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Managing TS

Information about how to treat and manage Tourette Syndrome.

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  • Leaflets

  • About ADHD - A guide for children

    This booklet is designed for children with ADHD and will help them understand what ADHD is, how it may affect them, what help they may need and how they can help themselves. 

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  • About TS

    ACAMH: The Bridge, Tourette Syndrome edition

    ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health.  Their online publication - The Bridge - brings together research digests, and Tourette Syndrome is the focus of their February 2019 edition.

     

    Download 1549295119_ACAMH-The-Bridge-Feb-2019.pdf

  • Adverse behaviour

    A factsheet looking at behaviour issues in people with TS, including a section for parents on disciplining children and young people for parents.

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  • Restricted Consultant List

    This is a list of consultants who have indicated they have specialist experience in diagnosing and treating Tourette Syndrome.  

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  • Factsheet - anger and TS

    A factsheet looking at anger issues in people with Tourette Syndrome, including ways to manage anger attacks.

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  • Factsheet - behavioural therapies

    A factsheet looking at behavioural therapies, including Habit Reversal Therapy and Comprehensive Behavioural Intervention for Tics.

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  • Factsheet - Coprolalia

    Coprophenomena is the involuntary expression of socially unacceptable words or gestures including Coprolalia, Coprographia and Copropraxia.

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  • Factsheet - pain and TS

    A factsheet looking at how tics can cause pain and ways to control and manage the pain.

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  • How to get good sleep

    The current lockdown means that many of us have disrupted routines and are largely confined to our homes.  This can affect our sleep cycle and our mood. Sleep is essential for learning, growth, cell repair and memory consolidation. Here are some easy steps we can all take to ensure we get good quality sleep, even at times of uncertainty.  

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  • Managing tics

    We have provided a list of creative ways to manage tics, based on feedback from people in the TS community.

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  • Putting the breaks on rage

    A guide to understanding anger for parents and how to turn the rage around.

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  • Restricted TA Behavioural Therapist List

    This is a list of psychological therapists in the UK who offer Behavioural Therapy & Cognitive Behavioural Therapy for the treatment of tics & Tourette Syndrome. Some of these practitioners work independently and others practice within a multidisciplinary service.

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  • Children & young people

    TS Social Story

    A learning tool to help support the exchange of information between children with TS and their teachers, friends and others in social situations.

    Download 1598275011_TA-Social-Story-A4-v4.pdf

  • What If...a practical guide to possible problems

    A “What if” board is a strategy for making plans to combat potential difficult situations. It helps us to identify what our worries are and make plans to manage them.

    It’s a simple but effective strategy for managing big changes or common problems.

    During the current Covid-19 pandemic people are facing unprecedented changes to their daily lives, and are coping with anxieties related to health, finances and worries about family members.

    To support you we have compiled responses to some potential “What ifs” in the hope that they may provide you with some support and guidance at this difficult time.

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  • Report

  • About TS

    ACAMH: The Bridge, Tourette Syndrome edition

    ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health.  Their online publication - The Bridge - brings together research digests, and Tourette Syndrome is the focus of their February 2019 edition.

     

    Download 1549295119_ACAMH-The-Bridge-Feb-2019.pdf

  • Children & young people

    Differences and similarities of ASD and Tourette Syndrome

    Chartered research psychologist and freelance neurodiversity consultant Seonaid Anderson is the author of an interesting article featured in the 2021 Jan/Feb edition of SEN magazine.

    The article compares the many differences and similarities between Tourette Syndrome (TS) and Autism Spectrum Disorder (ASD), such as prevalence, symptoms, co-occurring conditions and movements which are associated with each condition.

    Download 1610981978_Tourette's-&-Autism-article.pdf

  • Managing TS

    Psychology at work - improving wellbeing and productivity in the workplace

    Psychology is the scientific study of mind and behaviour, from communication and memory to thought and emotion. This report from the British Psychological Society can be used by policy makers, commissioners, practitioners and employers to apply relevant psychological theory, evidence and practice to design interventions that work with human behaviour, not against it.

    Download 1511349992_Psychology-at-work---improving-wellbeing-and-productivity-in-the-workplace.pdf

  • Secondary Tourettes - Transition to Secondary School. SEN Magazine

    Tourettes Action Research Manager Dr Seonaid Anderson, looks at how to help children with Tourette Syndrome handle the difficult transition to secondary school.

