological Medicine Team, Great Ormond Street Hospital.

    Find out more

  • Anger video resources: Incredible 5 point scale

    This resource has been reproduced courtesy of The Psychological Medicine Team, Great Ormond Street Hospital.

    Find out more

  • Website links

  • "A smartphone App helped me treat my Tourettes"

    The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.

     

    Find out more

  • Press cuttings

  • "A smartphone App helped me treat my Tourettes"

    The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.

     

    Find out more

  • About TS

    New Scientist article: People with Tourette's may find it easier to pick up new skills

    People with Tourette's syndrome seem to have enhanced memory that could make them better at learning tasks unconsciously, such as speaking a second language or driving a car.

    Download 1522229004_new_scientist_procedural-memory.pdf

  • TS magazine feature

    Final year Journalism student, David Conway, from the University of Sheffield has created a magazine article focusing on the stories of three individuals with TS, including football's international goalkeeper Tim Howard, whilst also examining the facts behind the condition.

    Find out more

  • Spotlight on professions

  • About TS

    Child and adolescent psychiatrist

    As part of our 'Spotlight on Professions' series, we speak to Dr Osman Malik, Child and adolescent psychiatrist.

    Download 1546950093_child-and-adolescent-psychiatrist.pdf

  • About TS

    Clinical psychologist

    As part of our 'Spotlight on Professions' series, we speak to Dr Alesia Moulton Perkins and Dr Tara Murphy, clinical psychologists.

    Download 1547038636_clinical-psychologist.pdf

  • About TS

    Educational psychologist

    As part of our 'Spotlight on Professions' series, we speak to Dr Olivia Kenneally, educational psychologist.

    Download 1547036439_education-psychologist.pdf

  • About TS

    Neurologist

    As part of our 'Spotlight on Professions' series, we speak to Dr Jeremy Stern, Consultant Neurologist.

    Download 1546954616_neurologists.pdf

  • About TS

    Paediatrician

    As part of our 'Spotlight on Professions' series, we speak to Dr Inyang Takon, Consultant Paediatrician.

    Download 1546956242_Paediatrician.pdf

  • About TS

    Psychiatrist

    As part of our 'Spotlight on Professions' series, we speak to Professor Chris Hollis, psychiatrist.

    Download 1549367437_Spotlight-Professions-Psychiatrist.pdf

  • About TS

    SENCo

    As part of our 'Spotlight on Professions' series, we speak to Jill Aitken, Deputy Head (Students and Achievement).

    Download 1547033142_SENCO.pdf

  • About TS

    Specialist nurse

    As part of our 'Spotlight on Professions' series, we speak to Joe Kilgariff, Specialist nurse

    Download 1547031875_specialist-nurse.pdf

  • About TS

    Speech and Language Therapist

    As part of our 'Spotlight on Professions' series, we speak to Jenni Lindinger, Speech and Language Therapist

    Download 1549287498_speech-and-language-therapist.pdf

"People need to know that TS is involuntary. We don't need pity, but some will always need help, support and understanding"

 
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