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  • Videos

  • About TS

    Anger and Tourette Syndrome: Top tips and coping strategies

    Dr Maria Hadji-Michael, Clinical Psychologist at Great Ormond Street Hospital defines what anger difficulties are in Tourette Syndrome, and provides information and guidance to parents and schools on how to support a young person experiencing these difficulties

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  • Anger video resources: Incredible 5 point scale

    This resource has been reproduced courtesy of The Psychological Medicine Team, Great Ormond Street Hospital.

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  • Chelsea White talks about life with Tourette Syndrome

    Comedian Chelsea White talks about her life with Tourette Syndrome in this series of seven short videos.

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  • Comprehensive Behavioral Intervention For Tics - A guide for parents

    The Tourette Association of America have produced an informative guide for parents on tic management, in particular looking at the treatment of Comprehensive Behavioral Intervention For Tics (CBIT); presented by Dr Michael Himle, Associate Professor of Psychology at the University of Utah.

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  • About TS

    Comprehensive Behavioral Intervention for Tics Demonstration Pt. 4

    Comprehensive Behavioral Intervention for Tics Demonstration by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee; featuring Carlos Guevara, taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.

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  • About TS

    Comprehensive Behavioral Intervention for Tics Pt. 2

    Comprehensive Behavioral Intervention for Tics Part 2 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.

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  • About TS

    Comprehensive Behavioral Intervention for Tics Pt. 3

    Comprehensive Behavioral Intervention for Tics Part 3 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.

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  • About TS

    Comprehensive Behavioral Intervention for Tics: Part 1

    Comprehensive Behavioral Intervention for Tics Part 1 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.

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  • About TS

    Dance, Yoga and how it's helped my TS

    Clair Beckett, professional dancer, yoga teacher and theatre company director talks about her experience of movement based practices and how they support her TS.

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  • Managing TS

    Do-IT talking Neurodiversity with Paul Stevenson, Tourette Syndrome Advocate

    A short video interview about Neurodiversity focusing on Tourette Syndrome. Professor Amanda Kirby of Do-IT Solutions discusses Neurodiversity and what is important about it with Paul Stevenson, Tourette Syndrom Advocate.

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  • About TS

    James McCraken: Treatment options for tic disorders and comorbidities

    In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, James T McCracken M. D., Professor of Child Psychiatry Director, Division of Child & Adolescent Psychiatry, Dept of Psychiatry & Bio-Behavioural Sciences at UCLA, gives an overview of the role of medical treatments in the treatment of TS and co-occurring conditions.

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  • About TS

    John Piacentini: Environmental influences and behaviour therapy

    In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, John Piacentini PhD ABPP Professor of Psychiatry & Bio-Behavioural Sciences at UCLA discusses the environmental influences on tics, and behaviour therapy.

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  • Rupert shares his experience of CBIT therapy with Tourettes Action

    Watch this informative video which shows the benefits of Comprehensive Behavioral Intervention for Tics (CBIT).

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  • Tic Talk: School Transition

    This video is part of our 'Tic Talk' series, in which we have collaborated with Specialist Teacher - Katie Skinner - to bring strategies and advice to children, parents and teachers about topics relating to school and TS.

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  • About TS

    University of Nottingham research study into online support groups

    An online survey exploring users’ experiences of using online support groups for tic disorders and Tourette syndrome

  • What makes me tic

    Find out how these inspiring young people manage their condition and other people's reaction throughout their everyday lives.

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  • What TS means to me

    Meet Logan, he has Epilepsy, Tourette Syndrome, Autism Spectrum Disorder (Asperger’s), Attention Deficit Hyperactivity Disorder (ADHD) and Hypermobility Disorder.  These conditions can make life difficult at times, but Logan has a great attitude to life that supports him in doing everything he wants to do.  In this video he explains what having TS means to him.

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  • Books

  • Anger management games for children

    This practical handbook helps adults to understand, manage and reflect constructively on children's anger.

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  • Breaking Free from OCD: A CBT Guide for Young People and Their Families

    This self-help book for young people aged 10-16 is for adolescents who have suffered from, or know someone who has suffered from, OCD, their families, teachers, carers, and mental health professionals.

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  • Cognitive-Behavioural Management of Tic Disorders

    This book provides a comprehensive review of what is known about the occurrence and diagnosis of tics.

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  • Coping with Tourette Syndrome: A Workbook for Kids with Tic Disorders

    This practical workbook includes forty activities to help kids with TS, obsessive compulsive disorder (OCD), or attention-deficit hyperactivity disorder (ADHD) understand, prepare for, and mask their tics.

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  • Disorganised Children: A Guide for Parents and Professionals

    Psychiatrists, speech, family and occupational therapists present a range of behavioural and psychological strategies to help disorganized children improve concentration in the classroom and a variety of behaviour and social interaction difficulties.

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  • Kids in the Syndrome Mix

    A concise, scientifically up-to-date, all-in-one guide to the whole range of often co-existing neuro-behavioral disorders in children.

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  • Late, Lost & Unprepared - A parents' guide to helping children with Executive Functioning.

    Executive functions are the cognitive skills that help us manage our lives and be successful. This book is suitable for parents of children from primary school through high school who struggle with: Impulse Control; Cognitive Flexibility; Initiation; Working Memory; Planning & Organising; and, Self-monitoring.

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  • Managing Tourette Syndrome

    A Behavioral Intervention for Children and Adults Therapist Guide (Treatments That Work).

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  • Nix Your Tics!: Eliminate Unwanted Tic Symptoms: A How-To Guide for Young People

    Dr. B. Duncan McKinlay, Psychologist (‘Dr. Dunc’) has Tourette Syndrome. That means he’s been living with both motor tics (movements he has a hard time stopping) and phonic tics (noises he has a hard time stopping) for most of his life. 

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  • Second Chances - A young person's guide to emotional resilience

    An inspiring book that looks at various ways in which young people can build emotional resilience to help them cope with the stresses and strains of being a young person with health issues. 

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  • Teaching the Tiger

    A practical reference book for educators working with students who have Tourette Syndrome, Attention Deficit Disorder, and/or Obsessive-Compulsive Disorder. 

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  • About TS

    The Tourettes Survival Kit: Tools for Young Adults with Tics

    Struggling to manage your tics in the classroom? Worried about your tics in a job interview or on a first date? This survival kit will give you the tools to survive and thrive in every location - at home, school, work or out with friends. Presenting everyday situations, from schools and exams through to driving and dates, this guide provides simple solutions to common problems and concerns. Dr Tara gives her top tips for managing tics, alongside behavioural therapy techniques for stress management and strategies for coping with commonly co-occurring conditions such as ADHD, OCD and anxiety.

    Download 1559075259_Lancet-review-of-Toolkit.pdf

  • Tic Disorders - A Guide for Parents and Professionals

    Uttom Chowdhury and Tara Murphy. Foreword by Suzanne Dobson, Chief Executive of Tourettes Action UK.

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  • Tics and Tourette Syndrome: A Handbook for Parents and Professionals

    This guide to tic disorders and Tourette Syndrome tackles problems faced both at home and at school.

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  • Touch and Go Joe: An Adolescent's Experience of OCD

    One in every 100 people suffers from Obsessive-Compulsive Disorder (OCD), and 16-year-old Joe Wells is one of them.

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  • Tourette Syndrome (The Facts)

    The Facts explains the causes of TS, how it is diagnosed, and how to cope if you or a relative has been recently diagnosed. 

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  • Links

  • About ADHD - A guide for children

    This booklet is designed for children with ADHD and will help them understand what ADHD is, how it may affect them, what help they may need and how they can help themselves. 

    Find out more

  • Coprolalia Myths Demystified

    An article looking at the reasons behind coprolalia and inappropriate behaviour.

    Find out more

  • Children & young people

    Online ID card application form

    Complete your application for a TS ID card online and submit all supporting documents plus a passport size photo (Jpeg).

    Click here to apply online

  • Presentations

  • Anger video resources: Incredible 5 point scale

    This resource has been reproduced courtesy of The Psychological Medicine Team, Great Ormond Street Hospital.

    Find out more

  • Website links

  • "A smartphone App helped me treat my Tourettes"

    The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.

     

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  • How can brands engage better with customers with invisible disabilities?

    Serena Bhandari joined Martin Newman from Consumer Focus (a podcast which aims to educate, inform and provoke debate on how businesses can offer the best possible experience and service to their customers).to discuss her experiences around having Tourette Syndrome, and how stores and restaurants can make sure that staff can assist customers with ‘invisible’ disabilities.

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  • Press cuttings

  • "A smartphone App helped me treat my Tourettes"

    The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.

     

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  • About TS

    New Scientist article: People with Tourette's may find it easier to pick up new skills

    People with Tourette's syndrome seem to have enhanced memory that could make them better at learning tasks unconsciously, such as speaking a second language or driving a car.

    Download 1522229004_new_scientist_procedural-memory.pdf

  • USA Goalkeeper Tim Howard On Playing With TS (May 2013)

    USA and Everton goalkeeper, Tim Howard, talks about how he is able to play football whilst having TS. Article from Next Impulse Sports.

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"People need to know that TS is involuntary. We don't need pity, but some will always need help, support and understanding"

 
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